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Table 4 The number of identified meaningful concepts in the selected haemophilia measures and the number of different ICF (ICF-CY) categories used for linkage distributed by ICF/ICF-CY components and level of hierarchy.

From: Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY)

Concepts & Categories

 

Children

 

Adults

 

Total (Children/Adults)

Haemo-QoL

Total Adults

Haem-A-QoL

MedTap

Hemo-Sat A

HEP-Test-Q

number of items

224

77

147

46

41

34

26

number of meaningful concepts (total)

365

123

242

83

62

62

35

concepts linked to the ICF (Percentage)*

283 (78%)

83 (67%)

200 (83%)

60 (72%)

51 (82%)

59 (95%)

30 (86%)

concepts not linked to the ICF (total number)**

82 (22%)

40 (33%)

42 (17%)

23 (28%)

11 (18%)

3 (5%)

5 (14%)

ICF/ICF-CY categories used for linkage (total number)

70

39

54

25

27

11

18

for level of ICF hierarchy

1st level

8

4

7

2

3

-

2

2nd level

33

22

21

10

11

7

6

3rd level

28

12

25

12

13

4

10

4th level

1

1

1

1

-

-

-

  1. *Percentages are calculated based on the total number of concepts for each instrument;
  2. **For ICF the total number of categories is 1,454 (Body functions: 493, Body structures: 310, Activity and Participation: 393, Environmental Factors: 258). For IC- CY the total number of categories is 1,685 (Body functions: 531, Body structures: 329, Activity and Participation: 552, Environmental Factors: 273) [35, 39]