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  1. The purpose of this study is to evaluate the content validity of the National Comprehensive Cancer Network – Functional Assessment of Cancer Therapy – Breast Cancer Symptom Index (NFBSI-16) and the Patient-Rep...

    Authors: Meaghan Krohe, Derek H. Tang, Brittany Klooster, Dennis Revicki, Nina Galipeau and David Cella
    Citation: Health and Quality of Life Outcomes 2019 17:92
    Content type: Research Published on:

  2. Endometrial cancer survivors are at an increased risk of poor quality of life outcomes. Physical activity is positively associated with general quality of life in this population, however, little is known abou...

    Authors: Michael C. Robertson, Elizabeth J. Lyons, Jaejoon Song, Matthew Cox-Martin, Yisheng Li, Charles E. Green, Bernardine M. Pinto, Cindy L. Carmack, Carol Harrison, George Baum and Karen M. Basen-Engquist
    Citation: Health and Quality of Life Outcomes 2019 17:91
    Content type: Short report Published on:

  4. Uterine fibroids (UFs) are the most common benign tumors in women. They are likely to cause numerous clinical symptoms, such as pain, menorrhagia, and other obstetric complications in pregnant women. This stud...

    Authors: Wai-Kit Ming, Huailiang Wu, Yanxin Wu, Hanqing Chen, Tian Meng, Yiwei Shen, Ziyu Wang, Xinyu Huang, Weiwei Sun, Tik Sang Chow, Yuan Wang, Wenjing Ding, Haitian Chen, Zhuyu Li and Zilian Wang
    Citation: Health and Quality of Life Outcomes 2019 17:89
    Content type: Research Published on:

  5. Quality of life (QoL) is a multifactorial concept that assesses physical and mental health. We prospectively studied the quality of life of patients undergoing coronary artery bypass graft (CABG) surgery using...

    Authors: Andrea Perrotti, Fiona Ecarnot, Francesco Monaco, Enrica Dorigo, Palmiero Monteleone, Guillaume Besch and Sidney Chocron
    Citation: Health and Quality of Life Outcomes 2019 17:88
    Content type: Research Published on:

  6. Value assessment of vaccination programs against serogroup B invasive meningococcal disease (IMD) is on the agenda of public health authorities. Current evidence on the burden due to IMD is unfit for pinning d...

    Authors: Ole Marten, Florian Koerber, David Bloom, Monika Bullinger, Corinne Buysse, Hannah Christensen, Philippe De Wals, Christian Dohna-Schwake, Philipp Henneke, Markus Kirchner, Markus Knuf, Burkhard Lawrenz, Andrea L. Monteiro, Joseph Patrick Sevilla, Nicolas Van de Velde, Robert Welte…
    Citation: Health and Quality of Life Outcomes 2019 17:87
    Content type: Research Published on:

  7. Patients with age -related hearing loss (ARHL) and their natural caregivers have to confront a disability that produces progressive lifestyle changes. There is an interest in studying the ability of patients a...

    Authors: Sébastien Lazzarotto, Florence Martin, Anne Saint-Laurent, Zeinab Hamidou, Valérie Aghababian, Pascal Auquier and Karine Baumstarck
    Citation: Health and Quality of Life Outcomes 2019 17:86
    Content type: Research Published on:

  8. Ethnic inequalities in oral health among British adults remain largely unexplored. This study explored the role of socioeconomic position (SEP) in explaining ethnic inequalities in oral health; and the consist...

    Authors: Elsa K. Delgado-Angulo, Munisha Mangal and Eduardo Bernabé
    Citation: Health and Quality of Life Outcomes 2019 17:85
    Content type: Research Published on:

  9. Quality of life (QoL) is a patient-reported outcome of increasing importance in the substance use disorder (SUD) treatment field, and impaired QoL may be an important impetus for treatment uptake. Instruments ...

    Authors: Ashley Elizabeth Muller, Svetlana Skurtveit and Thomas Clausen
    Citation: Health and Quality of Life Outcomes 2019 17:84
    Content type: Short report Published on:

  10. Mapping of health-related quality-of-life measures to health utility values can facilitate cost-utility evaluation. Regression-based methods tend to lead to shrinkage of variance. This study aims to map the Me...

    Authors: Yuan Shi, Jennifer Thompson, A. Sarah Walker, Nicholas I. Paton and Yin Bun Cheung
    Citation: Health and Quality of Life Outcomes 2019 17:83
    Content type: Research Published on:

  11. Social relationships (SR) is an important domain of health-related quality of life. We developed and calibrated a novel item bank to measure SR in Singapore, a multi-ethnic city in Southeast Asia.

    Authors: Yu Heng Kwan, Elenore Judy Uy, Dianne Carrol Bautista, Xiaohui Xin, Yunshan Xiao, Geok Ling Lee, Mythily Subramaniam, Janhavi Ajit Vaingankar, Mei Fen Chan, Nisha Kumar, Yin Bun Cheung, Terrance Siang Jin Chua and Julian Thumboo
    Citation: Health and Quality of Life Outcomes 2019 17:82
    Content type: Research Published on:

  12. To estimate the effect of strabismus (squinting) on mental health and health-related quality of life aspects in children and adolescents.

    Authors: Alexander K. Schuster, Heike M. Elflein, Roman Pokora, Martin Schlaud, Franz Baumgarten and Michael S. Urschitz
    Citation: Health and Quality of Life Outcomes 2019 17:81
    Content type: Research Published on:

  13. This study aims to describe the short-term reactogenicity of the AS03-adjuvanted H5N1 vaccine expressed through adverse events (AEs) and quality-adjusted life-day (QALD) scores. The AEs are likely to be short-...

    Authors: B. Standaert, T. Dort, J. Linden, A. Madan, S. Bart, L. Chu, M. S. Hayney, M. Kosinski, R. Kroll, J. Malak, G. Meier, N. Segall and A. Schuind
    Citation: Health and Quality of Life Outcomes 2019 17:80
    Content type: Research Published on:

  14. Oral health-related quality of life (OHRQoL) has important implications for the clinical practice of dentistry and dental research and should contribute to professional judgment about restorative treatments an...

    Authors: Raquel Conceição Ferreira, Ichiro Kawachi, João Gabriel Silva Souza, Fernanda Lamounier Campos, Loliza Luiz Figueiredo Houri Chalub and José Leopoldo Ferreira Antunes
    Citation: Health and Quality of Life Outcomes 2019 17:79
    Content type: Research Published on:

  15. Older patients with end-stage renal disease (ESRD) have experienced diminished quality of life and debilitating symptoms. Conservative management may be a potential treatment option. Currently, limited studies...

    Authors: Qingli Ren, Qifang Shi, Tong Ma, Jing Wang, Qian Li and Xiaomei Li
    Citation: Health and Quality of Life Outcomes 2019 17:78
    Content type: Review Published on:

  16. The purpose of the current study was to determine the final content validation, psychometric characteristics, clinically meaningful improvement, and responder thresholds of the Clostridium difficile infection (CD...

    Authors: George H. Talbot, Leah Kleinman, Evan Davies, Elke Hunsche, Dennis Revicki, Laurie Roberts, Daniel Rosenberg and Carl Erik Nord
    Citation: Health and Quality of Life Outcomes 2019 17:77
    Content type: Research Published on:

  17. Duchenne Muscular Dystrophy (DMD) is the most common genetic neuromuscular disorder in children. This chronic illness may impact the physical, family, social and school life of affected children and their fami...

    Authors: Apirada Thongsing, Surachai Likasitwattanakul and Oranee Sanmaneechai
    Citation: Health and Quality of Life Outcomes 2019 17:76
    Content type: Research Published on:

  18. Modifying lifestyle risk factors for dementia is a public health priority. Motivation for change is integral to the modification of health-related risk behaviours. This study investigates the psychometric prop...

    Authors: Deborah Oliveira, Aimee Aubeeluck, Ed Stupple, Sarang Kim and Martin Orrell
    Citation: Health and Quality of Life Outcomes 2019 17:75
    Content type: Research Published on:

  19. The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) has been shown to be a reliable and valid questionnaire measuring health-related quality of life (HRQoL) in the US sickle cell dis...

    Authors: Owen Cooper, Hayley McBain, Sekayi Tangayi, Paul Telfer, Dimitris Tsitsikas, Anne Yardumian and Kathleen Mulligan
    Citation: Health and Quality of Life Outcomes 2019 17:74
    Content type: Research Published on:

  20. No previous studies have characterized a patient’s experience of rheumatoid arthritis (RA) management in Greece and unmet needs may exist despite a broad range of available treatments. Therefore, we assessed q...

    Authors: Dimitrios T. Boumpas, Prodromos Sidiropoulos, Loukas Settas, Piotr Szczypa, Vassilis Tsekouras and Ana C. Hernandez Daly
    Citation: Health and Quality of Life Outcomes 2019 17:73
    Content type: Research Published on:

  21. Participating in regular physical activity contributes to significant improvements of quality of life (QOL) in adults. Understanding psychosocial factors that influence physical activity and QOL in working adu...

    Authors: Yi Xiao, Hongying Wang, Tao Zhang and Xiaoling Ren
    Citation: Health and Quality of Life Outcomes 2019 17:72
    Content type: Research Published on:

  22. Fatigue is the most common symptom in Systemic Lupus Erythematosus (SLE) patients. Many fatigue instruments have been used in SLE, with Fatigue Severity Scale (FSS) mostly adopted. However, fatigue instruments...

    Authors: Chenchen Feng, Qian He, Yan Wu, Xiaokun Hu, Juan Wu, Xiaoli He and Shuzhen Zhao
    Citation: Health and Quality of Life Outcomes 2019 17:71
    Content type: Research Published on:

  23. Retrospective assessment of pre-injury health-related quality of life (HRQL) is frequently used to measure change from pre- to post-injury HRQL. However, retrospective measurement may be confounded by recall b...

    Authors: Juanita Haagsma, Gouke Bonsel, Mariska de Jongh and Suzanne Polinder
    Citation: Health and Quality of Life Outcomes 2019 17:70
    Content type: Research Published on:

  24. Reducing health inequalities on the basis of social factors has been a key driver in the development of Public Health policies. Health-related quality of life is a global indicator useful to assess health ineq...

    Authors: Arantzazu Arrospide, Mónica Machón, Juan M. Ramos-Goñi, Oliver Ibarrondo and Javier Mar
    Citation: Health and Quality of Life Outcomes 2019 17:69
    Content type: Research Published on:

  25. The EQ-5D-5 L and the SF-12 are the most commonly used generic measures of health-related quality of life among people with arthritis. However, there is little evidence on the extent to which the individual di...

    Authors: Andrews K. Tawiah, Fatima Al Sayah, Arto Ohinmaa and Jeffrey A. Johnson
    Citation: Health and Quality of Life Outcomes 2019 17:68
    Content type: Research Published on:

  26. The WHOQOL-BREF is a widely used questionnaire for measuring quality of life. It is important to establish the measurement equivalence of various language versions of WHOQOL-BREF so that scores from different ...

    Authors: Yin Bun Cheung, Khung Keong Yeo, Kok Joon Chong, Eric Yin Hao Khoo and Hwee Lin Wee
    Citation: Health and Quality of Life Outcomes 2019 17:67
    Content type: Research Published on:

  27. School-based interventions offer the opportunity to increase physical activity, health-related quality of life (HRQOL) and nutritional behaviours, yet methodological limitations hinder current research, partic...

    Authors: Gavin Breslin, Stephen Shannon, Ruth Rafferty, Ben Fitzpatrick, Sarahjane Belton, Wesley O’Brien, Fiona C. Chambers, Tandy Haughey, Donncha Hanna, Richard Gormley, Darryl McCullagh and Deirdre Brennan
    Citation: Health and Quality of Life Outcomes 2019 17:66
    Content type: Research Published on:

  29. In children physical activity has been shown to be associated with health-related quality of life (HRQoL). This study further explores this association for specific characteristics of sports participation, nam...

    Authors: Janet Moeijes, Jooske T. van Busschbach, Thomas H. Wieringa, Jordy Kone, Ruud J. Bosscher and Jos W. R. Twisk
    Citation: Health and Quality of Life Outcomes 2019 17:64
    Content type: Research Published on:

  30. Gout is a common, monosodium urate crystal-driven inflammatory arthritis. Besides its clinical manifestations, patients often also suffer from pain, physical impairment, emotional distress and work productivit...

    Authors: Carly A. Janssen, Martijn A. H. Oude Voshaar, Peter M. ten Klooster, Tim L. Th. A. Jansen, Harald E. Vonkeman and Mart A. F. J. van de Laar
    Citation: Health and Quality of Life Outcomes 2019 17:63
    Content type: Research Published on:

  31. King’s Sarcoidosis Questionnaire (KSQ) is a novel, validated, health-related quality of life questionnaire on sarcoidosis with 5 scales and 29 items. For future multinational observational and interventional s...

    Authors: Erik Farin, Katja Heyduck, Björn Christian Frye, Surinder S. Birring, Joachim Müller-Quernheim and Jonas Christian Schupp
    Citation: Health and Quality of Life Outcomes 2019 17:62
    Content type: Research Published on:

  32. The goal of the research reported here was to understand the patient experience of living with myelofibrosis (MF) and establish content validity of the Modified Myeloproliferative Neoplasm Symptom Assessment D...

    Authors: Ruben A. Mesa, Yun Su, Adrien Woolfson, Josef T. Prchal, Kathleen Turnbull, Elias Jabbour, Robyn Scherber, Alan L. Shields, Meaghan Krohe, Funke Ojo, Farrah Pompilus, Joseph C. Cappelleri and Claire Harrison
    Citation: Health and Quality of Life Outcomes 2019 17:61
    Content type: Research Published on:

  33. To provide a model for Public involvement (PI) in instrument development and other research based on lessons learnt in the co-production of a recently developed mental health patient reported outcome measure c...

    Authors: Andrew Grundy, Anju Devianee Keetharuth, Rosemary Barber, Jill Carlton, Janice Connell, Elizabeth Taylor Buck, Michael Barkham, Thomas Ricketts, Dan Robotham, Diana Rose, John Kay, Rob Hanlon and John Brazier
    Citation: Health and Quality of Life Outcomes 2019 17:60
    Content type: Research Published on:

  34. The aim of this study was to develop and perform cross-cultural validation of a Japanese version of the Adult Social Care Outcomes Toolkit (ASCOT) four-level Self-Completion questionnaire (SCT4) instrument to ...

    Authors: Hiromi Nakamura-Thomas, Mie Morikawa, Yoko Moriyama, Takeru Shiroiwa, Makoto Kyougoku, Kamilla Razik and Juliette Malley
    Citation: Health and Quality of Life Outcomes 2019 17:59
    Content type: Research Published on:

  35. Evidence of quality of life implications of asthma attacks are limited, particularly when measured on a utility scale, which enables calculating Quality-Adjusted Life-Years (QALYs) and comparisons with other h...

    Authors: Christina-Jane Crossman-Barnes, Tracey Sach, Andrew Wilson and Garry Barton
    Citation: Health and Quality of Life Outcomes 2019 17:58
    Content type: Research Published on:

  37. A comprehensive and accurate assessment of pain is critical for successful pain management. However, there is a lack of reliable and valid assessment tools for exploring multidimensional aspects of the chronic...

    Authors: Bernadette Brady, Irena Veljanova, Toni Andary, Troy Southwell and Lucinda Chipchase
    Citation: Health and Quality of Life Outcomes 2019 17:56
    Content type: Research Published on:

  38. The mental well-being of patients with chronic heart failure is likely to influence their health-related quality of life and decrease the utilization of public health resources. This study assessed the mental wel...

    Authors: Aishu Dong, Xiuxia Zhang, Haitao Zhou, Siyi Chen, Wei Zhao, Minmin Wu, Junyi Guo and Wenjian Guo
    Citation: Health and Quality of Life Outcomes 2019 17:55
    Content type: Research Published on:

  39. The existence of psychological distress (PD) during pregnancy is well established. Nevertheless, few studies have analyzed the PD and resilience of mothers and fathers during high-risk pregnancy. This study an...

    Authors: Mercedes Bellido-González, Humbelina Robles-Ortega, María José Castelar-Ríos, Miguel Ángel Díaz-López, José Luís Gallo-Vallejo, María Fernanda Moreno-Galdó and Macarena de los Santos-Roig
    Citation: Health and Quality of Life Outcomes 2019 17:54
    Content type: Research Published on:

  42. Patient-reported outcome measures (PROMs) are important tools in both clinical practice and research. However, no upper extremity PROM to assess physical disability is available in Nepali. The most commonly us...

    Authors: Sudarshan KC, Saurab Sharma, Karen Ginn, Tawfiq Almadi, Hari Subedi and Darren Reed
    Citation: Health and Quality of Life Outcomes 2019 17:51
    Content type: Research Published on:

  43. The aim of this study was to compare QOL among people in India using lower-limb prostheses or orthoses with people without disability. A further aim was to compare subgroups and investigate whether QOL was ass...

    Authors: Lina Magnusson, Ritu Ghosh, Katrine Randbøll Jensen, Katharina Göbel, Jenny Wågberg, Sofia Wallén, Alma Svensson, Rebecka Stavenheim and Gerd Ahlström
    Citation: Health and Quality of Life Outcomes 2019 17:50
    Content type: Research Published on:

  44. The Quality of Life of Short Stature Youth (QoLISSY) questionnaire is a patient- and parent-reported outcome measure assessing health-related quality of life (HRQOL) in short stature youth. This study evaluate...

    Authors: Janika Bloemeke, Neuza Silva, Monika Bullinger, Stefanie Witt, Helmuth-Günther Dörr and Julia Quitmann
    Citation: Health and Quality of Life Outcomes 2019 17:49
    Content type: Research Published on:

  45. The aim of this paper is to find out generic preference-based Short-Form 6 Dimensions (SF-6D) utility scores of smokers and ex-smokers with varying cigarette exposure, with and without respiratory symptoms.

    Authors: Sau-nga Fu, Man-Chi Dao, Carlos King-Ho Wong and Wai-cho Yu
    Citation: Health and Quality of Life Outcomes 2019 17:48
    Content type: Research Published on:

  46. Cold climates traditionally have conferred long sleep duration in the residents in northeast China; however, modern lifestyle reduces sleep duration. In this study, we investigated social-biological factors in...

    Authors: Yaxuan Ren, Yawen Liu, Tingyu Meng, Wenshu Liu, Yichun Qiao, Yulu Gu, Yong Li, Yunkai Liu, Yaqin Yu and Yi Cheng
    Citation: Health and Quality of Life Outcomes 2019 17:47
    Content type: Research Published on:

  48. The family system represents a critical context within which children develop. Although raising a child with a disability may represent a challenge to this dynamic system, research demonstrates that families h...

    Authors: Emily Gardiner, Louise C. Mâsse and Grace Iarocci
    Citation: Health and Quality of Life Outcomes 2019 17:45
    Content type: Research Published on:

  49. Family caregivers of people living with dementia can experience feelings of burden and stress but the concept of sense of coherence has been identified as an important protective trait against the negative imp...

    Authors: Jacki Stansfeld, Martin Orrell, Myrra Vernooij-Dassen and Jennifer Wenborn
    Citation: Health and Quality of Life Outcomes 2019 17:44
    Content type: Research Published on:

  50. The EuroQol Group Five-Dimensional (EQ-5D) instruments have been validated in China for measuring health-related quality of life (HRQoL) and are increasingly being used in health economic studies. However, the...

    Authors: Qiang Yao, Chaojie Liu, Yaoguang Zhang and Ling Xu
    Citation: Health and Quality of Life Outcomes 2019 17:43
    Content type: Research Published on:
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Health and Quality of Life Outcomes

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