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  1. Studies that compare health-related quality of life (HRQOL) and other patient-reported outcomes in different populations rest on the assumption that the measure has equivalent psychometric properties across gr...

    Authors: Lisa M Lix, Beliz Acan Osman, Jonathan D Adachi, Tanveer Towheed, Wilma Hopman, K Shawn Davison and William D Leslie
    Citation: Health and Quality of Life Outcomes 2012 10:29
    Content type: Short report Published on:

  2. Many patients with chronic illness are limited in their physical activities. This systematic review evaluates the content and format of patient-reported outcome (PRO) questionnaires that measure physical activ...

    Authors: Kate Williams, Anja Frei, Anders Vetsch, Fabienne Dobbels, Milo A Puhan and Katja Rüdell
    Citation: Health and Quality of Life Outcomes 2012 10:28
    Content type: Research Published on:

  3. Item response theory (IRT) is extensively used to develop adaptive instruments of health-related quality of life (HRQoL). However, each IRT model has its own function to estimate item and category parameters, ...

    Authors: Peyman Jafari, Zahra Bagheri, Seyyed Mohamad Taghi Ayatollahi and Zahra Soltani
    Citation: Health and Quality of Life Outcomes 2012 10:27
    Content type: Research Published on:

  4. Irritable bowel syndrome (IBS) and inflammatory bowel disease (IBD) are chronic conditions affecting millions of individuals in the United States. The symptoms are well-documented and can be debilitating. How ...

    Authors: Jennifer B McCormick, Rachel R Hammer, Ruth M Farrell, Gail Geller, Katherine M James, Edward V Loftus Jr, Mary Beth Mercer, Jon C Tilburt and Richard R Sharp
    Citation: Health and Quality of Life Outcomes 2012 10:25
    Content type: Research Published on:

  5. The Achilles tendon Total Rupture Score was developed by a research group in 2007 in response to the need for a patient reported outcome measure for this patient population. Beyond this original development pa...

    Authors: Rebecca S Kearney, Juul Achten, Sarah E Lamb, Nicholas Parsons and Matthew L Costa
    Citation: Health and Quality of Life Outcomes 2012 10:24
    Content type: Research Published on:

  6. Unbiased and frank discussion of study limitations by authors represents a crucial part of the scientific discourse and progress. In today's culture of publishing many authors or scientific teams probably bala...

    Authors: Milo A Puhan, Elie A Akl, Dianne Bryant, Feng Xie, Giovanni Apolone and Gerben ter Riet
    Citation: Health and Quality of Life Outcomes 2012 10:23
    Content type: Commentary Published on:

  7. Pediatric self-report should be considered the standard for measuring patient reported outcomes (PRO) among children. However, circumstances exist when the child is too young, cognitively impaired, or too ill ...

    Authors: Debra E Irwin, Heather E Gross, Brian D Stucky, David Thissen, Esi Morgan DeWitt, Jin Shei Lai, Dagmar Amtmann, Leyla Khastou, James W Varni and Darren A DeWalt
    Citation: Health and Quality of Life Outcomes 2012 10:22
    Content type: Research Published on:

  8. The adult social care outcomes toolkit (ASCOT) includes a preference-weighted measure of social care-related quality of life for use in economic evaluations. ASCOT has eight attributes: personal cleanliness an...

    Authors: Juliette N Malley, Ann-Marie Towers, Ann P Netten, John E Brazier, Julien E Forder and Terry Flynn
    Citation: Health and Quality of Life Outcomes 2012 10:21
    Content type: Research Published on:

  9. Health utility combines health related quality of life and mortality to produce a generic outcome measure reflecting both morbidity and mortality. It has not been widely used as an outcome measure in evaluatio...

    Authors: Steve W Goodacre, Richard W Wilson, Mike Bradburn, Martina Santarelli and Jon P Nicholl
    Citation: Health and Quality of Life Outcomes 2012 10:20
    Content type: Research Published on:

  10. International guidelines on type 1 diabetes advocate routine screening of health-related quality of life (HRQOL). DISABKIDS questionnaires are the first instruments developed across cultures and nations to pro...

    Authors: Dag Helge Frøisland, Trond Markestad, Tore Wentzel-Larsen, Torild Skrivarhaug, Knut Dahl-Jørgensen and Marit Graue
    Citation: Health and Quality of Life Outcomes 2012 10:19
    Content type: Research Published on:

  11. Shift workers may be at risk of different diseases. In order to assess cardiometabolic risk in shift workers, a cross-sectional study was performed among active workers.

    Authors: György Jermendy, Judit Nádas, Ilona Hegyi, István Vasas and Tibor Hidvégi
    Citation: Health and Quality of Life Outcomes 2012 10:18
    Content type: Research Published on:

  12. Measurement of treatment satisfaction in diabetes is important as it has been shown to be associated with positive outcomes, reduced disease cost and better health. The aim of this study was to assess the cons...

    Authors: Nick Kontodimopoulos, Eleni Arvanitaki, Vassilis H Aletras and Dimitris Niakas
    Citation: Health and Quality of Life Outcomes 2012 10:17
    Content type: Research Published on:

  13. The Berne Convention and the national laws on intellectual property fully apply to PRO instruments. The identification of and access to an original PRO instrument is often associated with copyright ownership. ...

    Authors: Caroline Anfray, Marie-Pierre Emery, Katrin Conway and Catherine Acquadro
    Citation: Health and Quality of Life Outcomes 2012 10:16
    Content type: Letter to the Editor Published on:

  14. The study attempted to explore the quality of life (QoL) of Chinese caregivers with mentally ill relatives. It also aimed to examine the differential roles of caregiving burdens, caregiver characteristics, and...

    Authors: Daniel Fu Keung Wong, Angus Yuk Kit Lam, Sau Kam Chan and Shuk Fan Chan
    Citation: Health and Quality of Life Outcomes 2012 10:15
    Content type: Research Published on:

  16. Adolescents and young adult (AYA) cancer survivors may have unique physical, psychological and social needs due to their cancer occurring at a critical phase of development. The aim of this study was to develo...

    Authors: Tara Clinton-McHarg, Mariko Carey, Rob Sanson-Fisher, Catherine D'Este and Anthony Shakeshaft
    Citation: Health and Quality of Life Outcomes 2012 10:13
    Content type: Research Published on:

  17. Quality of life (QOL) is an important measure in the management of Irritable Bowel Syndrome (IBS). Controversy exists in the findings of studies evaluating QOL in IBS subtypes, and little is known about this i...

    Authors: Raika Jamali, Arsia Jamali, Maryam Poorrahnama, Abdollah Omidi, Bardia Jamali, Neda Moslemi, Reza Ansari, Shahab Dolatshahi and Naser Ebrahimi Daryani
    Citation: Health and Quality of Life Outcomes 2012 10:12
    Content type: Research Published on:

  18. There are a significant number of Turkish speaking immigrants living in London. Their special health issues including women's health, mental health, and alcohol and smoking habits has been assessed. The aim of...

    Authors: Kenan Topal, Erhan Eser, Ismail Sanberk, Elizabeth Bayliss and Esra Saatci
    Citation: Health and Quality of Life Outcomes 2012 10:11
    Content type: Research Published on:

  19. Discrepancy between self-reports and parent-proxy reports of adolescent health-related quality of life (HRQoL) has been repeatedly acknowledged in the literature as the proxy problem. However, little is known ...

    Authors: Jane NT Sattoe, AnneLoes van Staa and Henriëtte A Moll
    Citation: Health and Quality of Life Outcomes 2012 10:10
    Content type: Research Published on:

  20. The 30-item Self-Management Ability Scale (SMAS) measures self-management abilities (SMA). Objectives of this study were to (1) validate the SMAS among older people shortly after hospitalisation and (2) shorte...

    Authors: Jane M Cramm, Mathilde MH Strating, Paul L de Vreede, Nardi Steverink and Anna P Nieboer
    Citation: Health and Quality of Life Outcomes 2012 10:9
    Content type: Research Published on:

  23. The objective this study was to investigate the influence of clinical conditions, socioeconomic status, home environment, subjective perceptions of parents and schoolchildren about general and oral health on s...

    Authors: Janice S Paula, Isabel CG Leite, Anderso B Almeida, Glaucia MB Ambrosano, Antônio C Pereira and Fábio L Mialhe
    Citation: Health and Quality of Life Outcomes 2012 10:6
    Content type: Research Published on:

  24. Individuals connected to supportive social networks have better general and oral health quality of life. The objective of this study was to assess whether there were differences in oral health related quality ...

    Authors: Gabriela A Lamarca, Maria do C Leal, Anna TT Leao, Aubrey Sheiham and Mario V Vettore
    Citation: Health and Quality of Life Outcomes 2012 10:5
    Content type: Research Published on:

  25. A validated instrument to assess the effects of chronic cough on health status in patients with chronic obstructive pulmonary disease (COPD) is currently not available. The Leicester Cough Questionnaire (LCQ) ...

    Authors: Farida F Berkhof, Lisenka N Boom, Nynke E ten Hertog, Steven M Uil, Huib AM Kerstjens and Jan WK van den Berg
    Citation: Health and Quality of Life Outcomes 2012 10:4
    Content type: Research Published on:

  26. This study aimed to investigate the reliability and validity of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™ 4.0) Generic Core Scales in children.

    Authors: Parisa Amiri, Ghazaleh Eslamian, Parvin Mirmiran, Niloofar Shiva, Mohammad Asghari Jafarabadi and Fereidoun Azizi
    Citation: Health and Quality of Life Outcomes 2012 10:3
    Content type: Research Published on:

  27. Hierarchical scales are very useful in clinical practice due to their ability to discriminate precisely between individuals, and the original English version of the Myocardial Infarction Dimensional Assessment...

    Authors: Roger Watson, Wenru Wang, Chantal F Ski and David R Thompson
    Citation: Health and Quality of Life Outcomes 2012 10:2
    Content type: Short report Published on:

  28. Premenstrual disorders usually refer to premenstrual syndrome (PMS) and premenstrual dysphoric disorder (PMDD). This study was designed to evaluate health-related quality of life (HRQOL) in a sample of Iranian...

    Authors: Mahin Delara, Fazlollah Ghofranipour, Parviz Azadfallah, Sedigheh Sadat Tavafian, Anoushirvan Kazemnejad and Ali Montazeri
    Citation: Health and Quality of Life Outcomes 2012 10:1
    Content type: Short report Published on:

  30. In Turkey, formal pre-primary education for children 5- 6 years old provides the ideal setting for school-based oral health promotion programs and oral health care services. To develop effective oral health pr...

    Authors: Kadriye Peker, Ömer Uysal and Gülçin Bermek
    Citation: Health and Quality of Life Outcomes 2011 9:118
    Content type: Research Published on:

  31. The aim of the present study was to identify the physical fitness (PF) tests of a multi-component battery more related to the perception of problems in each dimension of the health-related quality of life (HRQ...

    Authors: Pedro R Olivares, Narcis Gusi, Josue Prieto and Miguel A Hernandez-Mocholi
    Citation: Health and Quality of Life Outcomes 2011 9:117
    Content type: Research Published on:

  32. Capturing dimensions of physical activity relevant to patients may provide a unique perspective for clinical studies of chronically ill patients. However, the quality of the development of existing instruments...

    Authors: Anja Frei, Kate Williams, Anders Vetsch, Fabienne Dobbels, Laura Jacobs, Katja Rüdell and Milo A Puhan
    Citation: Health and Quality of Life Outcomes 2011 9:116
    Content type: Research Published on:

  33. Limited evidence exists on the determinants of quality of life (QoL) specific to adults with type 1 diabetes (T1D). Further, it appears no study has compared the determinants of QoL between T1D and type 2 diab...

    Authors: Ikuyo Imayama, Ronald C Plotnikoff, Kerry S Courneya and Jeffrey A Johnson
    Citation: Health and Quality of Life Outcomes 2011 9:115
    Content type: Research Published on:

  34. The Individualised Neuromuscular Quality of Life (INQoL) questionnaire is a published muscle disease specific measure of QoL that has been validated using both qualitative and quantitative methods in a United ...

    Authors: Reza Sadjadi, Kelly A Vincent, Alison J Carr, Jessica Walburn, Victoria L Brooks, Shree Pandya, John T Kissel, Carlayne E Jackson and Michael R Rose
    Citation: Health and Quality of Life Outcomes 2011 9:114
    Content type: Research Published on:

  35. To investigate the impact of pseudoxanthoma elasticum (PXE), a rare hereditary disease of concurrent vision impairment (VI) and cardiovascular complications (CVCs), on vision-related (VRQoL) and health-related...

    Authors: Robert P Finger, Eva Fenwick, Manjula Marella, Peter Charbel Issa, Hendrik PN Scholl, Frank G Holz and Ecosse L Lamoureux
    Citation: Health and Quality of Life Outcomes 2011 9:113
    Content type: Research Published on:

  36. The association between disease markers and health status (HS) overtime is unclear. The aim of this study was to verify the predictors of HS at baseline and after three years in Chronic Obstructive Pulmonary D...

    Authors: Renata Ferrari, Suzana E Tanni, Laura MO Caram, Cristiane R Naves and Irma Godoy
    Citation: Health and Quality of Life Outcomes 2011 9:112
    Content type: Research Published on:

  37. To develop and validate a comprehensive patient-reported outcomes instrument focusing on the impact of dry eye on everyday life (IDEEL).

    Authors: Linda Abetz, Krithika Rajagopalan, Polyxane Mertzanis, Carolyn Begley, Rod Barnes and Robin Chalmers
    Citation: Health and Quality of Life Outcomes 2011 9:111
    Content type: Research Published on:

  38. Type 2 diabetes can seriously affect patients' health-related quality of life and their self-rated health. Most often, evaluation of diabetes interventions assess effects on glycemic control with little consid...

    Authors: Eva S Vadstrup, Anne Frølich, Hans Perrild, Eva Borg and Michael Røder
    Citation: Health and Quality of Life Outcomes 2011 9:110
    Content type: Research Published on:

  39. The current international interest in well-being indicators among governmental agencies means that many quality of life scales are potential components of such national indicator sets. Measuring well-being in ...

    Authors: Robert L Grant and Ann Bowling
    Citation: Health and Quality of Life Outcomes 2011 9:109
    Content type: Short report Published on:

  40. To investigate the association between oral health literacy (OHL) and oral health-related quality of life (OHRQoL) and explore the racial differences therein among a low-income community-based group of female ...

    Authors: Kimon Divaris, Jessica Y Lee, A Diane Baker and William F Vann Jr
    Citation: Health and Quality of Life Outcomes 2011 9:108
    Content type: Research Published on:

  41. It has been shown that different symptoms or symptom combinations of neuropathic pain (NeP) may correspond to different mechanistic backgrounds and respond differently to treatment. The Neuropathic Pain Sympto...

    Authors: Daniel Ciampi de Andrade, Karine ASL Ferreira, Carine M Nishimura, Lyn T Yeng, Abrahão F Batista, Katia de Sá, Joaci Araujo, Patrick RNAG Stump, Helena H Kaziyama, Ricardo Galhardoni, Erich T Fonoff, Gerson Ballester, Telma Zakka, Didier Bouhassira and Manoel J Teixeira
    Citation: Health and Quality of Life Outcomes 2011 9:107
    Content type: Research Published on:

  42. To evaluate the validity of cancer-specific and generic preference-based instruments to discriminate across different measures of cancer severities.

    Authors: Paulos Teckle, Stuart Peacock, Helen McTaggart-Cowan, Kim van der Hoek, Stephen Chia, Barb Melosky and Karen Gelmon
    Citation: Health and Quality of Life Outcomes 2011 9:106
    Content type: Research Published on:

  43. It is important to monitor health related quality of life in order to determine the efficacy of interventions and physical functioning of patients with cystic fibrosis in their daily activities. There is no a ...

    Authors: Abebaw M Yohannes, Mary Dodd, Julie Morris and Kevin Webb
    Citation: Health and Quality of Life Outcomes 2011 9:105
    Content type: Research Published on:

  44. The aim of this study was to measure health related quality of life (HRQOL) in Iranian children with type 1 diabetes and to test the psychometric properties of the Persian version of the PedsQL™ 4.0 Generic Co...

    Authors: Peyman Jafari, Elham Forouzandeh, Zahra Bagheri, Zohreh Karamizadeh and Keivan Shalileh
    Citation: Health and Quality of Life Outcomes 2011 9:104
    Content type: Research Published on:

  45. The Pediatric Quality of Life Inventory (PedsQL) is widely used instrument to measure pediatric health-related quality of life (HRQOL) for children aged 2 to 18 years. The purpose of the current study was to i...

    Authors: Yi Ji, Siyuan Chen, Kai Li, Nong Xiao, Xue Yang, Shan Zheng and Xianmin Xiao
    Citation: Health and Quality of Life Outcomes 2011 9:103
    Content type: Research Published on:

  46. The aim of this study is to quantify the level of agreement between self-reporting and proxy-assessment of children's health-related quality of life using KINDL-R in a large population based study in Germany a...

    Authors: Ute Ellert, Ulrike Ravens-Sieberer, Michael Erhart and Bärbel-Maria Kurth
    Citation: Health and Quality of Life Outcomes 2011 9:102
    Content type: Research Published on:

  47. The objective of this research was to develop a disease-specific measure for fatigue in patients with motor neurone disease (MND) by generating data that would fit the Rasch measurement model. Fatigue was defi...

    Authors: Chris J Gibbons, Roger J Mills, Everard W Thornton, John Ealing, John D Mitchell, Pamela J Shaw, Kevin Talbot, A Tennant and Carolyn A Young
    Citation: Health and Quality of Life Outcomes 2011 9:101
    Content type: Research Published on:

  48. To investigate the role of three distinct symptoms of heart-focused anxiety (cardio-protective avoidance, heart-focused attention, and fear about heart sensations) in relation to general anxiety, depression and p...

    Authors: Anniken Hamang, Geir E Eide, Berit Rokne, Karin Nordin and Nina Øyen
    Citation: Health and Quality of Life Outcomes 2011 9:100
    Content type: Research Published on:

  49. The aim of this study was to systematically review the content validity and measurement properties of all physical function (PF) scales which are currently validated for use with patients with rheumatoid arthr...

    Authors: Martijn AH Oude Voshaar, Peter M ten Klooster, Erik Taal and Mart AFJ van de Laar
    Citation: Health and Quality of Life Outcomes 2011 9:99
    Content type: Research Published on:

  50. Deep infiltrating endometriosis (DIE) can affect importantly patients' quality of life (QOL). The aim of this study is to evaluate the impact of the laparoscopic management of DIE on QOL after six months from ...

    Authors: Mohamed Mabrouk, Giulia Montanari, Manuela Guerrini, Gioia Villa, Serena Solfrini, Claudia Vicenzi, Giuseppe Mignemi, Letizia Zannoni, Clarissa Frasca, Nadine Di Donato, Chiara Facchini, Simona Del Forno, Elisa Geraci, Giulia Ferrini, Diego Raimondo, Stefania Alvisi…
    Citation: Health and Quality of Life Outcomes 2011 9:98
    Content type: Research Published on:
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Health and Quality of Life Outcomes

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