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  1. Health-related quality of life (HRQOL) has a direct association with increased morbidity and mortality among end stage renal disease patients. Valid and reliable instruments to measure the HRQOL of patients wi...

    Authors: Mignote Hailu Gebrie, Hussen Mekonnen Asfaw, Workagegnehu Hailu Bilchut, Helena Lindgren and Lena Wettergren
    Citation: Health and Quality of Life Outcomes 2022 20:24
    Content type: Research Published on:

  2. Patients with liver cirrhosis suffer from significantly reduced health-related quality of life and are often dependent on support from caregivers. In this context, caregivers often suffer from impaired quality...

    Authors: Michael Nagel, Vanessa Weidner, Sina Schulz, Jens U. Marquardt, Peter R. Galle, Jörn M. Schattenberg, Marc Nguyen-Tat, Marcus-Alexander Wörns and Christian Labenz
    Citation: Health and Quality of Life Outcomes 2022 20:23
    Content type: Research Published on:

  3. Late-life experiences such as protracted and indisposing medical disorders can negatively impact older adults’ psychological and mental health, making them vulnerable to depression. Majority of the assessment ...

    Authors: Ukamaka Gloria Mgbeojedo, Christopher Olusanjo Akosile, Juliet Chidera Ezugwu, Emmanuel Chiebuka Okoye, Jeneviv Nene John, Kenneth Umezulike Ani and Obinna Chinedu Okezue
    Citation: Health and Quality of Life Outcomes 2022 20:22
    Content type: Research Published on:

  4. The Coronary Revascularisation Outcome Questionnaire (CROQ) measures health-related quality of life and outcome of invasive revascularization procedures such as percutaneous coronary intervention (PCI) or coro...

    Authors: Ingvild Nordnes Myrbakk, Oddgeir Friborg, Anne Høye, Terje Steigen and Svein Bergvik
    Citation: Health and Quality of Life Outcomes 2022 20:21
    Content type: Research Published on:

  5. Response Shift (RS) refers to the idea that an individual may undergo changes in its health-related quality of life (HRQOL). If internal standard, values, or reconceptualization of HRQOL change over time, then...

    Authors: Estelina Ortega-Gómez, Purificación Vicente-Galindo, Helena Martín-Rodero and Purificación Galindo-Villardón
    Citation: Health and Quality of Life Outcomes 2022 20:20
    Content type: Research Published on:

  6. Few studies have investigated the association between social capital and quality of life (QoL) among stroke patients. To address this research gap, we aimed to explore the association between social capital an...

    Authors: Kai Ji, Zhongliang Bai, Yan Zhao, Lingzhi Sang, Danni Wang and Ren Chen
    Citation: Health and Quality of Life Outcomes 2022 20:19
    Content type: Research Published on:

  7. This study develops an adolescent value set for a child-centred dental caries-specific measure of oral health-related quality of life (OHRQoL) based upon CARIES-QC (Caries Impacts and Experiences Questionnaire...

    Authors: H. J. Rogers, J. Sagabiel, Z. Marshman, H. D. Rodd and D. Rowen
    Citation: Health and Quality of Life Outcomes 2022 20:18
    Content type: Research Published on:

  8. The Work Role Functioning Questionnaire 2.0 (WRFQ 2.0) is an instrument that measures the difficulties perceived by workers in meeting work demands, given their physical or emotional health, but it has not yet...

    Authors: Josane Soares Pinto Melo, Almir Vieira Dibai-Filho, Adriana Sousa Rêgo, Daniel Santos Rocha, Isabel Aparecida Porcatti de Walsh, Rudys Rodolfo de Jesus Tavarez, Maria Claudia Gonçalves, Karen Larissa Brito Damasceno, Cid André Fidelis de Paula Gomes and Daniela Bassi-Dibai
    Citation: Health and Quality of Life Outcomes 2022 20:17
    Content type: Research Published on:

  9. Despite the importance of assessing COVID-19 patients' educational needs, there is currently no standard tool for a comprehensive assessment of these needs. The present study was aimed at developing a question...

    Authors: Reza Hajialibeigloo, Yaser Moradi, Hossein Habibzadeh, Rahim Baghaei, Vahid Alinejad and Mohammad Namazi Nia
    Citation: Health and Quality of Life Outcomes 2022 20:16
    Content type: Research Published on:

  10. Quality of life (QoL) is one of the treatment outcome measures in patients with breast cancer. In this study, we measured the QoL of women with breast cancer at Universiti Kebangsaan Malaysia Medical Centre (U...

    Authors: Jamilah Yusoff, Aniza Ismail, Mohd Rizal Abd Manaf, Fuad Ismail, Norlia Abdullah, Rohaizak Muhammad, Shahrun Niza Abdullah Suhaimi and Reena Rahayu Mat Zin
    Citation: Health and Quality of Life Outcomes 2022 20:15
    Content type: Research Published on:

  11. To develop an EQ-5D-3L social value set based on Chinese rural population’s preferences using the time trade-off (TTO) method, and to compare the differences in preferences on health states between China urban...

    Authors: Gordon G. Liu, Haijing Guan, Xuejing Jin, Han Zhang, Samantha A. Vortherms and Hongyan Wu
    Citation: Health and Quality of Life Outcomes 2022 20:14
    Content type: Research Published on:

  13. Selection of appropriate trial endpoints and outcome measures is particularly important in rare disease and rapidly progressing disease such as amyotrophic lateral sclerosis (ALS) where the challenges to condu...

    Authors: Susan L. Hartmaier, Thomas Rhodes, Suzanne F. Cook, Courtney Schlusser, Chao Chen, Steve Han, Neta Zach, Venkatesha Murthy and Shreya Davé
    Citation: Health and Quality of Life Outcomes 2022 20:12
    Content type: Review Published on:

  14. Mothers and other primary caregivers play a crucial role in looking after perinatally HIV infected, and HIV exposed uninfected adolescents in sub-Saharan Africa. Day- to-day caregiving in the context of limite...

    Authors: Patrick N. Mwangala, Derrick Ssewanyana, Paul Mwangi, Esther Chongwo, Carophine Nasambu, Vincent A. Kagonya, Gaia Scerif, Charles R. Newton and Amina Abubakar
    Citation: Health and Quality of Life Outcomes 2022 20:11
    Content type: Research Published on:

  15. Evidence of how social factors affect the health-related quality of life (HRQoL) of Ebola virus disease (EVD) survivors is limited. Our study explores the association between socio-demographic, health-related ...

    Authors: Peter Bai James, Jon Wardle, Razak M. Gyasi, Amie Steel, Jon Adams, John Alimamy Kabba, Abdulai Jawo Bah, Michael Lahai and Eugene B. Conteh
    Citation: Health and Quality of Life Outcomes 2022 20:10
    Content type: Research Published on:

  16. Little is known about depression and anxiety among paediatric intracranial germ cell tumour (iGCT) survivors. We aimed to evaluate the risk factors associated with depression, anxiety and health-related qualit...

    Authors: Wenyi Lv, Bo Li, Jin Feng, Li Chen, Xiaoguang Qiu and Shuai Liu
    Citation: Health and Quality of Life Outcomes 2022 20:9
    Content type: Research Published on:

  17. The objectives of this study were to analyze the psychometric properties of the Sense of Coherence scale (SOC-13), determine the role of the method effect in the performance of the instrument, and identify the...

    Authors: Sara Domínguez-Salas, Montserrat Andrés-Villas, Aina Riera-Sampol, Pedro Tauler, Miquel Bennasar-Veny, Antoni Aguilo and Francisco Rivera
    Citation: Health and Quality of Life Outcomes 2022 20:8
    Content type: Research Published on:

  18. Patients with noncardiac chest pain (NCCP) report more severe symptoms and lowered health-related quality of life when they present with comorbid panic disorder (PD). Although generalized anxiety disorder (GAD...

    Authors: Stéphanie Hamel, Isabelle Denis, Stéphane Turcotte, Richard Fleet, Patrick Archambault, Clermont E. Dionne and Guillaume Foldes-Busque
    Citation: Health and Quality of Life Outcomes 2022 20:7
    Content type: Research Published on:

  19. Hematopoietic stem cell transplantation (HSCT) is an aggressive medical procedure which significantly impacts the shared emotional well-being of patients and family caregivers (FC). Prior work has highlighted ...

    Authors: Timothy S. Sannes, Krista W. Ranby, Miryam Yusufov, Benjamin W. Brewer, Jamie M. Jacobs, Stephanie Callan, Gillian R. Ulrich, Nicole A. Pensak, Crystal Natvig and Mark L. Laudenslager
    Citation: Health and Quality of Life Outcomes 2022 20:6
    Content type: Research Published on:

  20. To identify and assess the psychometric properties of patient-reported outcome measures (PROMs) of health-related quality of life (HRQoL) in people living with HIV (PLWH).

    Authors: Huan Wen, Zhongfang Yang, Zheng Zhu, Shuyu Han, Lin Zhang and Yan Hu
    Citation: Health and Quality of Life Outcomes 2022 20:5
    Content type: Review Published on:

  21. Clinician time and resources may be underutilised if the treatment they offer does not match patient expectations and attitudes. We developed a questionnaire (AxEL-Q) to guide clinicians toward elements of fir...

    Authors: Edel T. O’Hagan, Ian W. Skinner, Matthew D. Jones, Emma L. Karran, Adrian C. Traeger, Aidan G. Cashin, Benedict M. Wand, Siobhan M. Schabrun, Sean O’Neill, Ian A. Harris and James H. McAuley
    Citation: Health and Quality of Life Outcomes 2022 20:4
    Content type: Research Published on:

  22. Fatigue is a frequent complaint amongst children and adolescents with obesity, and it interferes with adherence to dietary and exercise regimes that could reduce obesity. The present study evaluated the effect...

    Authors: Matthew F. Smout, Gian Mauro Manzoni, Sofia Tamini, Nicoletta Marazzi, Alessandra De Col, Giada Pietrabissa, Gianluca Castelnuovo, Enrico Molinari and Alessandro Sartorio
    Citation: Health and Quality of Life Outcomes 2022 20:3
    Content type: Research Published on:

  23. Improvement in medical management has enabled transfusion dependent thalassaemia (TDT) patients to survive beyond childhood, building families, and contributing to the labour force and society. Knowledge about...

    Authors: Wai Cheng Foong, Kooi Yau Chean, Fairuz Fadzilah Rahim, Ai Sim Goh, Seoh Leng Yeoh and Angeline Aing Chiee Yeoh
    Citation: Health and Quality of Life Outcomes 2022 20:2
    Content type: Research Published on:

  24. For many adults, their role as a parent is a vital part of their lives. This role is likely to be associated with a parent’s health-related quality of life (HRQOL). The aim of this study was to explore the ass...

    Authors: Gudrun Rohde, Sølvi Helseth, Hilde Timenes Mikkelsen, Siv Skarstein, Milada Cvancarova Småstuen and Kristin Haraldstad
    Citation: Health and Quality of Life Outcomes 2022 20:1
    Content type: Research Published on:

  27. Psoriasis is a serious health problem. Since limited research has investigated the impact of psoriasis on the quality of life of patients with moderate-to-severe psoriasis, this study aimed to explore this issue.

    Authors: Hua Zhong, Huan Yang, Zhuxin Mao, Xiaoyun Chai and Shunping Li
    Citation: Health and Quality of Life Outcomes 2021 19:271
    Content type: Research Published on:

  28. Attention Deficit Hyperactivity Disorder (ADHD) is associated with emotional dysregulation (ED) and impaired health related quality of life (HRQoL). However, the role of ED in explaining the relationship betwe...

    Authors: Maayan Ben-Dor Cohen, Eran Eldar, Adina Maeir and Mor Nahum
    Citation: Health and Quality of Life Outcomes 2021 19:270
    Content type: Research Published on:

  29. The purpose of this study was to describe the health-related quality of life (HRQoL) characteristics in a population at risk of developing type 2 diabetes in Barranquilla and Bogotá, Colombia.

    Authors: Luis A. Anillo Arrieta, Tania Acosta Vergara, Rafael Tuesca, Sandra Rodríguez Acosta, Karen C. Flórez Lozano, Pablo Aschner, Rafael Gabriel, Sandra De La Rosa, Julieth P. Nieto Castillo and Noël C. Barengo
    Citation: Health and Quality of Life Outcomes 2021 19:269
    Content type: Research Published on:

  30. Covid-19 causes a wide range of symptoms in patients, ranging from mild manifestations to severe disease and death. This study assessed the health-related quality of life (HRQOL) and associated factors of Covi...

    Authors: Abdene Weya Kaso, Gebi Agero, Zewdu Hurisa, Taha Kaso, Helen Ali Ewune and Alemayehu Hailu
    Citation: Health and Quality of Life Outcomes 2021 19:268
    Content type: Research Published on:

  32. Electronic measurement of health-related quality of life (HRQOL) may facilitate timely and regular assessments in routine clinical practice. This study evaluated the validity and psychometric properties of an ...

    Authors: Cindy Lo Kuen Lam, Emily Tsui Yee Tse, Carlos King Ho Wong, Joyce Sau Mei Lam, Sikky Shiqi Chen, Laura Elizabeth Bedford, Jason Pui Yin Cheung, Calvin Kalun Or and Paul Kind
    Citation: Health and Quality of Life Outcomes 2021 19:266
    Content type: Research Published on:

  33. The COVID-19 epidemic has sent students around the world in to lockdown. This study sought to assess the prevalence of impaired self-perceived mental health and identify associated factors among French post-se...

    Authors: Cédric Baumann, Hélène Rousseau, Cyril Tarquinio, Martine Batt, Pascale Tarquinio, Romain Lebreuilly, Christine Sorsana, Karine Legrand, Francis Guillemin and Stéphanie Bourion-Bédès
    Citation: Health and Quality of Life Outcomes 2021 19:265
    Content type: Research Published on:

  34. In economic evaluation, the quality of life of people with a disability has traditionally been assessed using preference-based instruments designed to measure and value quality of life. To provide robust measu...

    Authors: Matthew Crocker, Claire Hutchinson, Christine Mpundu-Kaambwa, Ruth Walker, Gang Chen and Julie Ratcliffe
    Citation: Health and Quality of Life Outcomes 2021 19:264
    Content type: Research Published on:

  35. Arthrogryposis multiplex congenita (AMC) is a group of congenital conditions characterized by joint contractures in two or more body areas. Management of AMC starts early in life and focuses on improving mobil...

    Authors: Sarah Cachecho, Jill Boruff, Trudy Wong, Francis Lacombe and Noemi Dahan-Oliel
    Citation: Health and Quality of Life Outcomes 2021 19:263
    Content type: Research Published on:

  37. Clinical, surgical, and percutaneous strategies similarly prevent major cardiovascular events in patients with stable coronary artery disease (CAD). The possibility that these strategies have differential effe...

    Authors: Lucas Molinari Veloso da Silveira, Adriana Silveira Almeida, Felipe C. Fuchs, Aline Gonçalves Silva, Marcelo Balbinot Lucca, Samuel Scopel, Sandra C. Fuchs and Flávio D. Fuchs
    Citation: Health and Quality of Life Outcomes 2021 19:261
    Content type: Research Published on:

  38. This study assesses the construct validity and sensitivity to change of the Short Warwick-Edinburgh Mental Well-being Scale (SWEMWBS) as an outcome measure in the treatment of common mental disorders (CMD) in ...

    Authors: Neha Shah, Mizaya Cader, Bill Andrews, Rose McCabe and Sarah L. Stewart-Brown
    Citation: Health and Quality of Life Outcomes 2021 19:260
    Content type: Research Published on:

  39. There is no systematic review that analyzes the psychometric properties of questionnaires in Italian. Previous studies have analyzed the psychometric characteristics of instruments for the measurement of patho...

    Authors: Luca Barni, María Ruiz-Muñoz, Manuel Gonzalez-Sanchez, Antonio I. Cuesta-Vargas, Jose Merchan-Baeza and Marco Freddolini
    Citation: Health and Quality of Life Outcomes 2021 19:259
    Content type: Review Published on:

  40. Resilience instruments specific to family caregivers (FCs) in cancer are limited. This study was designed to validate the 10-item Resilience Scale Specific to Cancer (RS-SC-10) in FCs using multidimensional it...

    Authors: Mu Zi Liang, Ying Tang, Peng Chen, Jian Liang, Zhe Sun, Guang Yun Hu, Yuan Liang Yu and Zeng Jie Ye
    Citation: Health and Quality of Life Outcomes 2021 19:258
    Content type: Research Published on:

  41. Patients with sickle cell disease (SCD) experience daily pain and acute episodes known as sickle cell pain crises (SCPCs). The Sickle Cell Pain Diary-Caregiver Report (SCPD-C) is an observer-reported diary for...

    Authors: Michelle K. White, April M. Foster, Miranda Bailey, Denise D’Alessio, Avery Rizio, Patricia Stebbins, Danielle St. Pierre and Cory Saucier
    Citation: Health and Quality of Life Outcomes 2021 19:257
    Content type: Research Published on:

  42. The adult versions EQ-5D-3L and EQ-5D-5L have been extensive compared. This is not the case for the EQ-5D youth versions. The study aim was to compare the measurement properties and responsiveness of EQ-5D-Y-3...

    Authors: Titi Sahidah Fitriana, Fredrick Dermawan Purba, Rina Rahmatika, Riski Muhaimin, Nur Melani Sari, Gouke Bonsel, Elly Stolk and Jan J. V. Busschbach
    Citation: Health and Quality of Life Outcomes 2021 19:256
    Content type: Research Published on:

  43. A short form of the General Health Questionnaire (GHQ-12) is a useful screening instrument for assessing mental health. Furthermore, Quality of life (QoL) is a critical treatment outcome in many clinical and h...

    Authors: Fatemeh Nouri, Awat Feizi, Hamidreza Roohafza, Masoumeh Sadeghi and Nizal Sarrafzadegan
    Citation: Health and Quality of Life Outcomes 2021 19:255
    Content type: Research Published on:

  44. Elderly patients with type 2 diabetes mellitus are highly vulnerable due to severe complications. However, there is a contradiction in the relationship between social support and quality of life, which warrant...

    Authors: Xinye Qi, Jiao Xu, Guiying Chen, Huan Liu, Jingjing Liu, Jiahui Wang, Xin Zhang, Yanhua Hao, Qunhong Wu and Mingli Jiao
    Citation: Health and Quality of Life Outcomes 2021 19:254
    Content type: Research Published on:

  45. This study aimed to evaluate the psychometric properties of the Chinese version of the Short Inflammatory Bowel Disease Questionnaire (C-SIBDQ), and its measurement invariance across sex in Chinese patients wi...

    Authors: Dajuan Sun, Lili Chi, Jiahui Liu, Junwei Liang, Song Guo and Shaojie Li
    Citation: Health and Quality of Life Outcomes 2021 19:253
    Content type: Research Published on:

  46. Patients with heart failure (HF) experience continuous changes in symptom distress, care needs, social support, and meaning in life from acute decompensation to chronic phases. The longitudinal relationship be...

    Authors: Min-Hui Liu, Ai-Fu Chiou, Chao-Hung Wang, Wen-Pin Yu and Mei-Hui Lin
    Citation: Health and Quality of Life Outcomes 2021 19:252
    Content type: Research Published on:

  47. Patients with hematological cancer who experience relapse or progressive disease often face yet another line of treatment and continued mortality risk that could increase their physical and emotional trauma an...

    Authors: Mia Sommer, Lene Kongsgaard Nielsen, Lars Børty Nielsen, Rasmus Froberg Brøndum, Marlene Maria Nielsen, Anne Stoffersen Rytter, Charles Vesteghem, Marianne Tang Severinsen, Tarec Christoffer El-Galaly, Martin Bøgsted, Mette Grønkjær and Lone Jørgensen
    Citation: Health and Quality of Life Outcomes 2021 19:251
    Content type: Research Published on:

  48. The purpose of this study was to assess utility coefficients of health states following two minimally invasive surgical approaches for head and neck cancer, namely trans-oral robotic surgery and trans-oral las...

    Authors: Enea Parimbelli, Christian Simon, Federico Soldati, Lorry Duchoud, Gian Luca Armas, John R. de Almeida and Silvana Quaglini
    Citation: Health and Quality of Life Outcomes 2021 19:250
    Content type: Research Published on:

  49. The importance of economic evaluations of mental healthcare interventions is increasingly recognized. Despite the multitude of available quality of life instruments, concerns have been raised regarding the con...

    Authors: F. C. W. van Krugten, K. Feskens, J. J. V. Busschbach, L. Hakkaart-van Roijen and W. B. F. Brouwer
    Citation: Health and Quality of Life Outcomes 2021 19:249
    Content type: Review Published on:

  50. The Hopkins Symptom Checklist-10 (HSCL-10) is widely used to measure psychological distress in adolescents. To provide valid and reliable results and generate recommendations for practice and policies, instrum...

    Authors: Hanne Søberg Finbråten, Annette Løvheim Kleppang and Anne Mari Steigen
    Citation: Health and Quality of Life Outcomes 2021 19:248
    Content type: Research Published on:
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Health and Quality of Life Outcomes

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