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  2. The European DISABKIDS project aims to enhance the Health Related Quality of Life (HRQoL) of children and adolescents with chronic medical conditions and their families. We describe the development of the seve...

    Authors: Rolanda M Baars, Clare I Atherton, Hendrik M Koopman, Monika Bullinger and Mick Power
    Citation: Health and Quality of Life Outcomes 2005 3:70
    Content type: Research Published on:

  3. The QUALIOST® was designed for use with the SF-36 to measure established osteoporosis-specific quality of life (QoL). The reliability (internal consistency and test-retest) and validity of the questionnaire were ...

    Authors: Christine de la Loge, Kate Sullivan, Robert Pinkney, Patrick Marquis, Christian Roux and Pierre Jean Meunier
    Citation: Health and Quality of Life Outcomes 2005 3:69
    Content type: Research Published on:

  4. The Rhinosinusitis Disability Index (RSDI) is a validated measure of health-related quality of life (HRQL) in rhinitis. Responsiveness of the RSDI to changes in health status over time has not been described.

    Authors: Hubert Chen, Patricia P Katz, Stephen Shiboski and Paul D Blanc
    Citation: Health and Quality of Life Outcomes 2005 3:68
    Content type: Research Published on:

  5. The Eye Allergy Patient Impact Questionnaire (EAPIQ) was developed based on a pilot study conducted in the US and focus groups with eye allergy sufferers in Europe. The purpose of this study was to present the...

    Authors: Michael Alexander, William Berger, Patricia Buchholz, John Walt, Caroline Burk, Jeff Lee, Rob Arbuckle and Linda Abetz
    Citation: Health and Quality of Life Outcomes 2005 3:67
    Content type: Research Published on:

  6. In the last 25 years, assessment of orthopaedic intervention has become patient focused, with the development of self-completion patient-centred outcome measures. The Oxford hip score (OHS) is a joint specific...

    Authors: Vikki Wylde, Ian D Learmonth and Victoria J Cavendish
    Citation: Health and Quality of Life Outcomes 2005 3:66
    Content type: Research Published on:

  7. The importance of evaluating the outcomes of health care from the standpoint of the patient is now widely recognized. The purpose of this study is to develop and test a Japanese version of the National Eye Ins...

    Authors: Yoshimi Suzukamo, Tetsuro Oshika, Mitsuko Yuzawa, Yoshihiro Tokuda, Atsuo Tomidokoro, Kotaro Oki, Carol M Mangione, Joseph Green and Shunichi Fukuhara
    Citation: Health and Quality of Life Outcomes 2005 3:65
    Content type: Research Published on:

  8. In adult quality of life (QOL) research, the QOL construct appears to differ from self-rated health status. Although increased QOL continues to be recognized as an important outcome in health promotion and med...

    Authors: Keith J Zullig, Robert F Valois and J Wanzer Drane
    Citation: Health and Quality of Life Outcomes 2005 3:64
    Content type: Research Published on:

  9. Patients with growth hormone deficiency (GHD) frequently report to suffer from an impaired Quality of Life (QoL) and growth hormone (GH) substitution is found to improve this. However, the same test may be use...

    Authors: Jan Berend Deijen, Lucia I Arwert, Joost Witlox and Madeleine L Drent
    Citation: Health and Quality of Life Outcomes 2005 3:63
    Content type: Research Published on:

  10. Quality of life of stoma patients is increasingly being addressed in clinical trials. However, the instruments used in the majority of these studies have not been validated specifically for stoma patients. The...

    Authors: Luis Prieto, Hanne Thorsen and Kristian Juul
    Citation: Health and Quality of Life Outcomes 2005 3:62
    Content type: Research Published on:

  11. Idiopathic pulmonary fibrosis (IPF) is a debilitating lung disease with a survival of only three to five years from the time of diagnosis. Due to a paucity of studies, large gaps remain in our understanding of...

    Authors: Jeffrey J Swigris, Anita L Stewart, Michael K Gould and Sandra R Wilson
    Citation: Health and Quality of Life Outcomes 2005 3:61
    Content type: Research Published on:

  13. Large variations in pain and function are seen over time in subjects at risk for and with radiographic knee osteoarthritis (OA). We hypothesized that this variation may be related not only to knee OA but also ...

    Authors: Przemyslaw T Paradowski, Martin Englund, L Stefan Lohmander and Ewa M Roos
    Citation: Health and Quality of Life Outcomes 2005 3:59
    Content type: Research Published on:

  14. The age limit for some adult asthma clinical trials has recently been lowered to 12 years. In this study we have made minor modifications to the standardised version of the adult Asthma Quality of Life Questio...

    Authors: Elizabeth F Juniper, Klas Svensson, Ann-Christin Mörk and Elisabeth Ståhl
    Citation: Health and Quality of Life Outcomes 2005 3:58
    Content type: Research Published on:

  15. Most tools for estimating utilities use clinical trial data from general health status models, such as the 36-Item Short-Form Health Survey (SF-36). A disease-specific model may be more appropriate. The object...

    Authors: Leslie A Lenert, Marcia FT Rupnow and Christine Elnitsky
    Citation: Health and Quality of Life Outcomes 2005 3:57
    Content type: Research Published on:

  16. The aim of this study was to evaluate the association between health-related quality of life (HRQL) and disease severity using lung function measures.

    Authors: Elisabeth Ståhl, Anne Lindberg, Sven-Arne Jansson, Eva Rönmark, Klas Svensson, Fredrik Andersson, Claes-Göran Löfdahl and Bo Lundbäck
    Citation: Health and Quality of Life Outcomes 2005 3:56
    Content type: Research Published on:

  17. Quality of life (QoL) is now established as an important outcome for evaluating the impact of disease, and for assessing the efficacy of treatments. However, individuals change with time and the basis on which...

    Authors: Lena Ring, Stefan Höfer, Frank Heuston, David Harris and Ciaran A O'Boyle
    Citation: Health and Quality of Life Outcomes 2005 3:55
    Content type: Research Published on:

  18. We are reporting on the development of a psychosocial screening tool for cancer patients. The tool was to be brief, at a relatively low reading level, capture psychological variables relevant to distress and h...

    Authors: Wolfgang Linden, Dahyun Yi, Maria Cristina Barroetavena, Regina MacKenzie and Richard Doll
    Citation: Health and Quality of Life Outcomes 2005 3:54
    Content type: Research Published on:

  19. Quality of life is a multidimensional construct composed of functional, physical, emotional, social and spiritual well-being. In order to examine how patients with severe diseases view the impact of spirituali...

    Authors: Arndt Büssing, Peter F Matthiessen and Thomas Ostermann
    Citation: Health and Quality of Life Outcomes 2005 3:53
    Content type: Research Published on:

  21. Interventions to improve care for persons with chronic medical conditions often use quality of life (QOL) outcomes. These outcomes may be affected by coexisting (comorbid) chronic conditions as well as the ind...

    Authors: Elizabeth A Bayliss, Jennifer L Ellis and John F Steiner
    Citation: Health and Quality of Life Outcomes 2005 3:51
    Content type: Research Published on:

  22. Sickle cell disease (SCD) is a chronic disease associated with high degrees of morbidity and increased mortality. Health-related quality of life (HRQOL) among adults with sickle cell disease has not been widel...

    Authors: Donna K McClish, Lynne T Penberthy, Viktor E Bovbjerg, John D Roberts, Imoigele P Aisiku, James L Levenson, Susan D Roseff and Wally R Smith
    Citation: Health and Quality of Life Outcomes 2005 3:50
    Content type: Research Published on:

  23. The aim of this study was to assess the possible associations between female androgenetic alopecia (AGA), insulin resistance and health-related quality of life (HRQOL)-linked factors in women. We hypothesized ...

    Authors: Päivi Hirsso, Ulla Rajala, Mauri Laakso, Liisa Hiltunen, Pirjo Härkönen and Sirkka Keinänen-Kiukaanniemi
    Citation: Health and Quality of Life Outcomes 2005 3:49
    Content type: Research Published on:

  24. The five-question Mental Health Inventory (MHI-5) is a brief questionnaire that can be used to screen for depressive symptoms. Removing the 2 anxiety-related items from the MHI-5 yields the MHI-3. We assessed ...

    Authors: Shin Yamazaki, Shunichi Fukuhara and Joseph Green
    Citation: Health and Quality of Life Outcomes 2005 3:48
    Content type: Research Published on:

  26. The International Classification of Functioning, Disability and Health (ICF) was published by the World Health Organization (WHO) to standardize descriptions of health and disability. Little is known about the...

    Authors: Jiro Okochi, Sakiko Utsunomiya and Tai Takahashi
    Citation: Health and Quality of Life Outcomes 2005 3:46
    Content type: Research Published on:

  28. Breast hypertrophy is associated with clinically important morbidity. A prospective study was conducted to assess the change in health-related quality of life (HRQL) following breast reduction mammoplasty. Thi...

    Authors: Achilleas Thoma, Sheila Sprague, Karen Veltri, Eric Duku and William Furlong
    Citation: Health and Quality of Life Outcomes 2005 3:44
    Content type: Research Published on:

  30. To validate a questionnaire to assess the activity impairment associated with uncomplicated urinary tract infection (uUTI).

    Authors: Diane J Wild, Darren J Clayson, Karen Keating and Kathleen Gondek
    Citation: Health and Quality of Life Outcomes 2005 3:42
    Content type: Research Published on:

  31. To determine the psychometric properties of the Hospital Anxiety and Depression Scale (HADS) in patients with breast cancer and determine the suitability of the instrument for use with this clinical group.

    Authors: Jacqui Rodgers, Colin R Martin, Rachel C Morse, Kate Kendell and Mark Verrill
    Citation: Health and Quality of Life Outcomes 2005 3:41
    Content type: Research Published on:

  32. Quality of life (QoL) of patients has become a central evaluation parameter that also acts as an aid for decisions related to treatment strategies particularly for patients with chronic illnesses. In Germany, ...

    Authors: Thomas Ostermann, Arndt Büssing, Andre-Michael Beer and Peter F Matthiessen
    Citation: Health and Quality of Life Outcomes 2005 3:40
    Content type: Research Published on:

  33. Although patients with chronic hepatitis C (CHC) have been found to have reduced quality of life, little is known about how other characteristics affect their quality of life. The purpose of this study was to ...

    Authors: Sara H Olson, Sandy Iyer, Jennifer Scott, Orry Erez, Shelby Samuel, Temima Markovits, Myron Schwartz, Charlene Toro, Maya Gambarin-Gelwan and Robert C Kurtz
    Citation: Health and Quality of Life Outcomes 2005 3:39
    Content type: Research Published on:

  35. In methodological studies and outcomes research, questionnaires often comprise several health-related quality of life (HRQoL) measures. Previous psychological studies have suggested that changing the sequentia...

    Authors: Yin-Bun Cheung, Celestine Lim, Cynthia Goh, Julian Thumboo and Joseph Wee
    Citation: Health and Quality of Life Outcomes 2005 3:37
    Content type: Research Published on:

  36. The Dermatology Quality Life Index (DLQI) has seen widespread use as a health-related quality of life measure for a variety of dermatological diseases. The purpose of this study was to estimate the minimal imp...

    Authors: Richard Shikiar, Gale Harding, Michael Leahy and Richard D Lennox
    Citation: Health and Quality of Life Outcomes 2005 3:36
    Content type: Research Published on:

  37. Chronic liver disease especially liver cirrhosis is one of the medical problems that substantially reduces the quality of life of its victims. Because of the chronic and irreversible nature of the disease, it ...

    Authors: Mitra Zandi, Mohsen Adib-Hajbagheri, Robabeh Memarian, Anooshiravan Kazem Nejhad and Seyed Moayed Alavian
    Citation: Health and Quality of Life Outcomes 2005 3:35
    Content type: Research Published on:

  38. Health-related quality of life (HRQOL) measurement has emerged as an important health outcome in clinical trials, clinical practice improvement strategies, and healthcare services research and evaluation. HRQO...

    Authors: James W Varni, Tasha M Burwinkle and Mariella M Lane
    Citation: Health and Quality of Life Outcomes 2005 3:34
    Content type: Review Published on:

  39. Whether responsiveness represents a measurement property of health-related quality of life (HRQL) instruments that is distinct from reliability and validity is an issue of debate. We addressed the claims of a ...

    Authors: Milo A Puhan, Dianne Bryant, Gordon H Guyatt, Diane Heels-Ansdell and Holger J Schünemann
    Citation: Health and Quality of Life Outcomes 2005 3:33
    Content type: Research Published on:

  40. Protease inhibitor based antiretroviral therapy (PI-ART) was introduced in 1996 and has greatly reduced the incidence of HIV-related morbidity and mortality in the industrialised world. PI-ART would thus be ex...

    Authors: Lars E Eriksson, Göran A Bratt, Eric Sandström and Gun Nordström
    Citation: Health and Quality of Life Outcomes 2005 3:32
    Content type: Research Published on:

  41. Living with a chronic disease, such as primary antibody deficiency, will often have consequences for quality of life. Previous quality-of-life studies in primary antibody deficiency patients have been limited ...

    Authors: Hanne Marie Høybråten Sigstad, Asbjørg Stray-Pedersen and Stig S Frøland
    Citation: Health and Quality of Life Outcomes 2005 3:31
    Content type: Research Published on:

  42. Most research and treatment of post-breast cancer chronic pain has focused on local or regional pain problems in the operated area. The purpose of this pilot study was to compare and contrast the pain characte...

    Authors: Carol S Burckhardt and Kim D Jones
    Citation: Health and Quality of Life Outcomes 2005 3:30
    Content type: Research Published on:

  44. In spite of the fact that self-rated health is such an important factor, little is known about the aetiological background to poor perceived health and also less is known about the impact of life satisfaction ...

    Authors: Ahmad Al-Windi
    Citation: Health and Quality of Life Outcomes 2005 3:28
    Content type: Research Published on:

  45. The prevalence of self-reported low vision (LV) and blindness, and their associated disabilities, handicaps and socio-economic consequences for individuals living in institutions are poorly documented.

    Authors: Antoine Pierre Brézin, Antoine Lafuma, Francis Fagnani, Mounir Mesbah and Gilles Berdeaux
    Citation: Health and Quality of Life Outcomes 2005 3:27
    Content type: Research Published on:

  46. This paper describes the development of the Chinese Quality of Life Instrument (ChQOL) which is a self-report health status instrument. Chinese Medicine relies very much on asking subjective feelings of patien...

    Authors: Kwok-fai Leung, Feng-bin Liu, Li Zhao, Ji-qian Fang, Kelvin Chan and Li-zhu Lin
    Citation: Health and Quality of Life Outcomes 2005 3:26
    Content type: Research Published on:

  47. The MacDQoL is an individualised measure of the impact of macular degeneration (MD) on quality of life (QoL). There is preliminary evidence of its psychometric properties and sensitivity to severity of MD. The...

    Authors: Jan Mitchell, James S Wolffsohn, Alison Woodcock, Stephen J Anderson, Carolyn V McMillan, Timothy ffytche, Martin Rubinstein, Winfried Amoaku and Clare Bradley
    Citation: Health and Quality of Life Outcomes 2005 3:25
    Content type: Research Published on:

  48. Anogenital warts are the most easily recognized sign of genital Human Papilloma Virus infection. The objective was to develop a short, valid and reliable questionnaire to measure Health Related Quality of Life...

    Authors: Xavier Badia, Jose Antonio Colombo, Nuria Lara, M Angels Llorens, Luis Olmos, Miguel Sainz de los Terreros, Jose Antonio Varela and Juan Jose Vilata
    Citation: Health and Quality of Life Outcomes 2005 3:24
    Content type: Research Published on:

  50. Health related quality of life (HRQL) has been recognised as an important paediatric outcome measurement. One of the more promising measures to emerge in recent years is the Pediatric Quality Of Life Inventory...

    Authors: Penney Upton, Christine Eiser, Ivy Cheung, Hayley A Hutchings, Meriel Jenney, Alison Maddocks, Ian T Russell and John G Williams
    Citation: Health and Quality of Life Outcomes 2005 3:22
    Content type: Research Published on:
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Health and Quality of Life Outcomes

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