World Health Organization (WHO) definition of Palliative Care: World Health Organization (WHO) definition of Palliative Care. Geneva: WHO; 2002. http://www.who.int/cancer/palliative/definition/en
Google Scholar
World Health Organization (WHO): World Health Organization Quality of Life Assessment (WHOQOL): Position paper from the world health organization. Soc Sci Med 1995, 41: 1403–1409.
Article
Google Scholar
Calman KC: Quality of life in cancer patients: a hypothesis. J Med Ethics 1984, 10: 124–127. 10.1136/jme.10.3.124
Article
CAS
PubMed Central
PubMed
Google Scholar
Bowling A: Current state of the art in quality of life assessment. In Quality of life. 1st edition. Edited by: Carr AJ, Higginson IJ, Robinson PG. London: BMJ Books; 2003:1–8.
Google Scholar
Kaasa S, Loge JH: Quality of life in palliative medicine – principles and practice. In Oxford Textbook of Palliative Medicine. 3rd edition. Edited by: Doyle D, Hanks G, Cherny N, Calman K. New York: Oxford University Press; 2004:196–210.
Google Scholar
Sirgy MJ, Michalos AC, Ferriss AL, Easterlin RA, Patrick D, Pavot W: The Quality-of-Life (QOL) Research Movement: Past, Present, and Future. Soc Indicators Res 2006, 76: 343–466. 10.1007/s11205-005-2877-8
Article
Google Scholar
Stiel S, Psych D, Kues K, Krumm N, Radbruch L, Elsner F: Assessment of quality of life in patients receiving palliative care: comparison of measurement tools and single item on subjective well-being. J Palliat Med 2011, 14: 599–606. 10.1089/jpm.2010.0473
Article
PubMed
Google Scholar
Sprangers MA, Schwartz CE: Integrating response shift into health-related quality of life research: A theoretical model. Soc Sci Med 1999, 48: 1507–1515. 10.1016/S0277-9536(99)00045-3
Article
CAS
PubMed
Google Scholar
Albers G, Echteld MA, De Vet HC, Onwuteaka-Philipsen BD, Van der Linden MH, Deliens L: Evaluation of quality-of-life measures for use in palliative care: a systematic review. Palliat Med 2010, 24: 17–37. 10.1177/0269216309346593
Article
PubMed
Google Scholar
Lipscomb J, Gotay CC, Snyder CF: Patient-reported outcomes in cancer: a review of recent research and policy initiatives. CA Cancer J Clin 2007, 57: 278–300. 10.3322/CA.57.5.278
Article
PubMed
Google Scholar
Gotay CC: Assessing cancer-related quality of life across a spectrum of applications. J Natl Cancer Inst Monogr 2004, 33: 126–133.
Article
PubMed
Google Scholar
Lorenz KA, Dy SM, Naeim A, Walling AM, Sanati H, Smith P, Shanman R, Roth CP, Asch SM: Quality measures for supportive cancer care: the Cancer Quality-ASSIST Project. J Pain Symptom Manage 2009, 37: 943–964. 10.1016/j.jpainsymman.2008.05.018
Article
PubMed
Google Scholar
Schniewind B, Rose T, Woltmann N, Walter J, Becker T, Dohrmann P, Küchler T, Kurdow R: Clinical outcomes and health-related quality of life after thoracoscopic talc pleurodesis. J Palliat Med 2012, 15: 37–42. 10.1089/jpm.2011.0149
Article
PubMed
Google Scholar
Leung KK, Tsai JS, Cheng SY, Liu WJ, Chiu TY, Wu CH, Chen CY: Can a good death and quality of life be achieved for patients with terminal cancer in a palliative care unit? J Palliat Med 2010, 13: 1433–1438. 10.1089/jpm.2010.0240
Article
PubMed
Google Scholar
Borneman T, Koczywas M, Sun V, Piper BF, Smith-Idell C, Laroya B, Uman G, Ferrell B: Effectiveness of a clinical intervention to eliminate barriers to pain and fatigue management in oncology. J Palliat Med 2011, 14: 197–205. 10.1089/jpm.2010.0268
Article
PubMed Central
PubMed
Google Scholar
McMillan SC, Small BJ, Haley WE: Improving hospice outcomes through systematic assessment: a clinical trial. Cancer Nurs 2011, 34: 89–97. 10.1097/NCC.0b013e3181f70aee
Article
PubMed Central
PubMed
Google Scholar
Efficace F, Kemmler G, Vignetti M, Mandelli F, Molica S, Holzner B: Health-related quality of life assessment and reported outcomes in leukaemia randomized controlled trials: a systematic review to evaluate the added value in supporting clinical decision making. Eur J Cancer 2008, 44: 1497–1506. 10.1016/j.ejca.2008.03.017
Article
PubMed
Google Scholar
Montazeri A: Quality of life data as prognostic indicators of survival in cancer patients: an overview of the literature from 1982 to 2008. Health Qual Life Outcomes 2009, 7: 102. 10.1186/1477-7525-7-102
Article
PubMed Central
PubMed
Google Scholar
Bausewein C, Daveson B, Benalia H, Simon ST, Higginson IJ: Outcome measure in palliative care. The essentials. Prisma project booklet. 2011, 2–4. http://www.eapcnet.eu/Themes/Clinicalcare/Outcomemeasurement/Publicationsdocuments/tabid/1577/ctl/Details/ArticleID/277/mid/2998/Outcome-Measurement-in-Palliative-Care-The-Essentials.aspx
Google Scholar
Institute of Medice (IOM): Initial National Priorities for Comparative Effectiveness Research. 2009. http://www.iom.edu/Reports/2009/ComparativeEffectivenessResearchPriorities.aspx
Google Scholar
Kilbridge KL: Quality-adjusted life-years, comparative effectiveness in cancer care, and measuring outcomes in the underserved. Oncology (Williston Park) 2010, 24: 530–536.
Google Scholar
Osoba D, Bezjak A, Brundage M, Pater J, National Cancer Institute of Canada Clinical Trials Group: Evaluating health-related quality of life in cancer clinical trials: the national cancer institute of canada clinical trials group experience. Value Health 2007,10(Suppl 2):S138-S145.
Article
PubMed
Google Scholar
Higginson IJ, Carr AJ: Measuring quality of life: Using quality of life measures in the clinical setting. BMJ 2001, 322: 1297–1300. 10.1136/bmj.322.7297.1297
Article
CAS
PubMed Central
PubMed
Google Scholar
Craig P, Dieppe P, Macintyre S, Mitchie S, Nazareth I, Petticrew M: Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ 2008, 337: a1655. 10.1136/bmj.a1655
Article
PubMed Central
PubMed
Google Scholar
Grol R, Baker R, Moss F: Quality improvement research: the science of change in health care. In Quality improvement research. Understanding the science of change in health care. 1st edition. Edited by: Grol R, Baker R, Moss F. London: BMJ Books; 2004:35–38.
Google Scholar
Campbell NC, Murray E, Darbyshire J, Emery J, Farmer A, Griffiths F, Guthrie B, Lester H, Wilson P, Kinmonth AL: Designing and evaluating complex interventions to improve health care. BMJ 2007, 334: 455–459. 10.1136/bmj.39108.379965.BE
Article
PubMed Central
PubMed
Google Scholar
Hawe P, Shiell A, Riley T: Complex interventions: how "out of control" can a randomised controlled trial be? BMJ 2004, 328: 1561–1563. 10.1136/bmj.328.7455.1561
Article
PubMed Central
PubMed
Google Scholar
Wilson JMG, Jungner G: Principles and practice of screening for disease. WHO, Geneva; 1968. http://www.who.int/bulletin/volumes86/4/07–050112BP.pdf
Google Scholar
Hearn J, Higginson IJ: Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group. Qual Health Care 1999, 8: 219–227. 10.1136/qshc.8.4.219
Article
CAS
PubMed Central
PubMed
Google Scholar
Nelson HD, Tyne K, Naik A, Bougatsos C, Chan BK, Humphrey L: U.S. Preventive Services Task Force: Screening for breast cancer: an update for the U.S. Preventive Services Task Force. Ann Intern Med 2009, 151: 727–737.
Article
PubMed Central
PubMed
Google Scholar
Andermann A, Blancquaert I, Beauchamp S, Déry V: Revisiting Wilson and Jungner in the genomic age: a review of screening criteria over the past 40 years. Bull World Health Organ 2008,86(4):317–319. 10.2471/BLT.07.050112
Article
PubMed Central
PubMed
Google Scholar
Velikova G, Keding A, Harley C, Cocks K, Booth L, Smith AB, Wright P, Selby PJ, Brown JM: Patients report improvements in continuity of care when quality of life assessments are used routinely in oncology practice: secondary outcomes of a randomised controlled trial. Eur J Cancer 2010, 46: 2381–2388. 10.1016/j.ejca.2010.04.030
Article
PubMed
Google Scholar
Moore AB, Feldt JA: Facilitating Community Decision-Making. In Facilitating Community and Decision- Making Groups. The Professional Practices in Adult Education and Human Resource Development. 1st edition. Edited by: Moore AB, Feldt JA. Florida: Krieger Publishing Company; 1993.
Google Scholar
Stevens AM, Gwilliam B, A’hern R, Broadley K, Hardy J: Experience in the use of the palliative care outcome scale. Support Care Cancer 2005, 13: 1027–1034. 10.1007/s00520-005-0815-6
Article
PubMed
Google Scholar
Lunder U, Furlan M, Simonič A: Spiritual needs assessments and measurements. Curr Opin Support Palliat Care 2011, 5: 273–278.
Article
PubMed
Google Scholar
LeMay K, Wilson KG: Treatment of existential distress in life threatening illness: a review of manualized interventions. Clin Psychol Rev 2008, 28: 472–493. 10.1016/j.cpr.2007.07.013
Article
PubMed
Google Scholar
Detmar SB, Muller MJ, Schornagel JH, Wever LD, Aaronson NK: Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial. JAMA 2002, 288: 3027–3034. 10.1001/jama.288.23.3027
Article
PubMed
Google Scholar
Murray SA, Kendall M, Boyd K, Sheikh A: Illness trajectories and palliative care. BMJ 2005, 330: 1007–1011. 10.1136/bmj.330.7498.1007
Article
PubMed Central
PubMed
Google Scholar
Murray SA, Kendall M, Grant E, Boyd K, Barclay S, Sheikh A: Patterns of social, psychological, and spiritual decline toward the end of life in lung cancer and heart failure. J Pain Symptom Manage 2007, 34: 393–402. 10.1016/j.jpainsymman.2006.12.009
Article
PubMed
Google Scholar
Mularski RA, Dy SM, Shugarman LR, Wilkinson AM, Lynn J, Shekelle PG, Morton SC, Sun VC, Hughes RG, Hilton LK, Maglione M, Rhodes SL, Rolon C, Lorenz KA: A systematic review of measures of end-of-life care and its outcomes. Health Serv Res 2007, 42: 1848–1870. 10.1111/j.1475-6773.2007.00721.x
Article
PubMed Central
PubMed
Google Scholar
Jordhoy MS, Inger Ringdal G, Helbostad JL, Oldervoll L, Loge JH, Kaasa S: Assessing physical functioning: a systematic review of quality of life measures developed for use in palliative care. Palliat Med 2007, 21: 673–682. 10.1177/0269216307083386
Article
PubMed
Google Scholar
Slater A, Freeman E: Patients’ views of using an outcome measure in palliative day care: a focus group study. Int J Palliat Nurs 2004, 10: 343–351.
Article
PubMed
Google Scholar
Bookbinder M, McHugh ME: Symptom management in palliative care and end of life care. Nurs Clin North Am 2010, 45: 271–327. 10.1016/j.cnur.2010.04.002
Article
PubMed
Google Scholar
National Consensus Project (NCP): Quality Palliative Care Guidelines. http://www.nationalconsensusproject.org
Otis-Green S, Ferrell B, Borneman T, Puchalski C, Uman G, Garcia A: Integrating spiritual care within palliative care: an overview of nine demonstration projects. J Palliat Med 2012, 15: 154–162. 10.1089/jpm.2011.0211
Article
PubMed
Google Scholar
Sackett DL, Straus SE, Richardson WS, Rosenberg W, Haynes R: Introduction to evidence-based medicine. In Evidence-based medicine: how to practice and teach EBM. 2nd edition. Edited by: Sackett DL, Straus SE, Richardson WS, Rosenberg W, Haynes RB. Edinburgh: Churchill Livingstone; 2000:1–12.
Google Scholar
Agency for Healthcare Research and Quality (AHRQ): Focus on Cost-Effectiveness Analysis at AHRQ FactSheet. AHRQ Publication No. 01-P023. Rockville, MD: Agency for Healthcare Research and Quality; 200. http://www.ahrq.gov/research/costeff.htm
Google Scholar
Snyder CF, Aaronson NK, Choucair AK, Elliott TE, Greenhalgh J, Halyard MY, Hess R, Miller DM, Reeve BB, Santana M: Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations. Qual Life Res 2012, 21: 1305–1314. 10.1007/s11136-011-0054-x
Article
PubMed
Google Scholar
Yang YT, Mahon MM: Palliative care for the terminally ill in America: the consideration of QALYs, costs, and ethical issues. Med Health Care Philos 2011. [Epub ahead of print]
Google Scholar
Elmqvist MA, Jordhøy MS, Bjordal K, Kaasa S, Jannert M: Health-related quality of life during the last three months of life in patients with advanced cancer. Support Care Cancer 2009, 17: 191–198. 10.1007/s00520-008-0477-2
Article
PubMed
Google Scholar
Granda-Cameron C, Viola SR, Lynch MP, Polomano RC: Measuring patient-oriented outcomes in palliative care: functionality and quality of life. Clin J Oncol Nurs 2008, 12: 65–77.
Article
PubMed
Google Scholar
Bausewein C, Simon ST, Benalia H, Downing J, Mwangi-Powell FN, Daveson BA, Harding R, Higginson IJ, PRISMA: Implementing patient reported outcome measures (PROMs) in palliative care - users’ cry for help. Health Qual Life Outcomes 2011, 9: 27. 10.1186/1477-7525-9-27
Article
PubMed Central
PubMed
Google Scholar