Murillo M, Bel J, Perez J, Corripio R, Carreras G, Herrero X, et al. Health-related quality of life (HRQOL) and its associated factors in children with type 1 diabetes mellitus (T1DM). BMC Pediatr. 2017;17(1):16.
Article
Google Scholar
Bryden KS, Dunger DB, Mayou RA, Peveler RC, Neil HA. Poor prognosis of young adults with type 1 diabetes: a longitudinal study. Diabetes Care. 2003;26(4):1052–7.
Article
Google Scholar
DiMeglio LA, Acerini CL, Codner E, Craig ME, Hofer SE, Pillay K, et al. ISPAD clinical practice consensus guidelines 2018: glycemic control targets and glucose monitoring for children, adolescents, and young adults with diabetes. Pediatr Diabetes. 2018;19(Suppl 27):105–14.
Article
Google Scholar
Beck RW, Calhoun P, Kollman C. Use of continuous glucose monitoring as an outcome measure in clinical trials. Diabetes Technol Ther. 2012;14(10):877–82.
Article
CAS
Google Scholar
Dabelea D, Stafford JM, Mayer-Davis EJ, D'Agostino R Jr, Dolan L, Imperatore G, et al. Association of type 1 diabetes vs type 2 diabetes diagnosed during childhood and adolescence with complications during teenage years and young adulthood. JAMA. 2017;317(8):825–35.
Article
Google Scholar
James S, Gallagher R, Dunbabin J, Perry L. Prevalence of vascular complications and factors predictive of their development in young adults with type 1 diabetes: systematic literature review. BMC Res Notes. 2014;7:593.
Article
CAS
Google Scholar
Campbell F, Biggs K, Aldiss SK, O'Neill PM, Clowes M, McDonagh J, et al. Transition of care for adolescents from paediatric services to adult health services. Cochrane Database Syst Rev. 2016;4:CD009794.
PubMed
Google Scholar
Viner RM. Transition of care from paediatric to adult services: one part of improved health services for adolescents. Arch Dis Child. 2008;93(2):160–3.
Article
Google Scholar
Monaghan M, Helgeson V, Wiebe D. Type 1 diabetes in young adulthood. Curr Diabetes Rev. 2015;11(4):239–50.
Article
Google Scholar
Mazur A, Dembinski L, Schrier L, Hadjipanayis A, Michaud PA. European academy of Paediatric consensus statement on successful transition from paediatric to adult care for adolescents with chronic conditions. Acta Paediatr. 2017;106(8):1354–7.
Article
Google Scholar
Braga de Souza AC, Felicio JS, Koury CC, Neto JF, Mileo KB, Santos FM, et al. Health-related quality of life in people with type 1 Diabetes Mellitus: Data from the Brazilian Type 1 Diabetes Study Group. Health Qual Life Outcomes. 2015;13:204.
Article
Google Scholar
Smith-Palmer J, Bae JP, Boye KS, Norrbacka K, Hunt B, Valentine WJ. Evaluating health-related quality of life in type 1 diabetes: a systematic literature review of utilities for adults with type 1 diabetes. Clinicoecon Outcomes Res. 2016;8:559–71.
Article
Google Scholar
Delamater AM, de Wit M, McDarby V, Malik J, Acerini CL. International Society for P, et al. ISPAD Clinical Practice Consensus Guidelines 2014. Psychological care of children and adolescents with type 1 diabetes. Pediatr Diabetes. 2014;15(Suppl 20):232–44.
Article
Google Scholar
Cruz D, Collet N, Nobrega VM. Quality of life related to health of adolescents with DM1: an integrative review. Cien Saude Colet. 2018;23(3):973–89.
Article
Google Scholar
Lukacs A, Mayer K, Sasvari P, Barkai L. Health-related quality of life of adolescents with type 1 diabetes in the context of resilience. Pediatr Diabetes. 2018;19(8):1481–6.
Article
CAS
Google Scholar
Nieuwesteeg A, Pouwer F, van der Kamp R, van Bakel H, Aanstoot HJ, Hartman E. Quality of life of children with type 1 diabetes: a systematic review. Curr Diabetes Rev. 2012;8(6):434–43.
Article
Google Scholar
Anderson BJ, Laffel LM, Domenger C, Danne T, Phillip M, Mazza C, et al. Factors associated with diabetes-specific health-related quality of life in youth with type 1 diabetes: the global TEENs study. Diabetes Care. 2017;40(8):1002–9.
Article
Google Scholar
Varni JW, Delamater AM, Hood KK, Raymond JK, Driscoll KA, Wong JC, et al. Diabetes symptoms predictors of health-related quality of life in adolescents and young adults with type 1 or type 2 diabetes. Qual Life Res. 2018;27(9):2295–303.
Article
Google Scholar
Kent DA, Quinn L. Factors that affect quality of life in young adults with type 1 diabetes. Diabetes Educ. 2018;44(6):501–9.
Article
Google Scholar
Sattoe JN, Peeters MA, Hilberink SR, Ista E, van Staa A. Evaluating outpatient transition clinics: a mixed-methods study protocol. BMJ Open. 2016;6(8):e011926.
Article
Google Scholar
Schneider, SL. The International Standard Classification of Education 2011. In: Birkelund, GE. Class and Stratification Analysis. Emerald Group Publishing Ltd. 2013:365–79.
Varni JW, Limbers CA. The PedsQL 4.0 generic Core scales Young adult version: feasibility, reliability and validity in a university student population. J Health Psychol. 2009;14(4):611–22.
Article
Google Scholar
Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr. 2003;3(6):329–41.
Article
Google Scholar
Limperg PF, Haverman L, van Oers HA, van Rossum MA, Maurice-Stam H, Grootenhuis MA. Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version. Health Qual Life Outcomes. 2014;12:9.
Article
Google Scholar
Field AP. Discovering statistics using IBM SPSS. 5th Edition. Sage Publications Ltd. 2018.
Cohen J. Statistical power analysis for the behavioral sciences. Hillsdale, N.J: L. Erlbaum Associates; 1988.
Sattoe JN, Hilberink SR, van Staa A, Bal R. Lagging behind or not? Four distinctive social participation patterns among young adults with chronic conditions. J Adolesc Health. 2014;54(4):397–403.
Article
Google Scholar
Maurice-Stam H, Nijhof SL, Monninkhof AS, HSA H, Grootenhuis MA. Review about the impact of growing up with a chronic disease showed delays achieving psychosocial milestones. Acta Paediatr. 2019;108(12):2157–69.
Nielsen HB, Ovesen LL, Mortensen LH, Lau CJ, Joensen LE. Type 1 diabetes, quality of life, occupational status and education level - a comparative population-based study. Diabetes Res Clin Pract. 2016;121:62–8.
Article
Google Scholar
Menting J, Tack CJ, van Bon AC, Jansen HJ, van den Bergh JP, Mol M, et al. Web-based cognitive behavioural therapy blended with face-to-face sessions for chronic fatigue in type 1 diabetes: a multicentre randomised controlled trial. Lancet Diabetes Endocrinol. 2017;5(6):448–56.
Article
Google Scholar
Menting J, Tack CJ, Donders R, Knoop H. Potential mechanisms involved in the effect of cognitive behavioral therapy on fatigue severity in type 1 diabetes. J Consult Clin Psychol. 2018;86(4):330–40.
Article
Google Scholar
Nap-van der Vlist MM, Dalmeijer GW, Grootenhuis MA, van der Ent CK, van den Heuvel-Eibrink MM, Wulffraat NM, et al. Fatigue in childhood chronic disease. Arch Dis Child. 2019;104(11):1090–95.
Haverman L, Limperg PF, Young NL, Grootenhuis MA, Klaassen RJ. Paediatric health-related quality of life: what is it and why should we measure it? Arch Dis Child. 2017;102(5):393–400.
Article
CAS
Google Scholar
Schultz AT, Smaldone A. Components of interventions that improve transitions to adult care for adolescents with type 1 diabetes. J Adolesc Health. 2017;60(2):133–46.
Article
Google Scholar
Sattoe JNT, Hilberink SR, van Staa A. How to define successful transition? An exploration of consensus indicators and outcomes in young adults with chronic conditions. Child Care Health Dev. 2017;43(5):768–73.
Article
CAS
Google Scholar
Fair C, Cuttance J, Sharma N, Maslow G, Wiener L, Betz C, et al. International and interdisciplinary identification of health care transition outcomes. JAMA Pediatr. 2016;170(3):205–11.
Article
Google Scholar
Garvey KC, Finkelstein JA, Laffel LM, Ochoa V, Wolfsdorf JI, Rhodes ET. Transition experiences and health care utilization among young adults with type 1 diabetes. Patient Prefer Adherence. 2013;7:761–9.
Article
Google Scholar
Cheung KL, Ten Klooster PM, Smit C, de Vries H, Pieterse ME. The impact of non-response bias due to sampling in public health studies: a comparison of voluntary versus mandatory recruitment in a Dutch national survey on adolescent health. BMC Public Health. 2017;17:276.
Article
Google Scholar
Jensen O, Bernklev T, Jelsness-Jorgensen LP. Fatigue in type 1 diabetes: a systematic review of observational studies. Diabetes Res Clin Pract. 2017;123:63–74.
Article
Google Scholar