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  1. The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) has been shown to be a reliable and valid questionnaire measuring health-related quality of life (HRQoL) in the US sickle cell dis...

    Authors: Owen Cooper, Hayley McBain, Sekayi Tangayi, Paul Telfer, Dimitris Tsitsikas, Anne Yardumian and Kathleen Mulligan

    Citation: Health and Quality of Life Outcomes 2019 17:74

    Content type: Research

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  2. No previous studies have characterized a patient’s experience of rheumatoid arthritis (RA) management in Greece and unmet needs may exist despite a broad range of available treatments. Therefore, we assessed q...

    Authors: Dimitrios T. Boumpas, Prodromos Sidiropoulos, Loukas Settas, Piotr Szczypa, Vassilis Tsekouras and Ana C. Hernandez Daly

    Citation: Health and Quality of Life Outcomes 2019 17:73

    Content type: Research

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  3. Participating in regular physical activity contributes to significant improvements of quality of life (QOL) in adults. Understanding psychosocial factors that influence physical activity and QOL in working adu...

    Authors: Yi Xiao, Hongying Wang, Tao Zhang and Xiaoling Ren

    Citation: Health and Quality of Life Outcomes 2019 17:72

    Content type: Research

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  4. Fatigue is the most common symptom in Systemic Lupus Erythematosus (SLE) patients. Many fatigue instruments have been used in SLE, with Fatigue Severity Scale (FSS) mostly adopted. However, fatigue instruments...

    Authors: Chenchen Feng, Qian He, Yan Wu, Xiaokun Hu, Juan Wu, Xiaoli He and Shuzhen Zhao

    Citation: Health and Quality of Life Outcomes 2019 17:71

    Content type: Research

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  5. Retrospective assessment of pre-injury health-related quality of life (HRQL) is frequently used to measure change from pre- to post-injury HRQL. However, retrospective measurement may be confounded by recall b...

    Authors: Juanita Haagsma, Gouke Bonsel, Mariska de Jongh and Suzanne Polinder

    Citation: Health and Quality of Life Outcomes 2019 17:70

    Content type: Research

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  6. Reducing health inequalities on the basis of social factors has been a key driver in the development of Public Health policies. Health-related quality of life is a global indicator useful to assess health ineq...

    Authors: Arantzazu Arrospide, Mónica Machón, Juan M. Ramos-Goñi, Oliver Ibarrondo and Javier Mar

    Citation: Health and Quality of Life Outcomes 2019 17:69

    Content type: Research

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  7. The EQ-5D-5 L and the SF-12 are the most commonly used generic measures of health-related quality of life among people with arthritis. However, there is little evidence on the extent to which the individual di...

    Authors: Andrews K. Tawiah, Fatima Al Sayah, Arto Ohinmaa and Jeffrey A. Johnson

    Citation: Health and Quality of Life Outcomes 2019 17:68

    Content type: Research

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  8. The WHOQOL-BREF is a widely used questionnaire for measuring quality of life. It is important to establish the measurement equivalence of various language versions of WHOQOL-BREF so that scores from different ...

    Authors: Yin Bun Cheung, Khung Keong Yeo, Kok Joon Chong, Eric Yin Hao Khoo and Hwee Lin Wee

    Citation: Health and Quality of Life Outcomes 2019 17:67

    Content type: Research

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  9. School-based interventions offer the opportunity to increase physical activity, health-related quality of life (HRQOL) and nutritional behaviours, yet methodological limitations hinder current research, partic...

    Authors: Gavin Breslin, Stephen Shannon, Ruth Rafferty, Ben Fitzpatrick, Sarahjane Belton, Wesley O’Brien, Fiona C. Chambers, Tandy Haughey, Donncha Hanna, Richard Gormley, Darryl McCullagh and Deirdre Brennan

    Citation: Health and Quality of Life Outcomes 2019 17:66

    Content type: Research

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  11. In children physical activity has been shown to be associated with health-related quality of life (HRQoL). This study further explores this association for specific characteristics of sports participation, nam...

    Authors: Janet Moeijes, Jooske T. van Busschbach, Thomas H. Wieringa, Jordy Kone, Ruud J. Bosscher and Jos W. R. Twisk

    Citation: Health and Quality of Life Outcomes 2019 17:64

    Content type: Research

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  12. Gout is a common, monosodium urate crystal-driven inflammatory arthritis. Besides its clinical manifestations, patients often also suffer from pain, physical impairment, emotional distress and work productivit...

    Authors: Carly A. Janssen, Martijn A. H. Oude Voshaar, Peter M. ten Klooster, Tim L. Th. A. Jansen, Harald E. Vonkeman and Mart A. F. J. van de Laar

    Citation: Health and Quality of Life Outcomes 2019 17:63

    Content type: Research

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  13. King’s Sarcoidosis Questionnaire (KSQ) is a novel, validated, health-related quality of life questionnaire on sarcoidosis with 5 scales and 29 items. For future multinational observational and interventional s...

    Authors: Erik Farin, Katja Heyduck, Björn Christian Frye, Surinder S. Birring, Joachim Müller-Quernheim and Jonas Christian Schupp

    Citation: Health and Quality of Life Outcomes 2019 17:62

    Content type: Research

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  14. The goal of the research reported here was to understand the patient experience of living with myelofibrosis (MF) and establish content validity of the Modified Myeloproliferative Neoplasm Symptom Assessment D...

    Authors: Ruben A. Mesa, Yun Su, Adrien Woolfson, Josef T. Prchal, Kathleen Turnbull, Elias Jabbour, Robyn Scherber, Alan L. Shields, Meaghan Krohe, Funke Ojo, Farrah Pompilus, Joseph C. Cappelleri and Claire Harrison

    Citation: Health and Quality of Life Outcomes 2019 17:61

    Content type: Research

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  15. To provide a model for Public involvement (PI) in instrument development and other research based on lessons learnt in the co-production of a recently developed mental health patient reported outcome measure c...

    Authors: Andrew Grundy, Anju Devianee Keetharuth, Rosemary Barber, Jill Carlton, Janice Connell, Elizabeth Taylor Buck, Michael Barkham, Thomas Ricketts, Dan Robotham, Diana Rose, John Kay, Rob Hanlon and John Brazier

    Citation: Health and Quality of Life Outcomes 2019 17:60

    Content type: Research

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  16. The aim of this study was to develop and perform cross-cultural validation of a Japanese version of the Adult Social Care Outcomes Toolkit (ASCOT) four-level Self-Completion questionnaire (SCT4) instrument to ...

    Authors: Hiromi Nakamura-Thomas, Mie Morikawa, Yoko Moriyama, Takeru Shiroiwa, Makoto Kyougoku, Kamilla Razik and Juliette Malley

    Citation: Health and Quality of Life Outcomes 2019 17:59

    Content type: Research

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  17. Evidence of quality of life implications of asthma attacks are limited, particularly when measured on a utility scale, which enables calculating Quality-Adjusted Life-Years (QALYs) and comparisons with other h...

    Authors: Christina-Jane Crossman-Barnes, Tracey Sach, Andrew Wilson and Garry Barton

    Citation: Health and Quality of Life Outcomes 2019 17:58

    Content type: Research

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  19. A comprehensive and accurate assessment of pain is critical for successful pain management. However, there is a lack of reliable and valid assessment tools for exploring multidimensional aspects of the chronic...

    Authors: Bernadette Brady, Irena Veljanova, Toni Andary, Troy Southwell and Lucinda Chipchase

    Citation: Health and Quality of Life Outcomes 2019 17:56

    Content type: Research

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  20. The mental well-being of patients with chronic heart failure is likely to influence their health-related quality of life and decrease the utilization of public health resources. This study assessed the mental wel...

    Authors: Aishu Dong, Xiuxia Zhang, Haitao Zhou, Siyi Chen, Wei Zhao, Minmin Wu, Junyi Guo and Wenjian Guo

    Citation: Health and Quality of Life Outcomes 2019 17:55

    Content type: Research

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  21. The existence of psychological distress (PD) during pregnancy is well established. Nevertheless, few studies have analyzed the PD and resilience of mothers and fathers during high-risk pregnancy. This study an...

    Authors: Mercedes Bellido-González, Humbelina Robles-Ortega, María José Castelar-Ríos, Miguel Ángel Díaz-López, José Luís Gallo-Vallejo, María Fernanda Moreno-Galdó and Macarena de los Santos-Roig

    Citation: Health and Quality of Life Outcomes 2019 17:54

    Content type: Research

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  24. Patient-reported outcome measures (PROMs) are important tools in both clinical practice and research. However, no upper extremity PROM to assess physical disability is available in Nepali. The most commonly us...

    Authors: Sudarshan KC, Saurab Sharma, Karen Ginn, Tawfiq Almadi, Hari Subedi and Darren Reed

    Citation: Health and Quality of Life Outcomes 2019 17:51

    Content type: Research

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  25. The aim of this study was to compare QOL among people in India using lower-limb prostheses or orthoses with people without disability. A further aim was to compare subgroups and investigate whether QOL was ass...

    Authors: Lina Magnusson, Ritu Ghosh, Katrine Randbøll Jensen, Katharina Göbel, Jenny Wågberg, Sofia Wallén, Alma Svensson, Rebecka Stavenheim and Gerd Ahlström

    Citation: Health and Quality of Life Outcomes 2019 17:50

    Content type: Research

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  26. The Quality of Life of Short Stature Youth (QoLISSY) questionnaire is a patient- and parent-reported outcome measure assessing health-related quality of life (HRQOL) in short stature youth. This study evaluate...

    Authors: Janika Bloemeke, Neuza Silva, Monika Bullinger, Stefanie Witt, Helmuth-Günther Dörr and Julia Quitmann

    Citation: Health and Quality of Life Outcomes 2019 17:49

    Content type: Research

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  27. The aim of this paper is to find out generic preference-based Short-Form 6 Dimensions (SF-6D) utility scores of smokers and ex-smokers with varying cigarette exposure, with and without respiratory symptoms.

    Authors: Sau-nga Fu, Man-Chi Dao, Carlos King-Ho Wong and Wai-cho Yu

    Citation: Health and Quality of Life Outcomes 2019 17:48

    Content type: Research

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  28. Cold climates traditionally have conferred long sleep duration in the residents in northeast China; however, modern lifestyle reduces sleep duration. In this study, we investigated social-biological factors in...

    Authors: Yaxuan Ren, Yawen Liu, Tingyu Meng, Wenshu Liu, Yichun Qiao, Yulu Gu, Yong Li, Yunkai Liu, Yaqin Yu and Yi Cheng

    Citation: Health and Quality of Life Outcomes 2019 17:47

    Content type: Research

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  30. The family system represents a critical context within which children develop. Although raising a child with a disability may represent a challenge to this dynamic system, research demonstrates that families h...

    Authors: Emily Gardiner, Louise C. Mâsse and Grace Iarocci

    Citation: Health and Quality of Life Outcomes 2019 17:45

    Content type: Research

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  31. Family caregivers of people living with dementia can experience feelings of burden and stress but the concept of sense of coherence has been identified as an important protective trait against the negative imp...

    Authors: Jacki Stansfeld, Martin Orrell, Myrra Vernooij-Dassen and Jennifer Wenborn

    Citation: Health and Quality of Life Outcomes 2019 17:44

    Content type: Research

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  32. The EuroQol Group Five-Dimensional (EQ-5D) instruments have been validated in China for measuring health-related quality of life (HRQoL) and are increasingly being used in health economic studies. However, the...

    Authors: Qiang Yao, Chaojie Liu, Yaoguang Zhang and Ling Xu

    Citation: Health and Quality of Life Outcomes 2019 17:43

    Content type: Research

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  33. In palliative care, family caregivers are often faced with experiences of grief in anticipation of the loss of a close person. An instrument designed to measure this form of grief is the Anticipatory Grief Sca...

    Authors: Maja Holm, Anette Alvariza, Carl-Johan Fürst, Joakim Öhlen and Kristofer Årestedt

    Citation: Health and Quality of Life Outcomes 2019 17:42

    Content type: Research

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  34. Decentralisation of social support and budget cuts spurred interest in outcome-oriented payment systems in the Netherlands. Hence, measurement of relevant outcomes, such as self-reliance and participation, is ...

    Authors: Lucienne Berenschot and Yolanda Grift

    Citation: Health and Quality of Life Outcomes 2019 17:41

    Content type: Research

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  35. Parents/caregivers play an important role in deciding whether their children will undergo orthodontic treatment or not. Their perceptions also have an influence on other choices involving orthodontic treatment...

    Authors: Katrien Jaeken, Maria Cadenas de Llano-Pérula, Jurgen Lemiere, Anna Verdonck, Steffen Fieuws and Guy Willems

    Citation: Health and Quality of Life Outcomes 2019 17:40

    Content type: Research

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  36. Australian health surveys occasionally include health utility measures in describing health related quality of life (HRQoL) across the general population. However, the HRQoL of specific population groups, such...

    Authors: David Banham, Jonathan Karnon and John Lynch

    Citation: Health and Quality of Life Outcomes 2019 17:39

    Content type: Research

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  37. Infertility-related stress can seriously impact the fertility quality of life (QoL) of infertile women. Resilience, as a coping resource, can effectively combat psychological stress. This study aimed to evalua...

    Authors: Yifei Li, Xin Zhang, Meng Shi, Shuaishuai Guo and Lie Wang

    Citation: Health and Quality of Life Outcomes 2019 17:38

    Content type: Research

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  38. Multi-morbidity in chronic long-term conditions is a major concern for health services. Self-management in concert with clinical care forms part of the effective management of multi-morbidity. Self-efficacy is...

    Authors: Michele Peters, Caroline M. Potter, Laura Kelly and Ray Fitzpatrick

    Citation: Health and Quality of Life Outcomes 2019 17:37

    Content type: Research

    Published on:

  39. The Minnesota Living with Heart Failure Questionnaire (MLHFQ) is one of the most widely used health-related quality of life questionnaires for patients with heart failure (HF). The objective of the present stu...

    Authors: M. Gonzalez-Saenz de Tejada, A. Bilbao, L. Ansola, R. Quirós, L. García-Perez, G. Navarro and A. Escobar

    Citation: Health and Quality of Life Outcomes 2019 17:36

    Content type: Research

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  40. The quality of life of family caregivers of patients with advanced cancers is an important concern in oncology care. Yet, there are few suitable measurement scales available for use in Asia. This study aims to...

    Authors: Yin Bun Cheung, Shirlyn H. S. Neo, Irene Teo, Grace M. Yang, Geok Ling Lee, Julian Thumboo, John W. K. Chia, Audrey R. X. Koh, Debra L. M. Qu, William W. L. Che, Annie Lau and Hwee Lin Wee

    Citation: Health and Quality of Life Outcomes 2019 17:35

    Content type: Research

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  41. The development of measures of psychological functioning has received less attention in Russia compared to other countries. Moreover, despite the growing interest in the psychological well-being of older adult...

    Authors: Daniele Didino, Ekaterina A. Taran, Galina A. Barysheva and Fabio Casati

    Citation: Health and Quality of Life Outcomes 2019 17:34

    Content type: Short report

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  42. Both high socioeconomic status (SES) and high physical activity (PA) are associated with better self-rated health (SRH) and higher quality-of-life (QoL).

    Authors: Lisbeth M. Johansson, Hans Lingfors, Marie Golsäter, Margareta Kristenson and Eleonor I. Fransson

    Citation: Health and Quality of Life Outcomes 2019 17:33

    Content type: Research

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  43. Cancer not only impairs a patient’s physical and psychosocial functional behaviour, but also contributes to negative impact on family members’ health related quality of life. Currently, there is an absence of ...

    Authors: Pattariya Chantarasap, Nutjaree Pratheepawanit Johns, Srivieng Pairojkul, Aumkhae Sookprasert, Kosin Wirasorn, Areewan Cheawchanwattana, Sam Salek and Suphat Subongkot

    Citation: Health and Quality of Life Outcomes 2019 17:32

    Content type: Research

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  44. To estimate the additional impact of coping and of being dependent on caregivers, over and above the large effects of disability on utility after ischemic stroke.

    Authors: Sarah Dewilde, Lieven Annemans, Andrew Lloyd, Andre Peeters, Dimitri Hemelsoet, Yves Vandermeeren, Philippe Desfontaines, Raf Brouns, Geert Vanhooren, Patrick Cras, Boudewijn Michielsens, Patricia Redondo and Vincent Thijs

    Citation: Health and Quality of Life Outcomes 2019 17:31

    Content type: Research

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  45. Daytime sleepiness is highly prevalent across the globe. The Epworth sleepiness scale (ESS) is the most widely used tool for screening daytime sleepiness. The psychometric properties of the ESS have not been c...

    Authors: Md. Dilshad Manzar, Mohammed Salahuddin, Majed Alamri, Abdulrhman Albougami, Mohammad Yunus Ali Khan, Dejen Nureye, D. Warren Spence and Seithikurippu R. Pandi-Perumal

    Citation: Health and Quality of Life Outcomes 2019 17:30

    Content type: Research

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  46. We reported the validation of the 18-item version of the ‘Inconforts des Patients de REAnimation (IPREA)’ questionnaire that includes 2 new items exploring feeling depressed and shortness of breath during an i...

    Authors: Karine Baumstarck, Mohamed Boucekine, Philippe Estagnasie, Marie-Agnès Geantot, Audrey Berric, Georges Simon, Bernard Floccard, Thomas Signouret, Mélanie Fromentin, Martine Nyunga, Achille Sossou, Marion Venot, René Robert, Arnaud Follin, Juliette Audibert, Anne Renault…

    Citation: Health and Quality of Life Outcomes 2019 17:29

    Content type: Short report

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  47. Health-related quality of life (HRQoL) has been brought up for decades in haemophilia patients. However, no data to date are available about HRQoL in children with haemophilia using long-term follow up data. T...

    Authors: Heng Zhang, Jie Huang, Xiaoyan Kong, Gaoxiang Ma and Yongjun Fang

    Citation: Health and Quality of Life Outcomes 2019 17:28

    Content type: Research

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  48. To analyse the psychometric properties of the HBSC Symptom Checklist (HBSC-SCL) on psychosomatic symptoms with a focus on the operating characteristics of the items, and on the impacts of measurement distortio...

    Authors: Curt Hagquist, Pernille Due, Torbjørn Torsheim and Raili Välimaa

    Citation: Health and Quality of Life Outcomes 2019 17:27

    Content type: Research

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  49. Few studies have specifically investigated the inverse relationship between reduced quality of life in different domains and elevated C-reactive protein (CRP) serum levels in older adults. Therefore, this stud...

    Authors: Manuela de Almeida Roediger, Maria de Fátima Nunes Marucci, Etienne Larissa Duim, Jair Lício Ferreira Santos, Yeda Aparecida de Oliveira Duarte and Cesar de Oliveira

    Citation: Health and Quality of Life Outcomes 2019 17:26

    Content type: Research

    Published on:

  50. Two main therapies, pazopanib and sunitinib, are used in the first-line setting for metastatic renal cell carcinoma (mRCC). These two tyrosine kinase inhibitors (TKI) are equally effective in terms of survival...

    Authors: Guillaume Mouillet, Joëlle Fritzsch, Sophie Paget-Bailly, Astrid Pozet, Ikram Es-Saad, Aurelia Meurisse, Dewi Vernerey, Kristina Mouyabi, Diane Berthod, Franck Bonnetain, Amélie Anota and Antoine Thiery-Vuillemin

    Citation: Health and Quality of Life Outcomes 2019 17:25

    Content type: Study protocol

    Published on:

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Health and Quality of Life Outcomes

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