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  1. Genomic testing transforms the diagnosis and management of rare conditions. However, uncertainty exists on how to best measure genomic outcomes for informing healthcare priorities. Using the HTA-preferred meth...

    Authors: Tianxin Pan, You Wu, James Buchanan and Ilias Goranitis
    Citation: Health and Quality of Life Outcomes 2023 21:132
    Content type: Research Published on:

  3. Psychosocial factors and dentist-patient relationships (DPR) have been suggested to be associated with oral health outcomes. This study aimed to test a conceptual model which hypothesised relationships among p...

    Authors: Youngha Song, Liana Luzzi and David Brennan
    Citation: Health and Quality of Life Outcomes 2023 21:130
    Content type: Research Published on:

  4. Anxiety is a common emotion experienced by patients with prostate cancer (PCa), and can be exacerbated by testing the prostate-specific antigen (PSA) index. The Memorial Anxiety Scale for Prostate Cancer (MAX-...

    Authors: Qingmei Huang, Ping Jiang, Yuanqi Ding, Yaning Zheng, Li Zheng, Jie Luo, Yun Dai, Fulei Wu and Wei Wang
    Citation: Health and Quality of Life Outcomes 2023 21:129
    Content type: Research Published on:

  5. The present study is aimed to develop and validate a quality of life scale for systemic lupus erythematosus (SLE) patients with Chinese cultural background, QLICD-SLE (V2.0).

    Authors: Yuxi Liu, Jiaqi Zhang, Honghong Xue, Mingyang Chen, Tong Xie and Chonghua Wan
    Citation: Health and Quality of Life Outcomes 2023 21:128
    Content type: Research Published on:

  6. The “International Hip Outcome Tool 12” (iHOT12) is a self-administered patient-reported outcome tool for measuring health-related quality of life and physical functioning in young and active patients with hip pa...

    Authors: Yael Steinfeld-Mass, Noa Ben-Ami, Itamar Botser, David Morgenstern and Aharon S. Finestone
    Citation: Health and Quality of Life Outcomes 2023 21:127
    Content type: Research Published on:

  7. Women with vasomotor symptoms (VMS) due to menopause frequently experience poor sleep quality. The Patient-Reported Outcomes Measurement Information System Sleep Disturbance – Short Form 8b (PROMIS SD-SF-8b) h...

    Authors: Neil M. Schultz, Antonia Morga, Emad Siddiqui and Stephanie E. Rhoten
    Citation: Health and Quality of Life Outcomes 2023 21:126
    Content type: Research Published on:

  8. The purpose of this study was to describe the characteristics and health-related quality of life (HRQL) of patients accessing community rehabilitation services in Alberta, Canada, using routinely collected EQ-...

    Authors: Hilary Short, Fatima Al Sayah, Katie Churchill, Eileen Keogh, Lisa Warner, Arto Ohinmaa and Jeffrey A. Johnson
    Citation: Health and Quality of Life Outcomes 2023 21:125
    Content type: Research Published on:

  9. Cancer patients may experience a decrease in cognitive functioning before, during and after cancer treatment. So far, the Quality of Life Group of the European Organisation for Research and Treatment of Cancer...

    Authors: AA Rogge, MA Petersen, NK Aaronson, T Conroy, L Dirven, F Fischer, EJJ Habets, JC Reijneveld, M Rose, C Sleurs, M Taphoorn, KA Tomaszewski, H Vachon, T Young and M Groenvold
    Citation: Health and Quality of Life Outcomes 2023 21:124
    Content type: Research Published on:

  10. Spinal muscular atrophy (SMA) is a rare monogenic neuromuscular disorder caused by loss of function mutations. Measuring health-related quality of life to support economic evaluations in this population is enc...

    Authors: Richard Huan Xu, Bin Ma, Huanping Xin, Huanyu Zhang, Yan Zeng, Nan Luo and Dong Dong
    Citation: Health and Quality of Life Outcomes 2023 21:123
    Content type: Research Published on:

  11. To develop a mapping algorithm for generating the Short Form Six-Dimension (SF-6D) utility score based on the Functional Assessment of Cancer Therapy-Lung (FACT-L) of lung cancer patients.

    Authors: Qing Yang, Long Lin Jiang, Yin Feng Li and Deyu Huang
    Citation: Health and Quality of Life Outcomes 2023 21:122
    Content type: Research Published on:

    The Correction to this article has been published in Health and Quality of Life Outcomes 2024 22:21

  13. Studies examining associations between injuries and outcomes like quality of life and psychological distress are important to understand a broader range of possible consequences of injuries for population health.

    Authors: Leif Edvard Aarø, Eyvind Ohm, Jens Christoffer Skogen, Thomas Nilsen, Marit Knapstad, Øystein Vedaa, Ragnhild Bang Nes, Benjamin Clarsen and Knut-Inge Klepp
    Citation: Health and Quality of Life Outcomes 2023 21:120
    Content type: Research Published on:

  14. To examine the associations of the independent and combined healthy lifestyle factors with health-related quality of life (HRQOL) in adolescents, and to test the moderating role of gender.

    Authors: Hongyu Xiang, Xiuqiong Feng, Li Lin, Shengyu Luo, Xinxia Liu, Dezhong Chen, Kang Qin, Xun Guo, Weiqing Chen and Vivian Yawei Guo
    Citation: Health and Quality of Life Outcomes 2023 21:119
    Content type: Research Published on:

  16. To characterize longitudinal changes and correlations between the measures of EQ-5D-Y and generic PedsQL and their associations with clinical changes in children and adolescents with mild-to-moderate chronic k...

    Authors: Chien-Ning Hsu, You-Lin Tain, Pei-Chen Lu and Hsiang-Wen Lin
    Citation: Health and Quality of Life Outcomes 2023 21:117
    Content type: Research Published on:

  17. This study identified profiles associated with quality of life (QoL) and sociodemographic and clinical characteristics of patients using emergency departments (ED) for mental health reasons and associated thes...

    Authors: Marie-Josée Fleury, Zhirong Cao, Guy Grenier and Francine Ferland
    Citation: Health and Quality of Life Outcomes 2023 21:116
    Content type: Comment Published on:

  18. Socioeconomic status (SES) is associated with stroke occurrence and survival following stroke but its association with health-related quality of life (HRQoL) following stroke remains uncertain. We performed a ...

    Authors: Yichao A. Sun, Serah Kalpakavadi, Sarah Prior, Amanda G. Thrift, Suzanne Waddingham, Hoang Phan and Seana L. Gall
    Citation: Health and Quality of Life Outcomes 2023 21:115
    Content type: Review Published on:

  19. Supervised exercise is an integral part of the recommended first-line treatment for patients with intermittent claudication (IC). By reflecting the patients’ perspectives, patient-reported outcome measurements...

    Authors: Anna Sandberg, Maria Bäck, Åsa Cider, Lennart Jivegård, Birgitta Sigvant and Joakim Nordanstig
    Citation: Health and Quality of Life Outcomes 2023 21:114
    Content type: Research Published on:

  20. Nonalcoholic steatohepatitis (NASH) is a chronic progression of nonalcoholic fatty liver disease, which can negatively impact the health-related quality of life (HRQoL) of affected individuals. HRQoL in NASH h...

    Authors: Jesse Fishman, Victoria Higgins, James Piercy and James Pike
    Citation: Health and Quality of Life Outcomes 2023 21:113
    Content type: Research Published on:

  21. The impact of cancer interventions has been conducted in several research due to the significant burden of this non-communicable disease. The interventions that played an important role in the improvement of t...

    Authors: Long Bao Nguyen, Linh Gia Vu, Thanh Thien Le, Xuan Thanh Nguyen, Nam Gia Dao, Duy Cao Nguyen, Trang Huyen Thi Dang, Thuc Minh Thi Vu, Laurent Boyer, Guillaume Fond, Pascal Auquier, Carl A. Latkin, Melvyn W.B. Zhang, Roger C.M. Ho and Cyrus S.H. Ho
    Citation: Health and Quality of Life Outcomes 2023 21:112
    Content type: Research Published on:

  22. To understand the health-related quality of life (HRQoL) in inclusion body myositis (IBM) from a holistic perspective on the background of a complex care situation. The focus was on how the patient journey may...

    Authors: Katja C. Senn, Simone Thiele, Laura Gumbert, Sabine Krause, Maggie C. Walter and Klaus H. Nagels
    Citation: Health and Quality of Life Outcomes 2023 21:111
    Content type: Research Published on:

  23. Gait impairment is a relevant problem in persons with multiple sclerosis (pwMS). The Multiple Sclerosis Walking Scale 12 (MSWS-12) is a valid Patient Reported Outcome Measure (PROM) to evaluate walking ability...

    Authors: Anna Chorschew, Firat Kesgin, Judith Bellmann-Strobl, Peter Flachenecker, Insa Schiffmann, Friederike Rosenthal, Patrick Althoff, Daniel Drebinger, Radina Arsenova, Ludwig Rasche, Eva-Maria Dorsch, Christoph Heesen, Friedemann Paul, Jan-Patrick Stellmann and Tanja Schmitz-Hübsch
    Citation: Health and Quality of Life Outcomes 2023 21:110
    Content type: Research Published on:

  24. Authors: Karine E. Manera, Ben J. Smith, Katherine B. Owen, Philayrath Phongsavan and Michelle H. Lim
    Citation: Health and Quality of Life Outcomes 2023 21:109
    Content type: Correction Published on:

    The original article was published in Health and Quality of Life Outcomes 2022 20:40

  25. Middle and late adolescence is the period in a person's life that is most vulnerable to mental health problems. To enable an evidence base that can support policies to prevent such problems, it is crucial to h...

    Authors: Radka Hanzlová and Peter Lynn
    Citation: Health and Quality of Life Outcomes 2023 21:108
    Content type: Research Published on:

  26. The PROMIS Preference score (PROPr) is a new health state utility (HSU) score that aims to comprehensively incorporate the biopsychosocial model of health and apply favorable psychometric properties from the d...

    Authors: Christoph Paul Klapproth, Felix Fischer and Matthias Rose
    Citation: Health and Quality of Life Outcomes 2023 21:107
    Content type: Research Published on:

  27. This study aims to assess the impact of a peer intervention programme in the hospital setting to improve the health-related quality of life (HRQoL) of people recently diagnosed with HIV infection.

    Authors: M. J. Fuster-RuizdeApodaca, D. Pérez-Garín, V. Baceiredo, A. Laguía, J. García Carrillo, R. García and D. García
    Citation: Health and Quality of Life Outcomes 2023 21:106
    Content type: Research Published on:

  28. Verbal rating scales (VRS) are widely used in patient-reported outcome (PRO) measures. At our institution, patients complete an online instrument using VRSs with a five-point brief response scale to assess sym...

    Authors: Andrew J. Vickers, Melissa Assel, Michael Hannon, Priyanka Desai, Sigrid V. Carlsson, Taylor McCready, Jennifer Cracchiolo and Brett Simon
    Citation: Health and Quality of Life Outcomes 2023 21:105
    Content type: Research Published on:

  29. The International Knee Documentation Committee Subjective Knee Form (IKDC) is the most highly recommended patient reported outcome measure for assessing patients with anterior cruciate ligament (ACL) injuries ...

    Authors: Hana Marmura, Paul F. Tremblay, Alan M. J. Getgood and Dianne M. Bryant
    Citation: Health and Quality of Life Outcomes 2023 21:104
    Content type: Research Published on:

  30. It is imperative to evaluate health related quality of life (HRQoL) pre-COVID-19, but there is currently no evidence of the retrospective application of the EuroQol 5-Dimension, 5 level version (EQ-5D-5L) for ...

    Authors: Xiaowu Sun, Manuela Di Fusco, Laura Puzniak, Henriette Coetzer, Joann M. Zamparo, Ying P. Tabak and Joseph C. Cappelleri
    Citation: Health and Quality of Life Outcomes 2023 21:103
    Content type: Brief Report Published on:

  32. Eating behavior primarily depends on eating patterns which are largely influenced by interactions between physiology, environment, psychology, culture and socio-economic status. This study was designed to tran...

    Authors: Premaa Supramaniam, Siti Hajar Ismail, Aisyah Ali, E- Li Leong, Prema Muninathan, Tassha Hilda Adnan and Sarala Paramesvaran
    Citation: Health and Quality of Life Outcomes 2023 21:101
    Content type: Research Published on:

  33. Type 2 diabetes mellitus (T2DM) is a chronic and life-threatening disease. Health-related quality of life (HRQoL) is vital for individuals with T2DM. However, little is known about the impact of psychological ...

    Authors: Zihuan Zeng, Xingli Wang, Yanhan Chen, Hengyu Zhou, Wenfen Zhu, Xiu Xiong, Jiao Tang and Qinghua Zhao
    Citation: Health and Quality of Life Outcomes 2023 21:100
    Content type: Research Published on:

  34. To explore generating a health utility value set for the Chinese medicine Quality of life-11 Dimensions (CQ-11D), a utility instrument designed to assess patients’ health status while receiving TCM treatment, ...

    Authors: Wentao Zhu, Mengpei Zhang, Jie Pan, Lizheng Shi, Hailiang Gao and Shitong Xie
    Citation: Health and Quality of Life Outcomes 2023 21:99
    Content type: Research Published on:

  35. A questionnaire developed in one language must be translated and adapted when it will be used with patients speaking a different language and care should be taken to maintain equivalence between the source lan...

    Authors: Kamala Dhakal, Changying Chen, Panpan Wang, Joanes Faustine Mboineki, Mikiyas Amare Getu, Allison Boyes, Chandrakala Sharma, Bijesh Raj Ghimire, Abish Adhikari, Bibhav Adhikari and Daya Laxmi Shrestha
    Citation: Health and Quality of Life Outcomes 2023 21:98
    Content type: Research Published on:

  36. This study aimed to explore the potential impact of the COVID-19 pandemic on the health-related quality of life (HRQoL) of humanitarian and healthcare workers and its related factors in seven Eastern African c...

    Authors: Alexis Nizigiyimana, Dilaram Acharya and Thomas G. Poder
    Citation: Health and Quality of Life Outcomes 2023 21:97
    Content type: Research Published on:

  37. Physical end emotional changes during pregnancy may not only affect pregnant womens’ quality of life, but also how instruments assessing quality of life perform in such populations. To date, there is insuffici...

    Authors: Elisabet Rondung, Sandra Oliveira and Francisco Esteves
    Citation: Health and Quality of Life Outcomes 2023 21:96
    Content type: Research Published on:

  38. In addition to their standard use to assess real-time symptom burden, patient-reported outcomes (PROs), such as the Patient-Reported Outcomes Measurement Information System (PROMIS), measures offer a potential...

    Authors: Natalie C. Ernecoff, Rebecca Weir, Anthony Rodriguez, Lucy B. Schulson, Maria Orlando Edelen and Janel Hanmer
    Citation: Health and Quality of Life Outcomes 2023 21:95
    Content type: Brief Report Published on:

  39. Antiretroviral treatment improves health related quality of life (HRQoL) of people with human immunodeficiency virus (PWH). However, one third initiating first-line treatment experience virological failure and...

    Authors: Tamlyn A. Rautenberg, Shu Kay Ng, Gavin George, Mahomed-Yunus S. Moosa, Suzanne M. McCluskey, Rebecca F. Gilbert, Selvan Pillay, Isaac Aturinda, Kevin L. Ard, Winnie R. Muyindike, Nicholas Musinguzi, Godfrey Masette, Melendhran Pillay, Pravi Moodley, Jaysingh Brijkumar, Rajesh T. Gandhi…
    Citation: Health and Quality of Life Outcomes 2023 21:94
    Content type: Research Published on:

  40. Orthosis satisfaction is an important outcome in assessing quality of care. However, no measurement specifically assessing orthosis satisfaction is available in the Dutch language. Therefore, the aim of this s...

    Authors: Tanja Oud, Jana Tuijtelaars, Jimmy Schenk, Frans Nollet and Merel-Anne Brehm
    Citation: Health and Quality of Life Outcomes 2023 21:93
    Content type: Research Published on:

  41. Pharmaceutical care has the potential to improve hypertension control rates in young and middle-aged patients. Due the COVID-19 epidemic, standard intervention methods may not be applicable. We propose establi...

    Authors: Xinmei Li, Wenxiu Xu, Xiaofeng Mo, Fan Wu, Minghong Qu, Junxian Ye, Wenxing Wu, Haizhi Li and Te Li
    Citation: Health and Quality of Life Outcomes 2023 21:92
    Content type: Brief Report Published on:

  42. Fatigue is the most frequent and distressing symptom affecting the physical, cognitive, and affective domains of breast cancer patients. The Functional Assessment of Chronic Illness Therapy–Fatigue (FACIT–F) h...

    Authors: Tingting Cai, Jialin Chen, Feixia Ni, Rui Zhu, Fulei Wu, Qingmei Huang, Tingting Zhou, Yang Yang and Changrong Yuan
    Citation: Health and Quality of Life Outcomes 2023 21:91
    Content type: Research Published on:

  43. The EQ-5D-5 L is a commonly used generic measure of health. This study aimed to evaluate the psychometric properties of the EQ-5D-5 L in patients with Graves’ disease (GD).

    Authors: Xiaodong Liu, Wendy WL Chan, Eric HM Tang, Alex HY Suen, Matrix MH Fung, Yu Cho Woo, Shirley YW Liu, Cindy LK Lam, Nan Luo, Carlos KH Wong and Brian HH Lang
    Citation: Health and Quality of Life Outcomes 2023 21:90
    Content type: Research Published on:

  44. Researchers and clinicians using common clinical assessments need to attend to the prevalence of missing data to ensure the validity of the information gathered. The Expanded Prostate Cancer Index Short Form (...

    Authors: Anna-Maija Talvitie, Mika Helminen, Hanna Ojala, Teuvo Tammela, Anssi Auvinen and Ilkka Pietilä
    Citation: Health and Quality of Life Outcomes 2023 21:89
    Content type: Research Published on:

  45. Distorted thoughts are common in Major Depressive Disorder (MDD), and can impact patients’ perceptions of depression severity, and predict chronicity and treatment response. This study aimed to investigate whe...

    Authors: Adriana Munhoz Carneiro, Danilo Assis Pereira, Fernando Fernandes, Makilim Nunes Baptista, André Russowsky Brunoni and Ricardo Alberto Moreno
    Citation: Health and Quality of Life Outcomes 2023 21:88
    Content type: Research Published on:

  46. In Brazil, cancer patients and caregivers of cancer patients seek judicial intervention for free access to medications from the public health system. Indeed, the COVID-19 pandemic potentially affected the heal...

    Authors: Leila Abou Salha, José Elmo de Menezes, Danilo Rocha Dias, Virginia Visconde Brasil, Pedro Lopes Ferreira, Jolivê Mendes de Santana Filho and Maria Alves Barbosa
    Citation: Health and Quality of Life Outcomes 2023 21:87
    Content type: Research Published on:

  47. Evidence shows that both socioeconomic status (SES) during childhood and education are associated with adult oral health. However, whether the range of opportunities families have regarding their children’s ed...

    Authors: Faten Haider, Eduardo Bernabé and Elsa Karina Delgado-Angulo
    Citation: Health and Quality of Life Outcomes 2023 21:86
    Content type: Research Published on:

  48. Vitiligo is reported to affect 2% of the world’s population and has a significant impact on health related quality of life (HRQoL). The relationship between HRQoL and clinical outcomes used in vitiligo require...

    Authors: Rabiah Begum, Ralph Crott, Reynaldo Martina, Eleni M. Loizidou and Iftekhar Khan
    Citation: Health and Quality of Life Outcomes 2023 21:85
    Content type: Research Published on:

  49. Health-related quality of life (HRQoL) reflects an individual’s own perception of their symptom burden, functional limitations, prognosis, overall health and changes associated with treatment. The HeartQoL is ...

    Authors: Margrét Hrönn Svavarsdóttir, Brynja Ingadottir, Neil Oldridge and Kristofer Årestedt
    Citation: Health and Quality of Life Outcomes 2023 21:84
    Content type: Research Published on:

  50. Psoriasis is a common autoimmune dermatologic condition which has a pronounced negative impact on patient quality of life and disease burden. Currently, there are a number of treatments available for psoriasis...

    Authors: Stacie Hudgens, Amy Howerter, Shannon Keith, Colby Evans and Corey Pelletier
    Citation: Health and Quality of Life Outcomes 2023 21:83
    Content type: Research Published on:
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Health and Quality of Life Outcomes

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