Articles

A critical review to grading systems and recommendations of traditional Chinese medicine guidelines

To investigate how many traditional Chinese medicine (TCM) guidelines adopted a grading system and the differences among them, and the distribution of level of evidence used to support TCM recommendations.

Authors: Juan Li, Bin Li, Xin-ke Zhao, Jia-yin Tu and Yingdong Li

Results of a global, patient-based survey assessing the impact of psoriatic arthritis discussed in the context of the Psoriatic Arthritis Impact of Disease (PsAID) questionnaire

Psoriatic arthritis (PsA) is a chronic immune-mediated inflammatory musculoskeletal disease, manifesting as peripheral arthritis, enthesitis, dactylitis, spondylitis, and skin and nail psoriasis. A core set of...

Authors: L. C. Coates, A.-M. Orbai, V. F. Azevedo, J. C. Cappelleri, K. Steinberg, R. Lippe, I. Lim, L. Eder, P. Richette, M. Y. Weng, R. Queiro Silva and L. Fallon

Health-related quality of life (FACT-GP) in Sweden

Many studies have used disease-specific instruments, such as the Functional Assessment of Cancer Therapy (FACT), when studying health-related quality of life (HRQOL) in patients. Few studies however, have desc...

Authors: Ann-Sophie Lindqvist Bagge, Anders Carlander, Claudia Fahlke and Roger Olofsson Bagge

The effects of social integration and hometown identity on the life satisfaction of Chinese rural migrants: the mediating and moderating effects of a sense of belonging in the host city

Many developing countries are rapidly urbanising because of large migration flows from rural to urban areas. However, migrants’ socio-cultural transitions might be challenging, and their extent of social integ...

Authors: Hongsheng Chen, Zhenjun Zhu, Jiang Chang and Yinbao Gao

Health-related quality of life in Norwegian adolescents living with chronic fatigue syndrome

The primary aim was to measure health related quality of life (HRQoL) in a Norwegian cohort of adolescents with Chronic Fatigue Syndrome (CFS/ME). A secondary aim was to identify factors before diagnosis, at t...

Authors: Wenche Ann Similä, Vidar Halsteinli, Ingrid B. Helland, Christer Suvatne, Hanna Elmi and Torstein Baade Rø

Correlates of health-related quality of life among adults receiving combination antiretroviral therapy in coastal Kenya

Health-related quality of life (HRQoL) is an important metric of perceived wellbeing in people living with HIV/AIDS (PLWHA). However, research on HRQoL among PLWHA in sub-Saharan Africa is limited. This study ...

Authors: Moses K. Nyongesa, Paul Mwangi, Stanley W. Wanjala, Agnes M. Mutua, Hans M. Koot, Pim Cuijpers, Charles R. J. C. Newton and Amina Abubakar

Psychometric properties of a short version of Lee Fatigue Scale used as a generic PROM in persons with stroke or osteoarthritis: assessment using a Rasch analysis approach

Fatigue is a common symptom associated with a wide range of diseases and needs to be more thoroughly studied. To minimise patient burden and to enhance response rates in research studies, patient-reported outcome...

Authors: Line Kildal Bragstad, Anners Lerdal, Caryl L. Gay, Marit Kirkevold, Kathryn A. Lee, Maren Falch Lindberg, Ingrid Johansen Skogestad, Ellen Gabrielsen Hjelle, Unni Sveen and Anders Kottorp

Development and use of health outcome descriptors: a guideline development case study

During healthcare guideline development, panel members often have implicit, different definitions of health outcomes that can lead to misunderstandings about how important these outcomes are and how to balance...

Authors: Tejan Baldeh, Zuleika Saz-Parkinson, Paola Muti, Nancy Santesso, Gian Paolo Morgano, Wojtek Wiercioch, Robby Nieuwlaat, Axel Gräwingholt, Mireille Broeders, Stephen Duffy, Solveig Hofvind, Lennarth Nystrom, Lydia Ioannidou-Mouzaka, Sue Warman, Helen McGarrigle, Susan Knox…

Quality of life up to 10 years after traumatic brain injury: a cross-sectional analysis

Traumatic brain injury (TBI) is the leading cause of death and disability among children and young adults in industrialized countries, but strikingly little is known how patients cope with the long-term conseq...

Authors: Katrin Rauen, Lara Reichelt, Philipp Probst, Barbara Schäpers, Friedemann Müller, Klaus Jahn and Nikolaus Plesnila

Exploring subjective constructions of health in China: a Q-methodological investigation

With an increasing awareness of people’s satisfaction and feeling, health-related quality of life (HRQoL) has become an essential aspect of measuring health. HRQoL is fundamentally a foreign concept introduced...

Authors: Zhuxin Mao, Shenaz Ahmed, Christopher Graham and Paul Kind

EQ-5D-Y-5L as a patient-reported outcome measure in psychiatric inpatient care for children and adolescents – a cross-sectional study

Psychiatric disorders have a major individual and societal impact. Until now, the association between health-related quality of life and physical disorders has been far more investigated than the association w...

Authors: Mimmi Åström, Sonja Krig, Sara Ryding, Neil Cleland, Ola Rolfson and Kristina Burström

The long and winding road to happiness: A randomized controlled trial and cost-effectiveness analysis of a positive psychology intervention for lonely people with health problems and a low socio-economic status

Our objective was to evaluate the effectiveness and cost-effectiveness of the positive psychology intervention ‘Happiness Route’ compared to an active control condition in a vulnerable population with an accum...

Authors: Laura A. Weiss, Martijn A. H. Oude Voshaar, Ernst T. Bohlmeijer and Gerben J. Westerhof

Body image mediates the relationship between post-surgery needs and health-related quality of life among women with breast cancer: a cross-sectional study

Although body image (BI) disturbance is a common problem that often contributes to poor health-related quality of life (HRQoL) among women with breast cancer following surgery, the mediating role of BI (as a s...

Authors: Kaina Zhou, Wen Wang, Minjie Li, Jinghua An, Lanting Huo, Xiaole He, Jin Li and Xiaomei Li

Health-related quality of life among 13–14 year old adolescents with overweight−a mixed methods approach

Overweight and obesity are public concerns with risk of adverse health outcomes. Health-related quality of life (HRQoL) is lower in adolescents than children in general. An increase in body mass index (BMI) is...

Authors: T. K. B. Sundar, K. Riiser, M. C. Småstuen, R. Opheim, K. Løndal, K. Glavin and S. Helseth

A systematic review of studies measuring health-related quality of life of general injury populations: update 2010–2018

Studies examining the impact of injury on health-related quality of life (HRQL) over time are necessary to understand the short- and long-term consequences of injury for population health. The aim of this syst...

Authors: A. J. L. M. Geraerds, Amy Richardson, Juanita Haagsma, Sarah Derrett and Suzanne Polinder

Association between fatigue, pain, digestive problems, and sleep disturbances and individuals’ health-related quality of life: a nationwide survey in South Korea

Physical symptoms such as fatigue, pain, digestive problems, and sleep disturbances are chief reasons individuals seek primary care, as they affect health-related quality of life. We investigated the associati...

Authors: Younghwa Baek, Kyungsik Jung, Hoseok Kim and Siwoo Lee

Longitudinal evaluation of the effects of illness perceptions and beliefs about cardiac rehabilitation on quality of life of patients with coronary artery disease and their caregivers

Patients’ negative illness perceptions and beliefs about cardiac rehabilitation (CR) can influence uptake and adherence to CR. Little is known about the interpartner influence of these antecedent variables on ...

Authors: Patricia Thomson, Neil J. Angus, Federico Andreis, Gordon F. Rushworth, Andrea R. Mohan, Misook L. Chung and Stephen J. Leslie

Conventional and retrospective change in health-related quality of life of trauma patients: an explorative observational follow-up study

Within trauma care measurement of changes in health-related quality of life (HRQL) is used in understanding patterns of recovery over time. However, conventionally-measured change in HRQL may not always reflec...

Authors: Juanita A. Haagsma, Inge Spronk, Mariska A. C. de Jongh, Gouke J. Bonsel and Suzanne Polinder

Practical issues encountered while determining Minimal Clinically Important Difference in Patient-Reported Outcomes

Using a real dataset, we highlighted several major methodological issues raised by the estimation of the Minimal Clinically Important Difference (MCID) of a Patient-Reported Outcomes instrument. We especially ...

Authors: Pascal Woaye-Hune, Jean-Benoit Hardouin, Paul-Antoine Lehur, Guillaume Meurette and Antoine Vanier

The association of hearing impairment and its severity with physical and mental health among Chinese middle-aged and older adults

Hearing impairment is a common chronic condition which can be closely related to people’s health. However, current studies on this topic are quite limited in developing countries, and few with standardized aud...

Authors: Xin Ye, Dawei Zhu, Siyuan Chen and Ping He

The differences in self-perceptions of aging, health-related quality of life and their association between urban and rural Chinese older hypertensive patients

Most hypertensive clients are elderly, whose health-related quality of life (HRQL) may be associated with self-perceptions of aging (older individuals’ beliefs about their own aging). Meanwhile, culture and he...

Authors: Yunying Hou, Qing Wu, Dandan Zhang, Xiaohong Jin, Wenya Wu and Xiaohua Wang

Poverty and health-related quality of life: a cross-sectional study in rural China

The association between poverty and health has been widely assessed. However, whether the association between poverty and health-related quality of life (HRQOL) holds among different groups is unknown. This st...

Authors: Zhong Li and Liang Zhang

Health-related quality of life among Jewish older persons in Mexico and its determinants

Aging research in Mexico has significantly increased in the past decades, however, little is known on health related quality of life (HRQoL) of older adults. The aim of this study was to expand this field by e...

Authors: Mariana López-Ortega and Mina Konigsberg

Development of two psychological experience questionnaires for screening violence-related mental health disorders of non-psychiatric inpatients

Increased violent events happen in the general hospitals in China and yet non-psychiatric departments do not have tools for violence-tendency screening.

Authors: Yanjun Meng, Yuling Li, Hongbao Cao, Yong Xu and Binquan Wang

Interaction of sleep quality and anxiety on quality of life in individuals with type 2 diabetes mellitus

Sleep disturbances and anxious symptoms are very common in people with type 2 diabetes mellitus(T2DM). This study aimed to assess the interactive effects of poor sleep quality and anxious symptoms on the quali...

Authors: Dong Dong, Peian Lou, Jian Wang, Pan Zhang, Jianquan Sun, Guiqiu Chang and Chunrong Xu

How does the EQ-5D-Y Proxy version 1 perform in 3, 4 and 5-year-old children?

The EQ-5D-Y Proxy is currently recommended for Health Related Quality of Life (HRQoL) measurement in children aged 4–8 years of age. However, it has only been validated in children over six years of age. The a...

Authors: Janine Verstraete, Andrew Lloyd, Des Scott and Jennifer Jelsma

Proxy reporting of health-related quality of life for people with dementia: a psychometric solution

The growing move towards personalised health and social care systems means that every effort needs to be made to generate patient-reported outcome data. However, the deteriorating nature of dementia can make i...

Authors: S. C. Smith, A. A. J. Hendriks, S. J. Cano and N. Black

Correction to: Health-related quality of life measured using the EQ-5D-5 L: population norms for the capital of Iran

An amendment to this paper has been published and can be accessed via the original article.

Authors: Zahra Emrani, Ali Akbari Sari, Hojjat Zeraati, Alireza Olyaeemanesh and Rajabali Daroudi

Cross-cultural adaptation and validation in spanish of the malocclusion impact questionnaire (MIQ)

The Malocclusion Impact Questionnaire (MIQ) is a condition-specific measure that assesses the impact of malocclusion on Oral Health-Related Quality of Life (OHRQoL). The aim of this study was to cross-cultural...

Authors: Bárbara Hope, Carlos Zaror, Paulo Sandoval, Mario Garay and David L. Streiner

Update on the psychometric properties and minimal important difference (MID) thresholds of the FACT-M questionnaire for use in treatment-naïve and previously treated patients with metastatic Merkel cell carcinoma

For valid and reliable assessment of patients’ Health-Related Quality of Life (HRQoL), it is crucial to use psychometrically robust instruments. In the context of rare diseases such as Merkel cell carcinoma (M...

Authors: Murtuza Bharmal, Sandra Nolte, Mickaël Henry-Szatkowski, Meliessa Hennessy and Michael Schlichting

Exploring the relation between the EQ-5D-5L pain/discomfort and pain and itching in a sample of burn patients

The EQ-5D domain pain/discomfort (PD) uses one item to capture pain and other aspects of discomfort, like itching. This study explored how pain, itching and the EQ-5D-5L PD domain relate to each other in a sam...

Authors: I. Spronk, G. J. Bonsel, S. Polinder, M. E. van Baar, M. F. Janssen and J. A. Haagsma

The mediating effect of social support on uncertainty in illness and quality of life of female cancer survivors: a cross-sectional study

Authors: Insook Lee and Changseung Park

Self-reported and parent proxy reported functional impairment among pediatric cancer survivors and controls

A unique and limiting component in the research on functional impairment among children has been the exclusive use of parent proxy reports about child functioning; and there is limited information regarding th...

Authors: Sarah J. Erickson, Sarah Hile, Nicole Kubinec and Robert D. Annett

Health-related quality of life among children with transfusion-dependent thalassemia: A cross-sectional study in Malaysia

The treatment of children with transfusion-dependent thalassemia (TDT) in Malaysia has progressed since 2005. This study provides an updated health-related quality of life (HRQoL) assessment for children with ...

Authors: Asrul Akmal Shafie, Irwinder Kaur Chhabra, Jacqueline Hui Yi Wong, Noor Syahireen Mohammed, Hishamshah Mohd Ibrahim and Hamidah Alias

Health-related qualify of life, angina type and coronary artery disease in patients with stable chest pain

Health-related quality of life (HRQoL) is impaired in patients with stable angina but patients often present with other forms of chest pain. The aim of this study was to compare the pre-diagnostic HRQoL in pat...

Authors: Nina Rieckmann, Konrad Neumann, Sarah Feger, Paolo Ibes, Adriane Napp, Daniel Preuß, Henryk Dreger, Gudrun Feuchtner, Fabian Plank, Vojtěch Suchánek, Josef Veselka, Thomas Engstrøm, Klaus F. Kofoed, Stephen Schröder, Thomas Zelesny, Matthias Gutberlet…

Item analysis of the Eating Assessment Tool (EAT-10) by the Rasch model: a secondary analysis of cross-sectional survey data obtained among community-dwelling elders

The Eating Assessment Tool (EAT-10) is increasingly used to screen for self-perceived oropharyngeal dysphagia (OD) in community-dwelling elders. A summated EAT-10 total score ranges from 0 to 40, with a score ...

Authors: Tina Hansen and Annette Kjaersgaard

Validation and clinical interpretation of the St George’s respiratory questionnaire for COPD (SGRQ-C) after adaptation to Malaysian language and culture, in patients with COPD

Cultural differences affect the administration and results of health status questionnaires. “Cross cultural adaptation” ensures retention of psychometric properties such as validity and reliability at an item ...

Authors: Anees ur Rehman, Mohamed Azmi Ahmad Hassali, Sabariah Noor Harun, Sameen Abbas, Jaya Muneswarao, Irfhan Ali Bin Hyder Ali and Rabia Hussain

The impact of type 1 diabetes on young adults’ health-related quality of life

Young adulthood is a challenging period for people with diabetes mellitus type 1 (T1DM) as they are facing multiple life transitions while managing a demanding disease. This poses a risk for impaired health-re...

Authors: Madelon B. Bronner, Mariëlle A. C. Peeters, Jane N. T. Sattoe and AnneLoes van Staa

How is the minimal clinically important difference established in health-related quality of life instruments? Review of anchors and methods

The aim of this systematic review is to describe the different types of anchors and statistical methods used in estimating the Minimal Clinically Important Difference (MCID) for Health-Related Quality of Life ...

Authors: Yosra Mouelhi, Elisabeth Jouve, Christel Castelli and Stéphanie Gentile

Polish adaptation and validation of the hip disability and osteoarthritis outcome score (HOOS) in osteoarthritis patients undergoing total hip replacement

The Hip disability and Osteoarthritis Outcome Score (HOOS) is a frequently used patient-reported outcome measure (PROM) for assessment of hip disorders and treatment effects following hip surgery. The objectiv...

Authors: Marek K. Gojło and Przemysław T. Paradowski

Quality of life during chemotherapy, hormonotherapy or antiHER2 therapy of patients with advanced, metastatic breast cancer in clinical practice

Breast cancer is one of the most important health problems in the world. In recent years, this cancer has achieved a reduction in mortality, which is attributed to the introduction of mass screening and greate...

Authors: Krzysztof Adamowicz and Zuzanna Baczkowska-Waliszewska

Health-related quality of life and its influencing factors in adult patients with localized scleroderma - a cross-sectional study

Localized Scleroderma (LoS) is an autoimmune connective tissue disease that affects skin and less commonly subcutaneous tissues. The illness occurs in children and adults, and may have a serious impact on heal...

Authors: Anna Lis-Święty, Alina Skrzypek-Salamon, Irmina Ranosz-Janicka and Ligia Brzezińska-Wcisło

Psychometric properties of the Connor-Davidson Resilience Scale (CD-RISC) in a non-clinical population in Sweden

The Connor-Davidson Resilience Scale (CD-RISC) is the most widely used scale which assesses psychological resilience. Although it is recommended to be applied as a unidimensional scale, its factor structure, r...

Authors: Katarina Velickovic, Ingalill Rahm Hallberg, Ulrika Axelsson, Carl A. K. Borrebaeck, Lisa Rydén, Per Johnsson and Johanna Månsson

Psychometric properties of the Chinese version of the modified polycystic ovary syndrome health-related quality-of-life questionnaire

The modified polycystic ovary syndrome health-related quality-of-life questionnaire (MPCOSQ) is a 30-item instrument measuring quality-of-life in English-speaking patients with polycystic ovary syndrome (PCOS)...

Authors: Yun-yun Luo, Xiao-lin Xu and Xiao-bin Li

The effect of weight loss and exercise on Health-Related Quality of Life (HRQOL) following Endoscopic Bariatric Therapies (EBT) for obesity

Endoscopic bariatric therapies (EBT) have demonstrated to induce weight loss and improve comorbidities in obese patients. However, little is known about its impact on health-related quality of life (HRQOL) out...

Authors: Gontrand Lopez-Nava, Ravishankar Asokkumar, T. Lacruz, A. Rull, L. Beltran and Inmaculada Bautista-Castaño

Factors associated with health related quality of life of patients with stroke in Sri Lankan context

Stroke is a major global health concern which affects the health related quality of life (HRQOL). As the prevalence of stroke is increasing especially in lower-middle income countries, it is vital to identify ...

Authors: Pramudika Nirmani Kariyawasam, Kithsiri Dedduwa Pathirana and Don Chandana Hewage

Understanding the burden of illness of excessive daytime sleepiness associated with obstructive sleep apnea: a qualitative study

Obstructive sleep apnea (OSA) is associated with excessive daytime sleepiness (EDS), which may go undiagnosed and can significantly impair a patient’s health-related quality of life (HRQOL). This qualitative r...

Authors: Laura Tesler Waldman, Sairam Parthasarathy, Kathleen F. Villa, Morgan Bron, Shay Bujanover and Meryl Brod

Using Rasch measurement theory to assess the psychometric properties of a depressive symptoms scale in Norwegian adolescents

Scales measuring depressive symptoms in adolescents and adults are widely used for epidemiological purposes. The purpose of this study is to use Rasch measurement theory to examine the psychometric properties ...

Authors: Annette Løvheim Kleppang, Anne Mari Steigen and Hanne Søberg Finbråten

Health-related quality of life among community-dwelling people aged 80 years and over: a cross-sectional study in France

The proportion of people living to a very old age is continuously increasing. One of the possibilities explored in policies and services to meet this health and societal challenge is to encourage the very old ...

Authors: Isabelle Jalenques, Fabien Rondepierre, Chloé Rachez, Sophie Lauron and Candy Guiguet-Auclair

Practice guidelines on migrants’ health: assessment of their quality and reporting

Migrants may carry with them communicable and non communicable diseases as they move to the host country. Screening migrants may help in improving their health status and in preventing the spread of infections...

Authors: Tamara Lotfi, Mohamad I. Itani, Pamela Howeiss, Lama Kilzar, Nesrine A. Rizk and Elie A. Akl