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  1. To examine the current literature on the impact of patients' expectations on treatment outcomes or final patient satisfaction and to identify the theoretical frameworks, study designs and measurement instrumen...

    Authors: Jie Yao, Hua Tang, Xiao-Li Gao, Colman McGrath and Nikos Mattheos
    Citation: Health and Quality of Life Outcomes 2014 12:153
  2. Quality of life (QoL) is a well-established outcome measure. However, in contrast to adult obsessive-compulsive disorder (OCD), little is known about QoL in children with OCD. This study aimed to assess QoL, s...

    Authors: Bernhard Weidle, Thomas Jozefiak, Tord Ivarsson and Per Hove Thomsen
    Citation: Health and Quality of Life Outcomes 2014 12:152
  3. Previous work using Mokken scaling analysis with the SF-36 has found subscales appearing to show excellent Mokken scaling properties. However, the values of scalability of the subscales are very large, raising...

    Authors: Roger Watson, Wenru Wang and David R Thompson
    Citation: Health and Quality of Life Outcomes 2014 12:149
  4. It has been reported that valuation of health states that are close to death, such as the most severe health state, can be affected by health state valuation procedure, and their utility values are difficult t...

    Authors: Mihir Gandhi, Julian Thumboo, Hwee-Lin Wee, Nan Luo and Yin-Bun Cheung
    Citation: Health and Quality of Life Outcomes 2014 12:161
  5. The primary objective was to enhance the content coverage of some of the pediatric self-report item banks for ages 8-17 years from the National Institutes of Health (NIH) Patient Reported Outcomes Measurement ...

    Authors: Hally Quinn, David Thissen, Yang Liu, Brooke Magnus, Jin-Shei Lai, Dagmar Amtmann, James W Varni, Heather E Gross and Darren A DeWalt
    Citation: Health and Quality of Life Outcomes 2014 12:160
  6. Evaluate baseline factors that may explain the influence of study site on decisional conflict (DC) in men from the Personal Patient Profile: Prostate (P3P) randomized trial.

    Authors: Meghan L Underhill, Fangxin Hong and Donna L Berry
    Citation: Health and Quality of Life Outcomes 2014 12:159
  7. In recent years, several questionnaires have been developed for the assessment of foot health and its impact on quality of life. In order for these tools to be useful outcome measures in clinical trials, their...

    Authors: Hylton B Menz, Maria Auhl, Sonja Ristevski, Nicoletta Frescos and Shannon E Munteanu
    Citation: Health and Quality of Life Outcomes 2014 12:158
  8. Several preference-based health-related quality of life (HRQoL) instruments have been published and widely used in different populations. However no consensus has emerged regarding the most appropriate instrum...

    Authors: Jing Wu, Yuerong Han, Fei-Li Zhao, Jin Zhou, Zhijun Chen and He Sun
    Citation: Health and Quality of Life Outcomes 2014 12:156
  9. Achondroplasia, Duchenne muscular dystrophy, and osteogenesis imperfecta are among the most frequent rare genetic disorders affecting the musculoskeletal system in children. Rare genetic disorders are severely...

    Authors: Maman Joyce Dogba, Frank Rauch, Erin Douglas and Christophe Bedos
    Citation: Health and Quality of Life Outcomes 2014 12:151
  10. Type 2 diabetes (T2D) decreases health-related quality of life, but there is a lack of information about the health status of people in pre-diabetic states. However, information on health utility weights (HUWs...

    Authors: Anne Neumann, Olaf Schoffer, Fredrik Norström, Margareta Norberg, Stefanie J Klug and Lars Lindholm
    Citation: Health and Quality of Life Outcomes 2014 12:150
  11. Fibromyalgia diagnosis is a challenging and long process, especially among primary care physicians (PCPs), because of symptom heterogeneity, co-morbidities and clinical overlap with other disorders. The purpos...

    Authors: Ralf Baron, Serge Perrot, Isabelle Guillemin, Cayetano Alegre, Carla Dias-Barbosa, Ernest Choy, Héléne Gilet, Giorgio Cruccu, Jules Desmeules, Joëlle Margaux, Selwyn Richards, Eric Serra, Michael Spaeth and Benoit Arnould
    Citation: Health and Quality of Life Outcomes 2014 12:128
  12. The objectives of the study were (1) to validate the Chinese version of Health Utilities Index (HUI-Ch); (2) to examine the Health-related Quality of Life (HRQoL) of Chinese subjects with Down syndrome (DS); a...

    Authors: Winnie Ka Yan Mok, Wilfred Hing-Sang Wong, Gary Tsz Kin Mok, Yoyo Wing Yiu Chu, Frederick Ka Wing Ho, Chun Bong Chow, Patrick Ip and Brian Hon-Yin Chung
    Citation: Health and Quality of Life Outcomes 2014 12:144
  13. Generic utility instruments may not fully capture the impact and consequences of urinary problems. Condition-specific preference-based measures, developed from previously validated disease-specific patient-rep...

    Authors: Jesús Cuervo, Nacho Castejón, Kristin M Khalaf, Catherine Waweru, Denise Globe and Donald L Patrick
    Citation: Health and Quality of Life Outcomes 2014 12:147
  14. The brief version of World Health Organization Quality of Life assessment (WHOQOL-BREF), a useful outcome measure for clinical decision making, has been evaluated using classical test theory (CTT) for psychome...

    Authors: Kun-Chia Chang, Jung-Der Wang, Hsin-Pei Tang, Ching-Ming Cheng and Chung-Ying Lin
    Citation: Health and Quality of Life Outcomes 2014 12:148
  15. Data on how different groups of elderly immigrants perceive health-related quality of life (HRQOL) is scarce and research on the influence of ethnicity on HRQOL across ethnic groups is missing. Measuring HRQOL...

    Authors: Ilona Verhagen, Wynand JG Ros, Bas Steunenberg and Niek J de Wit
    Citation: Health and Quality of Life Outcomes 2014 12:138
  16. This study explores relationships between chronic inflammation and quality of life, making a case for biopsychosocial modeling of these associations. It builds on research from social and clinical disciplines ...

    Authors: Alexandra CH Nowakowski
    Citation: Health and Quality of Life Outcomes 2014 12:141
  17. There is no research on mapping algorithms between EQ-5D and SF-36 in Korea. The aim of this study was to derive a predictive model for converting the SF-36 health profile to the EQ-5D index using data from se...

    Authors: Seon-Ha Kim, Seon-Ok Kim, Sang-il Lee and Min-Woo Jo
    Citation: Health and Quality of Life Outcomes 2014 12:145
  18. To linguistically validate and culturally adapt the Evaluation of Daily Activity Questionnaire (EDAQ) for use in rheumatoid arthritis (RA) from Swedish to British English. The EDAQ is a patient reported outcom...

    Authors: Alison Hammond, Sarah Tyson, Yeliz Prior, Ruth Hawkins, Alan Tennant, Ulla Nordenskiold, Ingrid Thyberg, Gunnel Sandqvist and Ragnhild Cederlund
    Citation: Health and Quality of Life Outcomes 2014 12:143
  19. Posttraumatic stress disorder (PTSD) has a great impact on a patient's quality of life (QoL). People in long-term contact with a person suffering from PTSD, such as family members, may also consequently develo...

    Authors: Tina Peraica, Anđelko Vidović, Zrnka Kovačić Petrović and Dragica Kozarić-Kovačić
    Citation: Health and Quality of Life Outcomes 2014 12:136
  20. Pediatric Quality of Life Inventory (PedsQL) is a measure to assess health-related quality of life (HRQoL) in children and adolescents. It is formed by 23 items adapted to children age and includes a parent pr...

    Authors: Pedro L Ferreira, Carla F Baltazar, Luís Cavalheiro, Jan Cabri and Rui S Gonçalves
    Citation: Health and Quality of Life Outcomes 2014 12:122
  21. Health-related quality of life is often collected in clinical studies, and forms a cornerstone of economic evaluation. This study had two objectives, firstly to report and compare pre- and post-progression hea...

    Authors: Anthony J Hatswell, Becky Pennington, Louisa Pericleous, Donna Rowen, Maximilian Lebmeier and Dawn Lee
    Citation: Health and Quality of Life Outcomes 2014 12:140
  22. Thyroid diseases are prevalent and chronic. With treatment, quality of life is restored in most, but not all patients. Construct validity of the thyroid-related quality of life questionnaire, ThyPRO, has been ...

    Authors: Torquil Watt, Mogens Groenvold, Nina Deng, Barbara Gandek, Ulla Feldt-Rasmussen, Åse Krogh Rasmussen, Laszlo Hegedüs, Steen Joop Bonnema and Jakob Bue Bjorner
    Citation: Health and Quality of Life Outcomes 2014 12:126
  23. Studies of caregiver burden and somatic illness tend to be based on relatively small, clinical samples. Longitudinal, population based studies on this topic are still scarce and little is known about the long-...

    Authors: Ingrid Borren, Kristian Tambs, Kristin Gustavson and Jon Martin Sundet
    Citation: Health and Quality of Life Outcomes 2014 12:139
  24. To determine generic utilities for Spanish chronic obstructive pulmonary disease (COPD) patients stratified by different classifications: GOLD 2007, GOLD 2013, GesEPOC 2012 and BODEx index.

    Authors: Marc Miravitlles, Alicia Huerta, José Alberto Fernández-Villar, Bernardino Alcázar, Guillermo Villa, Carles Forné, Maribel Cuesta, Carlos Crespo and Francisco García-Río
    Citation: Health and Quality of Life Outcomes 2014 12:120
  25. The WHOQOL-OLD is an instrument for the assessment of subjective quality of life in elderly people. It is based on the WHO definition of quality of life and is available in more than 20 languages. However, in ...

    Authors: Ines Conrad, Herbert Matschinger, Steffi Riedel-Heller, Carolin von Gottberg and Reinhold Kilian
    Citation: Health and Quality of Life Outcomes 2014 12:105
  26. There is a lack of validated instruments to measure the level of burden of Alzheimer’s disease (AD) on caregivers. The Impact of Alzheimer’s Disease on Caregiver Questionnaire (IADCQ) is a 12-item instrument w...

    Authors: Jason C Cole, Diane Ito, Yaozhu J Chen, Rebecca Cheng, Jennifer Bolognese and Josephine Li-McLeod
    Citation: Health and Quality of Life Outcomes 2014 12:114
  27. The ileal orthotopic neobladder (IONB) is often used in patients undergoing radical cystectomy. The IONB allows to void avoiding the disadvantages of the external urinary diversion.

    Authors: Salvatore Siracusano, Mauro Niero, Cristina Lonardi, Maria Angela Cerruto, Stefano Ciciliato, Laura Toffoli, Francesco Visalli, Davide Massidda, Massimo Iafrate, Walter Artibani, Pierfrancesco Bassi, Ciro Imbimbo, Marco Racioppi, Renato Talamini, Carolina D'Elia, Giovanni Cacciamani…
    Citation: Health and Quality of Life Outcomes 2014 12:135
  28. The Incontinence Quality of Life (I-QOL) questionnaire is a commonly used and validated incontinence specific QOL instrument. The objective of this study is to develop an algorithm to map I-QOL to the Assessme...

    Authors: Gang Chen, Jonathan T Tan, Kwong Ng, Angelo Iezzi and Jeffrey Richardson
    Citation: Health and Quality of Life Outcomes 2014 12:133
  29. Despite an increasing number of studies examining the profile of falls and mobility decline in adults with cerebral palsy (CP), little is known about its impact on an individual’s life quality. The aim of this...

    Authors: Prue E Morgan, Sze-Ee Soh and Jennifer L McGinley
    Citation: Health and Quality of Life Outcomes 2014 12:132
  30. Improvement in quality of life together with better survival are the ultimate goals in the treatment of pulmonary arterial hypertension (PAH) patients. The objective of this study was to evaluate the health-re...

    Authors: Caio JCS Fernandes, Barbara CS Martins, Carlos VP Jardim, Rozana M Ciconelli, Luciana K Morinaga, Ana Paula Breda, Susana Hoette and Rogério Souza
    Citation: Health and Quality of Life Outcomes 2014 12:130
  31. The KIDSCREEN-10 index and the Child Health Utility 9D (CHU9D) are two recently developed generic instruments for the measurement of health-related quality of life in children and adolescents. Whilst the CHU9D...

    Authors: Gang Chen, Katherine Stevens, Donna Rowen and Julie Ratcliffe
    Citation: Health and Quality of Life Outcomes 2014 12:134
  32. Over the last decade, significant progresses have been achieved in the development and validation of new tools for the evaluation of disease activity in axial spondyloarthritis (SpA). Despite they play a key r...

    Authors: Fausto Salaffi, Alessandro Ciapetti, Marina Carotti, Stefania Gasparini, Gustavo Citera and Marwin Gutierrez
    Citation: Health and Quality of Life Outcomes 2014 12:129
  33. Providers and patients have called for improved understanding of the health care requirements of adults with sickle cell disease (SCD) and have identified the need for a systematic, reliable and valid method t...

    Authors: San D Keller, Manshu Yang, Marsha J Treadwell, Ellen M Werner and Kathryn L Hassell
    Citation: Health and Quality of Life Outcomes 2014 12:125
  34. To assess quality of life and treatment satisfaction in patients with type 2 diabetes mellitus with diabetic retinopathy (DR) using validated instruments, with comparison to patients without DR.

    Authors: Nuria Alcubierre, Esther Rubinat, Alicia Traveset, Montserrat Martinez-Alonso, Marta Hernandez, Carmen Jurjo and Didac Mauricio
    Citation: Health and Quality of Life Outcomes 2014 12:131
  35. Assessment of health-related quality of life (HRQL) is particularly important in patients with progressive and incurable diseases such as idiopathic pulmonary fibrosis (IPF). The St George’s Respiratory Questi...

    Authors: Jeffrey J Swigris, Dirk Esser, Craig S Conoscenti and Kevin K Brown
    Citation: Health and Quality of Life Outcomes 2014 12:124
  36. Several studies have demonstrated a positive association between physical activity (PA) and health-related quality of life (HRQL). However, studies have suggested that this association depends both on the PA i...

    Authors: Priscila Missaki Nakamura, Inaian Pignatti Teixeira, Bruno Paula Caraça Smirmaul, Emerson Sebastião, Camila Bosquiero Papini, Sebastião Gobbi and Eduardo Kokubun
    Citation: Health and Quality of Life Outcomes 2014 12:98
  37. There are very few reliable and valid measures in Japan assessing health-related quality of life (HRQOL) in children with cancer. The present study aimed to develop a Japanese version of the Minneapolis-Manche...

    Authors: Makiko Koike, Hiroki Hori, Takeshi Rikiishi, Akira Hayakawa, Naoko Tsuji, Tsukasa Yonemoto, Hideko Uryu and Eisuke Matsushima
    Citation: Health and Quality of Life Outcomes 2014 12:127
  38. Rural-to-urban migrant workers have been increasing rapidly in China over recent decades. Health related quality of life (HRQOL) may affect health service utilization. There is a lack of data on HRQOL in relat...

    Authors: Chu-Hong Lu, Pei-Xi Wang, Yi-Xiong Lei and Zhong-Cheng Luo
    Citation: Health and Quality of Life Outcomes 2014 12:121
  39. Congenital Adrenal Hyperplasia (CAH) is an endocrine disorder characterized by enzymatic deficiency in adrenal steroidogenesis, leading to adrenal insufficiency and hyperandrogenism. Patients need continuous h...

    Authors: Daniel Luis Schueftan Gilban, Paulo Alonso Garcia Alves Junior and Izabel Calland Ricarte Beserra
    Citation: Health and Quality of Life Outcomes 2014 12:107
  40. Direct patient-reported information about adverse drug events (ADEs) is important since it adds to healthcare professional-reported information about the safety of drugs. Previously, we developed an instrument...

    Authors: Sieta T de Vries, Flora M Haaijer-Ruskamp, Dick de Zeeuw and Petra Denig
    Citation: Health and Quality of Life Outcomes 2014 12:103
  41. Enhancing quality of life for people with long-term conditions by monitoring patient-reported outcome measure scores is a key domain of health care policy. This study investigated the responsiveness of patient...

    Authors: Michele Peters, Helen Crocker, Sarah Dummett, Crispin Jenkinson, Helen Doll and Ray Fitzpatrick
    Citation: Health and Quality of Life Outcomes 2014 12:123
  42. The divorce rate has been increasing rapidly in Korea; the single rate and trends in divorce are also changing rapidly. This study aimed to examine the relationship between marital status and quality of life (...

    Authors: Kyu-Tae Han, Eun-Cheol Park, Jae-Hyun Kim, Sun Jung Kim and Sohee Park
    Citation: Health and Quality of Life Outcomes 2014 12:109
  43. The aim of the study was to analyze the effect of preoperative patient characteristics on health outcomes 6 months after total hip replacement (THR), to support patient's decision making in daily practice with...

    Authors: Matthias Vogl, Rainer Wilkesmann, Christian Lausmann, Matthias Hunger and Werner Plötz
    Citation: Health and Quality of Life Outcomes 2014 12:108
  44. Global research shows a clear transition in health outcomes over the past two decades where improved survival was accompanied by lower health related quality of life (HRQoL) as measured by morbidity and disabi...

    Authors: David Banham, Graeme Hawthorne, Robert Goldney and Julie Ratcliffe
    Citation: Health and Quality of Life Outcomes 2014 12:113
  45. Despite a high incidence of life-limiting disease, there is a deficit of palliative care outcome evidence in sub-Saharan Africa. Providers of end of life care call for appropriate measurement tools. The object...

    Authors: David Blum, Lucy E Selman, Godfrey Agupio, Thandi Mashao, Keletso Mmoledi, Tony Moll, Natalya Dinat, Liz Gwyther, Lydia Mpanga Sebuyira, Barbara Ikin, Julia Downing, Stein Kaasa, Irene J Higginson and Richard Harding
    Citation: Health and Quality of Life Outcomes 2014 12:118
  46. Multiple sclerosis (MS) is an inflammatory disease where many of the patients suffer from spasticity impacting their quality-of-life. The purpose of this paper was to linguistically validate and psychometrical...

    Authors: Thomas Henze, Sylvia von Mackensen, Gerald Lehrieder, Uwe K Zettl, Carmen Pfiffner and Peter Flachenecker
    Citation: Health and Quality of Life Outcomes 2014 12:119
  47. The Headache Impact Test (HIT)-6 was developed and has been validated in patients with various types of headache. The objective of this study was to report the psychometric properties of the HIT-6 among patien...

    Authors: Regina Rendas-Baum, Min Yang, Sepideh F Varon, Lisa M Bloudek, Ronald E DeGryse and Mark Kosinski
    Citation: Health and Quality of Life Outcomes 2014 12:117
  48. Despite overall progress in treatment of autoimmune diseases, patients with systemic lupus erythematosus (SLE) experience many inflammatory symptoms representing an unmet medical need. This study aimed to crea...

    Authors: Laura Holloway, Louise Humphrey, Louise Heron, Claire Pilling, Helen Kitchen, Lise Højbjerre, Martin Strandberg-Larsen and Brian Bekker Hansen
    Citation: Health and Quality of Life Outcomes 2014 12:116
  49. Measure Yourself Medical Outcome Profile (MYMOP) is a patient-generated outcome instrument capable of measuring effects from a wide range of health care interventions. This paper reports the translation of thi...

    Authors: Katja Hermann, Katharina Kraus, Kathrin Herrmann and Stefanie Joos
    Citation: Health and Quality of Life Outcomes 2014 12:112

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