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  1. Arthrogryposis multiplex congenita (AMC) is a group of congenital conditions characterized by joint contractures in two or more body areas. Management of AMC starts early in life and focuses on improving mobil...

    Authors: Sarah Cachecho, Jill Boruff, Trudy Wong, Francis Lacombe and Noemi Dahan-Oliel

    Citation: Health and Quality of Life Outcomes 2021 19:263

    Content type: Research

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  2. Clinical, surgical, and percutaneous strategies similarly prevent major cardiovascular events in patients with stable coronary artery disease (CAD). The possibility that these strategies have differential effe...

    Authors: Lucas Molinari Veloso da Silveira, Adriana Silveira Almeida, Felipe C. Fuchs, Aline Gonçalves Silva, Marcelo Balbinot Lucca, Samuel Scopel, Sandra C. Fuchs and Flávio D. Fuchs

    Citation: Health and Quality of Life Outcomes 2021 19:261

    Content type: Research

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  3. This study assesses the construct validity and sensitivity to change of the Short Warwick-Edinburgh Mental Well-being Scale (SWEMWBS) as an outcome measure in the treatment of common mental disorders (CMD) in ...

    Authors: Neha Shah, Mizaya Cader, Bill Andrews, Rose McCabe and Sarah L. Stewart-Brown

    Citation: Health and Quality of Life Outcomes 2021 19:260

    Content type: Research

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  4. Resilience instruments specific to family caregivers (FCs) in cancer are limited. This study was designed to validate the 10-item Resilience Scale Specific to Cancer (RS-SC-10) in FCs using multidimensional it...

    Authors: Mu Zi Liang, Ying Tang, Peng Chen, Jian Liang, Zhe Sun, Guang Yun Hu, Yuan Liang Yu and Zeng Jie Ye

    Citation: Health and Quality of Life Outcomes 2021 19:258

    Content type: Research

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  5. Patients with sickle cell disease (SCD) experience daily pain and acute episodes known as sickle cell pain crises (SCPCs). The Sickle Cell Pain Diary-Caregiver Report (SCPD-C) is an observer-reported diary for...

    Authors: Michelle K. White, April M. Foster, Miranda Bailey, Denise D’Alessio, Avery Rizio, Patricia Stebbins, Danielle St. Pierre and Cory Saucier

    Citation: Health and Quality of Life Outcomes 2021 19:257

    Content type: Research

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  6. The adult versions EQ-5D-3L and EQ-5D-5L have been extensive compared. This is not the case for the EQ-5D youth versions. The study aim was to compare the measurement properties and responsiveness of EQ-5D-Y-3...

    Authors: Titi Sahidah Fitriana, Fredrick Dermawan Purba, Rina Rahmatika, Riski Muhaimin, Nur Melani Sari, Gouke Bonsel, Elly Stolk and Jan J. V. Busschbach

    Citation: Health and Quality of Life Outcomes 2021 19:256

    Content type: Research

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  7. A short form of the General Health Questionnaire (GHQ-12) is a useful screening instrument for assessing mental health. Furthermore, Quality of life (QoL) is a critical treatment outcome in many clinical and h...

    Authors: Fatemeh Nouri, Awat Feizi, Hamidreza Roohafza, Masoumeh Sadeghi and Nizal Sarrafzadegan

    Citation: Health and Quality of Life Outcomes 2021 19:255

    Content type: Research

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  8. Elderly patients with type 2 diabetes mellitus are highly vulnerable due to severe complications. However, there is a contradiction in the relationship between social support and quality of life, which warrant...

    Authors: Xinye Qi, Jiao Xu, Guiying Chen, Huan Liu, Jingjing Liu, Jiahui Wang, Xin Zhang, Yanhua Hao, Qunhong Wu and Mingli Jiao

    Citation: Health and Quality of Life Outcomes 2021 19:254

    Content type: Research

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  9. This study aimed to evaluate the psychometric properties of the Chinese version of the Short Inflammatory Bowel Disease Questionnaire (C-SIBDQ), and its measurement invariance across sex in Chinese patients wi...

    Authors: Dajuan Sun, Lili Chi, Jiahui Liu, Junwei Liang, Song Guo and Shaojie Li

    Citation: Health and Quality of Life Outcomes 2021 19:253

    Content type: Research

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  10. Patients with heart failure (HF) experience continuous changes in symptom distress, care needs, social support, and meaning in life from acute decompensation to chronic phases. The longitudinal relationship be...

    Authors: Min-Hui Liu, Ai-Fu Chiou, Chao-Hung Wang, Wen-Pin Yu and Mei-Hui Lin

    Citation: Health and Quality of Life Outcomes 2021 19:252

    Content type: Research

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  11. Patients with hematological cancer who experience relapse or progressive disease often face yet another line of treatment and continued mortality risk that could increase their physical and emotional trauma an...

    Authors: Mia Sommer, Lene Kongsgaard Nielsen, Lars Børty Nielsen, Rasmus Froberg Brøndum, Marlene Maria Nielsen, Anne Stoffersen Rytter, Charles Vesteghem, Marianne Tang Severinsen, Tarec Christoffer El-Galaly, Martin Bøgsted, Mette Grønkjær and Lone Jørgensen

    Citation: Health and Quality of Life Outcomes 2021 19:251

    Content type: Research

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  12. The purpose of this study was to assess utility coefficients of health states following two minimally invasive surgical approaches for head and neck cancer, namely trans-oral robotic surgery and trans-oral las...

    Authors: Enea Parimbelli, Christian Simon, Federico Soldati, Lorry Duchoud, Gian Luca Armas, John R. de Almeida and Silvana Quaglini

    Citation: Health and Quality of Life Outcomes 2021 19:250

    Content type: Research

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  13. The importance of economic evaluations of mental healthcare interventions is increasingly recognized. Despite the multitude of available quality of life instruments, concerns have been raised regarding the con...

    Authors: F. C. W. van Krugten, K. Feskens, J. J. V. Busschbach, L. Hakkaart-van Roijen and W. B. F. Brouwer

    Citation: Health and Quality of Life Outcomes 2021 19:249

    Content type: Review

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  14. The Hopkins Symptom Checklist-10 (HSCL-10) is widely used to measure psychological distress in adolescents. To provide valid and reliable results and generate recommendations for practice and policies, instrum...

    Authors: Hanne Søberg Finbråten, Annette Løvheim Kleppang and Anne Mari Steigen

    Citation: Health and Quality of Life Outcomes 2021 19:248

    Content type: Research

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  15. The Itch Numeric Rating Scale (NRS), Skin Pain NRS, and Atopic Dermatitis Sleep Scale (ADSS) are self-administered patient-reported outcome (PRO) instruments developed to assess symptoms in patients with atopi...

    Authors: Jonathan I. Silverberg, Amy DeLozier, Luna Sun, Jacob P. Thyssen, Brian Kim, Gil Yosipovitch, Fabio P. Nunes, P. Cristian Gugiu, Helen A. Doll and Lawrence F. Eichenfield

    Citation: Health and Quality of Life Outcomes 2021 19:247

    Content type: Research

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  16. Health-related quality of life (HRQoL) is determined by multiple factors that include components such as spirituality and religiousness (S/R). Even though various systematic reviews have investigated the assoc...

    Authors: Cezimar Correia Borges, Patrícia Roberta dos Santos, Polissandro Mortoza Alves, Renata Custódio Maciel Borges, Giancarlo Lucchetti, Maria Alves Barbosa, Celmo Celeno Porto and Marcos Rassi Fernandes

    Citation: Health and Quality of Life Outcomes 2021 19:246

    Content type: Review

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  17. The aim of the study was to assess health-related quality of life (HRQOL) in outpatients receiving anti-cancer treatment.

    Authors: Hae-Jin Suh Oh, Ángeles Flórez Menéndez, Víctor Sacristán Santos, Ángeles Rodríguez Martínez, Francisca Fernández Ribeiro, Lucía Vilanova-Trillo, Manuel Constenla Figueiras and Manuel Pereiro Ferreiros

    Citation: Health and Quality of Life Outcomes 2021 19:245

    Content type: Research

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  18. Previous reports regarding health-related quality of life (HRQoL) of hypertensive individuals commonly concentrated on urban population. This study focused on rural population and aimed to explore the influenc...

    Authors: Shengxiang Sang, Ning Kang, Wei Liao, Xueyan Wu, Ze Hu, Xiaotian Liu, Chongjian Wang and Hongjian Zhang

    Citation: Health and Quality of Life Outcomes 2021 19:244

    Content type: Research

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  19. Since the number of persons diagnosed with multi-morbidity is increasing, there is a need for generic instruments to be able to assess, measure and compare ADL ability across diagnoses. Accordingly, the ADL-In...

    Authors: Eva Ejlersen Wæhrens, Anders Kottorp and Kristina Tomra Nielsen

    Citation: Health and Quality of Life Outcomes 2021 19:243

    Content type: Research

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  20. Ticagrelor has a Class I recommendation for use following percutaneous coronary intervention (PCI) in acute coronary syndrome (ACS). However, ticagrelor needs to be taken twice a day, as compared to clopidogre...

    Authors: Hyeyeon Moon, Yoon-Sung Jo, Soo-Jin Kim, Sua Jo and Kyungil Park

    Citation: Health and Quality of Life Outcomes 2021 19:242

    Content type: Research

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  21. Rheumatoid arthritis (RA) is a chronic autoimmune disorder, which has a significant impact on patients' health-related quality of life (HRQoL), and limits physical function as well as increases pain and fatigu...

    Authors: Samah W. Al-Jabi, Diaa I. Seleit, Adnan Badran, Amer Koni and Sa’ed H. Zyoud

    Citation: Health and Quality of Life Outcomes 2021 19:241

    Content type: Research

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  22. Women with severe preeclampsia often present with more health complaints compared to those with uncomplicated pregnancies. Estimating the quality of life of women affected with severe preeclampsia could provid...

    Authors: Birhanu Jikamo, Mulat Adefris, Telake Azale and Kassahun Alemu

    Citation: Health and Quality of Life Outcomes 2021 19:239

    Content type: Research

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  23. Most research studying social constraints has been performed among Caucasian or Asian American breast cancer (BC) patients, but few studies have evaluated social constraint levels and explored the effect of so...

    Authors: Chunying Cui, Lie Wang and Xiaoxi Wang

    Citation: Health and Quality of Life Outcomes 2021 19:238

    Content type: Research

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  24. The Oxford Hip Score is used to evaluate the outcome after total hip arthroplasty. The Oxford Hip Score was developed more than 20 years ago with only some degree of patient involvement. We question if the Oxf...

    Authors: Camilla Holmenlund, Søren Overgaard, Randi Bilberg and Claus Varnum

    Citation: Health and Quality of Life Outcomes 2021 19:237

    Content type: Research

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  25. Stroke is a leading cause of mortality and disability worldwide. Most stroke risk studies focused on more established biological and pathophysiological risk factors such as hypertension and smoking, psychosoci...

    Authors: Huiqing Yao, Juhua Zhang, Yanmei Wang, Qingqing Wang, Fei Zhao and Peng Zhang

    Citation: Health and Quality of Life Outcomes 2021 19:236

    Content type: Research

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  26. The European Organization for research and Treatment of Cancer (EORTC) Core Quality of Life Questionnaire (QLQ-C30) scales are scored on a 4-point response scale, ranging from not at all to very much. Previous st...

    Authors: Michael Koller, Karolina Müller, Sandra Nolte, Heike Schmidt, Christina Harvey, Ulrike Mölle, Andreas Boehm, Daniel Engeler, Jürg Metzger, Monika Sztankay, Bernhard Holzner, Mogens Groenvold, Dagmara Kuliś and Andrew Bottomley

    Citation: Health and Quality of Life Outcomes 2021 19:235

    Content type: Research

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  27. To determine the most frequently utilized functional status assessment instruments for patients with brain tumors, compare their contents, using the International Classification of Functioning, Disability and ...

    Authors: Lelde Ģiga, Anete Pētersone, Silva Čakstiņa and Guna Bērziņa

    Citation: Health and Quality of Life Outcomes 2021 19:234

    Content type: Research

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  28. This study assessed the responsiveness and convergent validity of two preference-based measures; the newly developed cancer-specific EORTC Quality of Life Utility Measure-Core 10 dimensions (QLU-C10D) relative...

    Authors: Norma B. Bulamu, Ravi Vissapragada, Gang Chen, Julie Ratcliffe, Louise A. Mudge, B. Mark Smithers, Elizabeth A. Isenring, Lorelle Smith, Glyn G. Jamieson and David I. Watson

    Citation: Health and Quality of Life Outcomes 2021 19:233

    Content type: Research

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  29. To test the psychometric properties of a traditional Chinese version of the Resilience Scale for Children (RS-10) and examine its factorial structure via a confirmatory factor analysis (CFA).

    Authors: Joyce Oi Kwan Chung, William Ho Cheung Li, Xia Wei, Ankie Tan Cheung, Laurie Long Kwan Ho and Godfrey Chi-Fung Chan

    Citation: Health and Quality of Life Outcomes 2021 19:232

    Content type: Research

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  30. Dizziness is a common complaint among older adults and may affect quality of life in a negative way. The aim of this study was to assess health-related quality of life (HRQL), sense of coherence (SOC), self-ra...

    Authors: Ellen Lindell, Lena Kollén, Mia Johansson, Therese Karlsson, Lina Rydén, Madeleine Mellqvist Fässberg, Hanna Falk Erhag, Ingmar Skoog and Caterina Finizia

    Citation: Health and Quality of Life Outcomes 2021 19:231

    Content type: Research

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  31. Paroxysmal nocturnal hemoglobinuria (PNH) is a rare, life-threatening terminal-complement-mediated disease resulting in intravascular hemolysis and thrombosis with significant morbidity and premature mortality...

    Authors: Carolyn E. Schwartz, Roland B. Stark, Katrina Borowiec and Karl-Johan Myren

    Citation: Health and Quality of Life Outcomes 2021 19:228

    Content type: Research

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  32. Quality of life outcomes have been used frequently in clinical trials of oral health interventions. This study assessed the effects of a randomized trial on oral health related quality of life comparing an ind...

    Authors: Susan Reisine, Jean J. Schensul, Apoorva Salvi, James Grady, Toan Ha and Jianghong Li

    Citation: Health and Quality of Life Outcomes 2021 19:227

    Content type: Research

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  33. To assess the psychometric properties of the Dutch-Flemish Patient-Reported Outcome Measurement Information System Scale v1.2 – Global Health (PROMIS-GH).

    Authors: Leonardo Pellicciari, Alessandro Chiarotto, Emanuele Giusti, Martine H. P. Crins, Leo D. Roorda and Caroline B. Terwee

    Citation: Health and Quality of Life Outcomes 2021 19:226

    Content type: Research

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  34. Cardiovascular diseases (CVDs) are among the most common causes of death worldwide, including in Iran. Considering the adverse effects of CVDs on physical and psychosocial health; this study aims to investigat...

    Authors: Sara Jalali-Farahani, Parisa Amiri, Hanieh Fakhredin, Kiana Torshizi, Leila Cheraghi, Davood Khalili and Fereidoun Azizi

    Citation: Health and Quality of Life Outcomes 2021 19:225

    Content type: Research

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  35. MSQOL-54 is a multidimensional, widely-used, health-related quality of life (HRQOL) instrument specific for multiple sclerosis (MS). Findings from the validation study suggested that the two MSQOL-54 composite...

    Authors: Andrea Giordano, Silvia Testa, Marta Bassi, Sabina Cilia, Antonio Bertolotto, Maria Esmeralda Quartuccio, Erika Pietrolongo, Monica Falautano, Monica Grobberio, Claudia Niccolai, Beatrice Allegri, Rosa Gemma Viterbo, Paolo Confalonieri, Ambra Mara Giovannetti, Eleonora Cocco, Maria Grazia Grasso…

    Citation: Health and Quality of Life Outcomes 2021 19:224

    Content type: Research

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  36. Health-related quality of life (HRQoL) is greatly affected by prostate cancer (PCa) and associated treatments. This study aimed to measure the impact of radiotherapy on HRQoL and to further validate the Spanis...

    Authors: Almudena Zapatero, Xavier Maldonado Pijoan, Antonio Gómez-Caamaño, José Pardo Masferrer, Víctor Macías Hernández, Asunción Hervás Morón, Julia Luisa Muñoz García, Amalia Palacios Eito, Paloma Anguita-Alonso, Cristina González-Junco and José López Torrecilla

    Citation: Health and Quality of Life Outcomes 2021 19:223

    Content type: Research

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  37. Quantitative health preference research has shown that different “perspectives”, defined here as who is imagined to be experiencing particular health states, impact stated preferences. This qualitative project...

    Authors: Philip A. Powell, Donna Rowen, Oliver Rivero-Arias, Aki Tsuchiya and John E. Brazier

    Citation: Health and Quality of Life Outcomes 2021 19:222

    Content type: Research

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  38. Self-reported health-related quality of life is an important population health outcome, often assessed using a single question about self-rated health (SRH). The Patient Reported Outcomes Measurement Informati...

    Authors: Janel Hanmer

    Citation: Health and Quality of Life Outcomes 2021 19:221

    Content type: Short report

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  39. More than 52,000 casualties have been documented in post-9/11 conflicts. Service members with extremity injuries (EIs) or traumatic brain injury (TBI) may be at particular risk for long-term deficits in mental...

    Authors: Cameron T. McCabe, Jessica R. Watrous, Susan L. Eskridge and Michael R. Galarneau

    Citation: Health and Quality of Life Outcomes 2021 19:220

    Content type: Research

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  40. No specific scale to measure Quality of Life in Alzheimer's Disease in Nursing Homes (QoL-AD NH) exists in French. We aimed to translate and culturally adapt the QoL-AD NH participant scale into a French versi...

    Authors: Christophe Cousi, Valérie Igier and Bruno Quintard

    Citation: Health and Quality of Life Outcomes 2021 19:219

    Content type: Research

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  41. Studies on the long-term outcomes of receiving adequate treatment for depression and anxiety disorders are scarce. The aims of this study were to assess the association between adequacy of care and remission o...

    Authors: Catherine Lamoureux-Lamarche, Djamal Berbiche and Helen-Maria Vasiliadis

    Citation: Health and Quality of Life Outcomes 2021 19:218

    Content type: Research

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    The Correction to this article has been published in Health and Quality of Life Outcomes 2021 19:230

  42. Health-related quality of life (HRQOL) is an important concept to consider both individuals' ability to manage their daily lives and health status across the lifespan. Despite this variable's importance, there...

    Authors: Eunji Kwon, Jeongok Park, Sue Kim and Kyung Hee Lee

    Citation: Health and Quality of Life Outcomes 2021 19:217

    Content type: Research

    Published on:

  43. Previous studies have shown that health-related quality of life (HRQoL) is associated with the prognosis of cancer patients. The aim of this study was to investigate risk factors for poor HRQoL in patients wit...

    Authors: Catarina Tiselius, Andreas Rosenblad, Eva Strand and Kenneth Smedh

    Citation: Health and Quality of Life Outcomes 2021 19:216

    Content type: Research

    Published on:

  44. The Needs Assessment Tool: Progressive Disease-Heart Failure (NAT: PD-HF) is a tool created to assess the needs of people living with heart failure and their informal caregivers to assist delivering care in a ...

    Authors: Valentina Gonzalez-Jaramillo, Jelena Guyer, Nora Luethi, Piotr Sobanski, Rut Zbinden, Eveline Rodriguez, Lukas Hunziker, Steffen Eychmüller and Maud Maessen

    Citation: Health and Quality of Life Outcomes 2021 19:214

    Content type: Research

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  45. Although physical activity (PA) and sedentary time in cancer survivors (CSs) were associated with health-related quality of life (HRQOL), it was not clear whether their associations were similar among CSs with...

    Authors: Rui Yan, Beibei Che, Binghui Lv, Peng Wu, Xinyuan Lu, Yaxuan Zhang, Jiwei Wang and Jinming Yu

    Citation: Health and Quality of Life Outcomes 2021 19:213

    Content type: Research

    Published on:

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