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  1. Content type: Research

    Clinical registries, which capture information about the health and healthcare use of patients with a health condition or treatment, often contain patient-reported outcomes (PROs) that provide insights about t...

    Authors: Olawale F. Ayilara, Lisa Zhang, Tolulope T. Sajobi, Richard Sawatzky, Eric Bohm and Lisa M. Lix

    Citation: Health and Quality of Life Outcomes 2019 17:106

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  2. Content type: Research

    To validate and evaluate the reliability of the Dutch version of the Chronic Ear Survey (CES) in patients suffering from Chronic Suppurative Otitis Media (CSOM) and to evaluate clinical outcomes of surgery usi...

    Authors: S. Geerse, R. J. de Haan, M. J. F. de Wolf, F. A. Ebbens and E. van Spronsen

    Citation: Health and Quality of Life Outcomes 2019 17:105

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  3. Content type: Research

    Pulmonary arterial hypertension (PAH) remains a life-threatening condition, despite modern therapies. We prospectively investigated the therapeutic health-related quality of life (HRQOL) effects of goal-orient...

    Authors: Akihiro Hirashiki, Shiro Adachi, Naoki Okumura, Yoshihisa Nakano, Shigetake Shimokata, Atsuya Shimizu, Hidenori Arai, Kenji Toba, Toyoaki Murohara and Takahisa Kondo

    Citation: Health and Quality of Life Outcomes 2019 17:103

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  4. Content type: Research

    The incidence and mortality rates of cancer have been increasing in developing countries, particularly in Asia. Therefore to provide optimal comprehensive care to the cancer patients, the care plan must focus ...

    Authors: Xin-Shuang Zhao, Hong-Yun Wang, Luo-Ling Zhang, Yan-Hua Liu, Hai-Yan Chen and Ying Wang

    Citation: Health and Quality of Life Outcomes 2019 17:102

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  5. Content type: Research

    Data are lacking on impact of Middle East Respiratory Syndrome (MERS) on health-related quality of life (HRQoL) among survivors.

    Authors: Sarah Batawi, Nehal Tarazan, Rajaa Al-Raddadi, Eman Al Qasim, Anees Sindi, Sameera AL Johni, Fahad M. Al-Hameed, Yaseen M. Arabi, Timothy M. Uyeki and Basem M. Alraddadi

    Citation: Health and Quality of Life Outcomes 2019 17:101

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  6. Content type: Research

    The increasing prevalence of obesity across all age groups has become a major health concern in China. Previous studies have found strong links between population density, sedentary lifestyle, and the risk of ...

    Authors: Ruoyu Wang, Zhixin Feng, Desheng Xue, Ye Liu and Rong Wu

    Citation: Health and Quality of Life Outcomes 2019 17:100

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  7. Content type: Research

    The LFA REAL™ is a measurement system for evaluating lupus disease activity from both clinician and patient perspectives. Patients’ viewpoints are captured using a patient-reported outcome (PRO) questionnaire....

    Authors: Anca D. Askanase, R. Paola Daly, Miya Okado, Kayla Neville, Avery Pong, Leslie M. Hanrahan and Joan T. Merrill

    Citation: Health and Quality of Life Outcomes 2019 17:99

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  8. Content type: Research

    Most definitions of visual impairment focus on the status of the better-seeing eye only, but this approach might underestimate the influence of the worse-seeing eye on the vision-related quality of life (VRQoL).

    Authors: Stefan Nickels, Alexander K. Schuster, Heike Elflein, Christian Wolfram, Andreas Schulz, Thomas Münzel, Manfred E. Beutel, Irene Schmidtmann, Robert P. Finger and Norbert Pfeiffer

    Citation: Health and Quality of Life Outcomes 2019 17:98

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  9. Content type: Research

    There is no research on mapping algorithms between EQ-5D and COPD assessment test (CAT) in Korea. The purpose of this study was to develop mapping algorithms that predict EQ-5D-3 L utility from the CAT in pati...

    Authors: Jaeok Lim, Sang-Eun Choi, Eunmi Bae, Daewon Kang, Eun-A Lim and Gyeong-Seon Shin

    Citation: Health and Quality of Life Outcomes 2019 17:97

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  10. Content type: Research

    This study aimed to investigate a gender-specific association between oral health-related quality of life (OHRQoL) and depressive symptoms in college students, as there are limited relevant studies conducted a...

    Authors: Zheng Zhang, Ying Tian, Fei Zhong, Cai-fu Li, Shu-mei Dong, Yan Huang, Xing-er Liu and Cong Huang

    Citation: Health and Quality of Life Outcomes 2019 17:96

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  11. Content type: Short report

    Dyspnea is frequent in amyotrophic lateral sclerosis (ALS) and one of the most bothersome symptoms. The recently developed Dyspnea-ALS-Scale (DALS-15) is a disease-specific patient-reported outcome to detect a...

    Authors: Susanne Vogt, Stefanie Schreiber, Hans-Jochen Heinze, Reinhard Dengler, Susanne Petri and Stefan Vielhaber

    Citation: Health and Quality of Life Outcomes 2019 17:95

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  12. Content type: Research

    Adverse events (AEs) are common during treatment of drug-resistant tuberculosis (DR-TB). Little is known about the health-related quality of life (HRQoL) of patients receiving treatment for DR-TB or the effect...

    Authors: Tembeka Sineke, Denise Evans, Kathryn Schnippel, Heleen van Aswegen, Rebecca Berhanu, Nozipho Musakwa, Elisabet Lönnmark, Lawrence Long and Sydney Rosen

    Citation: Health and Quality of Life Outcomes 2019 17:94

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  13. Content type: Research

    Workplace violence (WPV) is a global public health problem and has caused a serious threat to the physical and mental health of healthcare workers. Moreover, WPV also has an adverse effect on the workplace beh...

    Authors: Xiaojian Duan, Xin Ni, Lei Shi, Leijing Zhang, Yuan Ye, Huitong Mu, Zhe Li, Xin Liu, Lihua Fan and Yongchen Wang

    Citation: Health and Quality of Life Outcomes 2019 17:93

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  14. Content type: Research

    The purpose of this study is to evaluate the content validity of the National Comprehensive Cancer Network – Functional Assessment of Cancer Therapy – Breast Cancer Symptom Index (NFBSI-16) and the Patient-Rep...

    Authors: Meaghan Krohe, Derek H. Tang, Brittany Klooster, Dennis Revicki, Nina Galipeau and David Cella

    Citation: Health and Quality of Life Outcomes 2019 17:92

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  15. Content type: Short report

    Endometrial cancer survivors are at an increased risk of poor quality of life outcomes. Physical activity is positively associated with general quality of life in this population, however, little is known abou...

    Authors: Michael C. Robertson, Elizabeth J. Lyons, Jaejoon Song, Matthew Cox-Martin, Yisheng Li, Charles E. Green, Bernardine M. Pinto, Cindy L. Carmack, Carol Harrison, George Baum and Karen M. Basen-Engquist

    Citation: Health and Quality of Life Outcomes 2019 17:91

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  16. Content type: Research

    Uterine fibroids (UFs) are the most common benign tumors in women. They are likely to cause numerous clinical symptoms, such as pain, menorrhagia, and other obstetric complications in pregnant women. This stud...

    Authors: Wai-Kit Ming, Huailiang Wu, Yanxin Wu, Hanqing Chen, Tian Meng, Yiwei Shen, Ziyu Wang, Xinyu Huang, Weiwei Sun, Tik Sang Chow, Yuan Wang, Wenjing Ding, Haitian Chen, Zhuyu Li and Zilian Wang

    Citation: Health and Quality of Life Outcomes 2019 17:89

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  17. Content type: Research

    Quality of life (QoL) is a multifactorial concept that assesses physical and mental health. We prospectively studied the quality of life of patients undergoing coronary artery bypass graft (CABG) surgery using...

    Authors: Andrea Perrotti, Fiona Ecarnot, Francesco Monaco, Enrica Dorigo, Palmiero Monteleone, Guillaume Besch and Sidney Chocron

    Citation: Health and Quality of Life Outcomes 2019 17:88

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  18. Content type: Research

    Value assessment of vaccination programs against serogroup B invasive meningococcal disease (IMD) is on the agenda of public health authorities. Current evidence on the burden due to IMD is unfit for pinning d...

    Authors: Ole Marten, Florian Koerber, David Bloom, Monika Bullinger, Corinne Buysse, Hannah Christensen, Philippe De Wals, Christian Dohna-Schwake, Philipp Henneke, Markus Kirchner, Markus Knuf, Burkhard Lawrenz, Andrea L. Monteiro, Joseph Patrick Sevilla, Nicolas Van de Velde, Robert Welte…

    Citation: Health and Quality of Life Outcomes 2019 17:87

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  19. Content type: Research

    Patients with age -related hearing loss (ARHL) and their natural caregivers have to confront a disability that produces progressive lifestyle changes. There is an interest in studying the ability of patients a...

    Authors: Sébastien Lazzarotto, Florence Martin, Anne Saint-Laurent, Zeinab Hamidou, Valérie Aghababian, Pascal Auquier and Karine Baumstarck

    Citation: Health and Quality of Life Outcomes 2019 17:86

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  20. Content type: Research

    Ethnic inequalities in oral health among British adults remain largely unexplored. This study explored the role of socioeconomic position (SEP) in explaining ethnic inequalities in oral health; and the consist...

    Authors: Elsa K. Delgado-Angulo, Munisha Mangal and Eduardo Bernabé

    Citation: Health and Quality of Life Outcomes 2019 17:85

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  21. Content type: Short report

    Quality of life (QoL) is a patient-reported outcome of increasing importance in the substance use disorder (SUD) treatment field, and impaired QoL may be an important impetus for treatment uptake. Instruments ...

    Authors: Ashley Elizabeth Muller, Svetlana Skurtveit and Thomas Clausen

    Citation: Health and Quality of Life Outcomes 2019 17:84

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  22. Content type: Research

    Mapping of health-related quality-of-life measures to health utility values can facilitate cost-utility evaluation. Regression-based methods tend to lead to shrinkage of variance. This study aims to map the Me...

    Authors: Yuan Shi, Jennifer Thompson, A. Sarah Walker, Nicholas I. Paton and Yin Bun Cheung

    Citation: Health and Quality of Life Outcomes 2019 17:83

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  23. Content type: Research

    Social relationships (SR) is an important domain of health-related quality of life. We developed and calibrated a novel item bank to measure SR in Singapore, a multi-ethnic city in Southeast Asia.

    Authors: Yu Heng Kwan, Elenore Judy Uy, Dianne Carrol Bautista, Xiaohui Xin, Yunshan Xiao, Geok Ling Lee, Mythily Subramaniam, Janhavi Ajit Vaingankar, Mei Fen Chan, Nisha Kumar, Yin Bun Cheung, Terrance Siang Jin Chua and Julian Thumboo

    Citation: Health and Quality of Life Outcomes 2019 17:82

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  24. Content type: Research

    To estimate the effect of strabismus (squinting) on mental health and health-related quality of life aspects in children and adolescents.

    Authors: Alexander K. Schuster, Heike M. Elflein, Roman Pokora, Martin Schlaud, Franz Baumgarten and Michael S. Urschitz

    Citation: Health and Quality of Life Outcomes 2019 17:81

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  25. Content type: Research

    This study aims to describe the short-term reactogenicity of the AS03-adjuvanted H5N1 vaccine expressed through adverse events (AEs) and quality-adjusted life-day (QALD) scores. The AEs are likely to be short-...

    Authors: B. Standaert, T. Dort, J. Linden, A. Madan, S. Bart, L. Chu, M. S. Hayney, M. Kosinski, R. Kroll, J. Malak, G. Meier, N. Segall and A. Schuind

    Citation: Health and Quality of Life Outcomes 2019 17:80

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  26. Content type: Research

    Oral health-related quality of life (OHRQoL) has important implications for the clinical practice of dentistry and dental research and should contribute to professional judgment about restorative treatments an...

    Authors: Raquel Conceição Ferreira, Ichiro Kawachi, João Gabriel Silva Souza, Fernanda Lamounier Campos, Loliza Luiz Figueiredo Houri Chalub and José Leopoldo Ferreira Antunes

    Citation: Health and Quality of Life Outcomes 2019 17:79

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  27. Content type: Review

    Older patients with end-stage renal disease (ESRD) have experienced diminished quality of life and debilitating symptoms. Conservative management may be a potential treatment option. Currently, limited studies...

    Authors: Qingli Ren, Qifang Shi, Tong Ma, Jing Wang, Qian Li and Xiaomei Li

    Citation: Health and Quality of Life Outcomes 2019 17:78

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  28. Content type: Research

    The purpose of the current study was to determine the final content validation, psychometric characteristics, clinically meaningful improvement, and responder thresholds of the Clostridium difficile infection (CD...

    Authors: George H. Talbot, Leah Kleinman, Evan Davies, Elke Hunsche, Dennis Revicki, Laurie Roberts, Daniel Rosenberg and Carl Erik Nord

    Citation: Health and Quality of Life Outcomes 2019 17:77

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  29. Content type: Research

    Duchenne Muscular Dystrophy (DMD) is the most common genetic neuromuscular disorder in children. This chronic illness may impact the physical, family, social and school life of affected children and their fami...

    Authors: Apirada Thongsing, Surachai Likasitwattanakul and Oranee Sanmaneechai

    Citation: Health and Quality of Life Outcomes 2019 17:76

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  30. Content type: Research

    Modifying lifestyle risk factors for dementia is a public health priority. Motivation for change is integral to the modification of health-related risk behaviours. This study investigates the psychometric prop...

    Authors: Deborah Oliveira, Aimee Aubeeluck, Ed Stupple, Sarang Kim and Martin Orrell

    Citation: Health and Quality of Life Outcomes 2019 17:75

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  31. Content type: Research

    The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) has been shown to be a reliable and valid questionnaire measuring health-related quality of life (HRQoL) in the US sickle cell dis...

    Authors: Owen Cooper, Hayley McBain, Sekayi Tangayi, Paul Telfer, Dimitris Tsitsikas, Anne Yardumian and Kathleen Mulligan

    Citation: Health and Quality of Life Outcomes 2019 17:74

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  32. Content type: Research

    No previous studies have characterized a patient’s experience of rheumatoid arthritis (RA) management in Greece and unmet needs may exist despite a broad range of available treatments. Therefore, we assessed q...

    Authors: Dimitrios T. Boumpas, Prodromos Sidiropoulos, Loukas Settas, Piotr Szczypa, Vassilis Tsekouras and Ana C. Hernandez Daly

    Citation: Health and Quality of Life Outcomes 2019 17:73

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  33. Content type: Research

    Participating in regular physical activity contributes to significant improvements of quality of life (QOL) in adults. Understanding psychosocial factors that influence physical activity and QOL in working adu...

    Authors: Yi Xiao, Hongying Wang, Tao Zhang and Xiaoling Ren

    Citation: Health and Quality of Life Outcomes 2019 17:72

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  34. Content type: Research

    Fatigue is the most common symptom in Systemic Lupus Erythematosus (SLE) patients. Many fatigue instruments have been used in SLE, with Fatigue Severity Scale (FSS) mostly adopted. However, fatigue instruments...

    Authors: Chenchen Feng, Qian He, Yan Wu, Xiaokun Hu, Juan Wu, Xiaoli He and Shuzhen Zhao

    Citation: Health and Quality of Life Outcomes 2019 17:71

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  35. Content type: Research

    Retrospective assessment of pre-injury health-related quality of life (HRQL) is frequently used to measure change from pre- to post-injury HRQL. However, retrospective measurement may be confounded by recall b...

    Authors: Juanita Haagsma, Gouke Bonsel, Mariska de Jongh and Suzanne Polinder

    Citation: Health and Quality of Life Outcomes 2019 17:70

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  36. Content type: Research

    Reducing health inequalities on the basis of social factors has been a key driver in the development of Public Health policies. Health-related quality of life is a global indicator useful to assess health ineq...

    Authors: Arantzazu Arrospide, Mónica Machón, Juan M. Ramos-Goñi, Oliver Ibarrondo and Javier Mar

    Citation: Health and Quality of Life Outcomes 2019 17:69

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  37. Content type: Research

    The EQ-5D-5 L and the SF-12 are the most commonly used generic measures of health-related quality of life among people with arthritis. However, there is little evidence on the extent to which the individual di...

    Authors: Andrews K. Tawiah, Fatima Al Sayah, Arto Ohinmaa and Jeffrey A. Johnson

    Citation: Health and Quality of Life Outcomes 2019 17:68

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  38. Content type: Research

    The WHOQOL-BREF is a widely used questionnaire for measuring quality of life. It is important to establish the measurement equivalence of various language versions of WHOQOL-BREF so that scores from different ...

    Authors: Yin Bun Cheung, Khung Keong Yeo, Kok Joon Chong, Eric Yin Hao Khoo and Hwee Lin Wee

    Citation: Health and Quality of Life Outcomes 2019 17:67

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  39. Content type: Research

    School-based interventions offer the opportunity to increase physical activity, health-related quality of life (HRQOL) and nutritional behaviours, yet methodological limitations hinder current research, partic...

    Authors: Gavin Breslin, Stephen Shannon, Ruth Rafferty, Ben Fitzpatrick, Sarahjane Belton, Wesley O’Brien, Fiona C. Chambers, Tandy Haughey, Donncha Hanna, Richard Gormley, Darryl McCullagh and Deirdre Brennan

    Citation: Health and Quality of Life Outcomes 2019 17:66

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  40. Content type: Research

    In children physical activity has been shown to be associated with health-related quality of life (HRQoL). This study further explores this association for specific characteristics of sports participation, nam...

    Authors: Janet Moeijes, Jooske T. van Busschbach, Thomas H. Wieringa, Jordy Kone, Ruud J. Bosscher and Jos W. R. Twisk

    Citation: Health and Quality of Life Outcomes 2019 17:64

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  41. Content type: Research

    Gout is a common, monosodium urate crystal-driven inflammatory arthritis. Besides its clinical manifestations, patients often also suffer from pain, physical impairment, emotional distress and work productivit...

    Authors: Carly A. Janssen, Martijn A. H. Oude Voshaar, Peter M. ten Klooster, Tim L. Th. A. Jansen, Harald E. Vonkeman and Mart A. F. J. van de Laar

    Citation: Health and Quality of Life Outcomes 2019 17:63

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  42. Content type: Research

    King’s Sarcoidosis Questionnaire (KSQ) is a novel, validated, health-related quality of life questionnaire on sarcoidosis with 5 scales and 29 items. For future multinational observational and interventional s...

    Authors: Erik Farin, Katja Heyduck, Björn Christian Frye, Surinder S. Birring, Joachim Müller-Quernheim and Jonas Christian Schupp

    Citation: Health and Quality of Life Outcomes 2019 17:62

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  43. Content type: Research

    The goal of the research reported here was to understand the patient experience of living with myelofibrosis (MF) and establish content validity of the Modified Myeloproliferative Neoplasm Symptom Assessment D...

    Authors: Ruben A. Mesa, Yun Su, Adrien Woolfson, Josef T. Prchal, Kathleen Turnbull, Elias Jabbour, Robyn Scherber, Alan L. Shields, Meaghan Krohe, Funke Ojo, Farrah Pompilus, Joseph C. Cappelleri and Claire Harrison

    Citation: Health and Quality of Life Outcomes 2019 17:61

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  44. Content type: Research

    To provide a model for Public involvement (PI) in instrument development and other research based on lessons learnt in the co-production of a recently developed mental health patient reported outcome measure c...

    Authors: Andrew Grundy, Anju Devianee Keetharuth, Rosemary Barber, Jill Carlton, Janice Connell, Elizabeth Taylor Buck, Michael Barkham, Thomas Ricketts, Dan Robotham, Diana Rose, John Kay, Rob Hanlon and John Brazier

    Citation: Health and Quality of Life Outcomes 2019 17:60

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  45. Content type: Research

    The aim of this study was to develop and perform cross-cultural validation of a Japanese version of the Adult Social Care Outcomes Toolkit (ASCOT) four-level Self-Completion questionnaire (SCT4) instrument to ...

    Authors: Hiromi Nakamura-Thomas, Mie Morikawa, Yoko Moriyama, Takeru Shiroiwa, Makoto Kyougoku, Kamilla Razik and Juliette Malley

    Citation: Health and Quality of Life Outcomes 2019 17:59

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  46. Content type: Research

    Evidence of quality of life implications of asthma attacks are limited, particularly when measured on a utility scale, which enables calculating Quality-Adjusted Life-Years (QALYs) and comparisons with other h...

    Authors: Christina-Jane Crossman-Barnes, Tracey Sach, Andrew Wilson and Garry Barton

    Citation: Health and Quality of Life Outcomes 2019 17:58

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