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  1. Compared with multiple daily insulin injections (MDI), continuous subcutaneous insulin infusion (CSII) is significantly more expensive and has not been widely used in Chinese type 1 diabetes mellitus (T1DM) pa...

    Authors: Jian Yu, Hong Wang, Min Zhu and Jingjing Xu
    Citation: Health and Quality of Life Outcomes 2024 22:47
  2. Approximately 30,000 people are affected by severe injuries in Germany each year. Continuous progress in prehospital and hospital care has significantly reduced the mortality of polytrauma patients. With incre...

    Authors: Carina Jaekel, Ulrike Nienaber, Anne Neubert, Oliver Kamp, Lisa Wienhöfer, Andre Nohl, Marc Maegele, Helena Duesing, Christoph J. Erichsen, Stephan Frenzel, Rolf Lefering, Sascha Flohe and Dan Bieler
    Citation: Health and Quality of Life Outcomes 2024 22:46
  3. Stroke has evolved to become a chronic disease and a major public health challenge. To adequately capture the full disease burden of stroke patients, the assessment of health-related quality of life (HRQoL) an...

    Authors: Juliana Schmidt, Juliane Andrea Düvel, Svenja Elkenkamp and Wolfgang Greiner
    Citation: Health and Quality of Life Outcomes 2024 22:45
  4. Patients with inflammatory bowel disease (IBD) experience difficulties in daily life and demanding self-care needs. The goal of our support for patients is to ease their difficulties and improve their belief i...

    Authors: Makoto Tanaka, Aki Kawakami, Kayoko Sakagami, Tomoko Terai and Hiroaki ito
    Citation: Health and Quality of Life Outcomes 2024 22:44
  5. To provide both preventive and rehabilitative conditions in a workplace, one must understand how employees experience work demands. Such an understanding can be obtained from each individual with valid and qua...

    Authors: Elin Ekbladh, Moa Yngve and Jeanette Melin
    Citation: Health and Quality of Life Outcomes 2024 22:43
  6. The introduction of bolt-on dimensions in EQ-5D instruments is growing common, but most bolt-on studies have targeted the diseased population and obtained bolt-on from other existing Health-related Quality of ...

    Authors: Clement Cheuk Wai Ng, Annie Wai Ling Cheung and Eliza Lai Yi Wong
    Citation: Health and Quality of Life Outcomes 2024 22:42
  7. To investigate the health-related quality of life (HRQoL) and subjective well-being (SWB) of children aged 9–12 years in eastern China, and examine concordance within child self-reported and parent proxy-asses...

    Authors: Zhao Shi, Aihua Cao, Shunping Li, Jianglin Wang, Jin Zhang, Julie Ratcliffe and Gang Chen
    Citation: Health and Quality of Life Outcomes 2024 22:41
  8. The Quality of Life-Aged Care Consumers (QOL-ACC), a valid preference-based instrument, has been rolled out in Australia as part of the National Quality Indicator (QI) program since April 2023 to monitor and b...

    Authors: Jyoti Khadka, Rachel Milte, Claire Hutchinson, Jenny Cleland and Julie Ratcliffe
    Citation: Health and Quality of Life Outcomes 2024 22:40
  9. Accurate assessment and enhancement of health-related skills among oncology patients are pivotal for optimizing cancer care. The Patient Activation Measure (PAM-13), a questionnaire designed to reflect an indi...

    Authors: Inka Roesel, Daniela Froehlich, Stefanie Joos, Jan Valentini, Holger Mauch and Peter Martus
    Citation: Health and Quality of Life Outcomes 2024 22:39
  10. There is no widely accepted framework to guide the development of condition-specific preference-based instruments (CSPBIs) that includes both de novo and from existing non-preference-based instruments. The pur...

    Authors: Teresa C. O. Tsui, Sofia C. Torres, Joanna M. Bielecki, Nicholas Mitsakakis, Maureen E. Trudeau, Karen E. Bremner, Aileen M. Davis and Murray D. Krahn
    Citation: Health and Quality of Life Outcomes 2024 22:38
  11. Approximately 1.5 million adults in the UK have a learning disability. The difference between age at death for this group and the general population is 26 years for females and 22 years for males. The NHS Long...

    Authors: John L. O’Dwyer, Louise D. Bryant, Claire Hulme, Paul Kind and David M. Meads
    Citation: Health and Quality of Life Outcomes 2024 22:37
  12. In France, 2300 adolescents and young adults (AYAs, 15–25 years old) are diagnosed with cancer each year. As soon as the disease is diagnosed, a number of physical, psychological and social needs may arise. Th...

    Authors: S. Justafré, P. Marino, R. Touzani, F. Dupeyre-Alvarez, P. Dantin, P. Viens, N. Vey and S. Calvin
    Citation: Health and Quality of Life Outcomes 2024 22:36
  13. Previous studies have reported conflicting factor structures of the Coping Strategies Questionnaire - Sickle Cell Disease (CSQ-SCD). This study examined the psychometric properties of the CSQ-SCD among adults ...

    Authors: Monika Salkar, Meagen Rosenthal, Kaustuv Bhattacharya, Sujith Ramachandran, Marie Barnard, John Young and John P. Bentley
    Citation: Health and Quality of Life Outcomes 2024 22:35
  14. This study aimed to assess the health-related quality of life (HRQoL) of the Chinese population by using the Chinese medicine quality of life-11 dimensions (CQ-11D) questionnaire and to identify factors associ...

    Authors: Jie Pan, Qianxi Han, Pingda Zhou, Jiameng Zhou, Mengpei Zhang and Wentao Zhu
    Citation: Health and Quality of Life Outcomes 2024 22:34
  15. Huntington’s disease (HD) is a progressive neurodegenerative disease with a devastating impact on patients and their families. Quantifying how treatments affect patient outcomes is critical for informing reimb...

    Authors: Ruta Sawant, Kyle Paret, Jennifer Petrillo, Aaron Koenig, Sorrel Wolowacz, Naoko Ronquest and Hugh Rickards
    Citation: Health and Quality of Life Outcomes 2024 22:33
  16. Long-term information on health-related quality of life (HRQOL) and mental health of non-hospitalized individuals with „post COVID-19 syndrome“ (PCS) is scarce. Thus, the objectives of the present study were t...

    Authors: Inge Kirchberger, Christine Meisinger, Tobias D. Warm, Alexander Hyhlik-Dürr, Jakob Linseisen and Yvonne Goßlau
    Citation: Health and Quality of Life Outcomes 2024 22:32
  17. The quality of patient-reported outcome measures (PROMs) used to assess the outcomes of primary hyperparathyroidism (PHPT), a common endocrine disorder that can negatively affect patients’ health-related quali...

    Authors: George Liang, Manraj N. Kaur, Carrie G. Wade, Maria O. Edelen, David W. Bates, Andrea L. Pusic and Jason B. Liu
    Citation: Health and Quality of Life Outcomes 2024 22:31
  18. The involvement of quality of life as the UNAIDS fourth 90 target to monitor the global HIV response highlighted the development of patient-reported outcome (PRO) measures to help address the holistic needs of...

    Authors: Rui Zhou, Ying-Jing Zheng, Bei-Jia Wang, Donald L. Patrick, Todd C. Edwards, Jing-Yi Yun, Jie Zhou, Ren-Jun Gu, Bing-Hui Miao and Hong-Mei Wang
    Citation: Health and Quality of Life Outcomes 2024 22:30
  19. To assess the feasibility, repeatability, validity and responsiveness of the EQ-5D-3L in Krio for patients with stroke in Sierra Leone, the first psychometric assessment of the EQ-5D-3L to be conducted in pati...

    Authors: Daniel Youkee, Sahr Pessima, Catherine Sackley, Marina Soley-Bori, Gibrilla F. Deen and Iain J. Marshall
    Citation: Health and Quality of Life Outcomes 2024 22:29
  20. The use of open-ended questions supplementing static questionnaires with closed questions may facilitate the recognition of symptoms and toxicities. The open-ended ‘Write In three Symptoms/Problems (WISP)’ ins...

    Authors: Leslye Rojas-Concha, Juan Ignacio Arrarrás, Thierry Conroy, Tara Chalk, Monica Guberti, Bernhard Holzner, Olga Husson, Dagmara Kuliś, Omar Shamieh, Claire Piccinin, María José Puga, Gudrun Rohde and Mogens Groenvold
    Citation: Health and Quality of Life Outcomes 2024 22:28
  21. This study examined fatigue in patients treated for childhood acute lymphoblastic leukemia (ALL) over a 2-year period (3- to 27-months post-treatment completion), from the perspective of children and parent ca...

    Authors: S. Walsh, M. Mulraney, M.C. McCarthy and Cinzia R. De Luca
    Citation: Health and Quality of Life Outcomes 2024 22:27
  22. Cancer survivors experience a decrement in health-related quality of life (HRQoL) resulting from the disease as well as adverse effects of therapy. We evaluated the HRQoL of cancer patients, stratified by prim...

    Authors: Jyoti Dixit, Nidhi Gupta, Amal Kataki, Partha Roy, Nikita Mehra, Lalit Kumar, Ashish Singh, Pankaj Malhotra, Dharna Gupta, Aarti Goyal, Kavitha Rajsekar, Manjunath Nookala Krishnamurthy, Sudeep Gupta and Shankar Prinja
    Citation: Health and Quality of Life Outcomes 2024 22:26
  23. Health-state utility values (HSUVs) for post-transplant refractory cytomegalovirus (CMV) infection (with or without resistance [R/R]) were determined using a time trade-off (TTO) survey completed by 1,020 memb...

    Authors: Waqas Ahmed, Louise Longworth, Yemi Oluboyede, Peter Cain, Stacey L. Amorosi, Sarah Hill and Ishan Hirji
    Citation: Health and Quality of Life Outcomes 2024 22:24
  24. Multimorbidity, body pain, sleep disturbance, and depression are major clinical and public health challenges. This paper aimed to examine the associations of multimorbidity with body pain, sleep duration, and ...

    Authors: Xin Ye and Xinfeng Wang
    Citation: Health and Quality of Life Outcomes 2024 22:23
  25. Multidimensional health-related quality of life (HRQOL) instruments, such as the EQ-5D, are increasingly used to assess inequalities in health. However, it is necessary to explore the ability of these instrume...

    Authors: Bernardo Rangel Tura, Milene Rangel da Costa, Sylvia Lordello, Danillo Barros, Yuri Souza and Marisa da Silva Santos
    Citation: Health and Quality of Life Outcomes 2024 22:22
  26. Globally as well as in Sweden, diseases that are caused by unhealthy lifestyle habits are the most common causes of death and disability. Even though there are guidelines that oblige all health-care profession...

    Authors: Sara Alenius, Albert Westergren, Petra Nilsson Lindström, Marie Nilsson, Marie Rask and Lina Behm
    Citation: Health and Quality of Life Outcomes 2024 22:20
  27. Despite a number of respiratory syncytial virus (RSV) vaccine candidates being tested in clinical trials, disease-specific, self-reported instruments assessing symptom severity of RSV infection from the perspe...

    Authors: Valerie Williams, Carla DeMuro Romano, Lyn Finelli, Shanshan Qin, Todd L. Saretsky, Jia Ma, Sandy Lewis, Matthew Phillips, Richard H. Osborne and Josephine M. Norquist
    Citation: Health and Quality of Life Outcomes 2024 22:19
  28. (1) To identify instruments used to assess quality of life (QoL) in children and adolescents with neuromuscular diseases; (2) To identify the psychometric properties contained in these instruments.

    Authors: Karoliny Lisandra Teixeira Cruz, Isadora Cristina Sousa Santos, Cyntia Rogean de Jesus Alves de Baptista and Ana Claudia Mattiello-Sverzut
    Citation: Health and Quality of Life Outcomes 2024 22:18
  29. Syphilis is a sexually transmitted infection causing significant global morbidity and mortality. To inform policymaking and economic evaluation studies for syphilis, we summarised utility and disability weight...

    Authors: Patrick Miao, Fern Terris-Prestholt, Christopher K. Fairley, Joseph D. Tucker, Virginia Wiseman, Philippe Mayaud, Ying Zhang, Jane Rowley, Sami Gottlieb, Eline L. Korenromp, Caroline G. Watts and Jason J. Ong
    Citation: Health and Quality of Life Outcomes 2024 22:17
  30. AP-7D is a newly developed preference-based measure (PBM) in East and Southeast Asia. However, no value set has been established yet. Comparison of the characteristics of value sets obtained by different metho...

    Authors: Takeru Shiroiwa, Tatsunori Murata, Yasuhiro Morii, Eri Hoshino and Takashi Fukuda
    Citation: Health and Quality of Life Outcomes 2024 22:16
  31. A condition-specific instrument is necessary to measure the health-related quality of life among those with polycystic ovary syndrome (PCOS), the most common chronic endocrinopathy among women. The first instr...

    Authors: Pamela J. Wright, Abbas S. Tavakoli and Robin M. Dawson
    Citation: Health and Quality of Life Outcomes 2024 22:15
  32. Understanding consequences of poor chelation compliance is crucial given the enormous burden of post-transfusional iron overload complications. We systematically reviewed iron-chelation therapy (ICT) complianc...

    Authors: Wan Jin Lee, Nurul Ain Mohd Tahir, Geok Ying Chun and Shu Chuen Li
    Citation: Health and Quality of Life Outcomes 2024 22:14
  33. Trajectories of health-related quality of life (HRQoL) after driving cessation (DC) are thought to decline steeply, but for some, HRQoL may improve after DC. Our objective is to examine trajectories of HRQoL f...

    Authors: Thelma J. Mielenz, Haomiao Jia, Carolyn DiGuiseppi, Lisa J. Molnar, David Strogatz, Linda L. Hill, Howard F. Andrews, David W. Eby, Vanya C. Jones and Guohua Li
    Citation: Health and Quality of Life Outcomes 2024 22:13
  34. The aim of this study was to estimate the impact of mild-to-moderate COVID-19 on health-related quality of life (HRQoL) over time among individuals in the United Kingdom, adding to the evidence base that had f...

    Authors: Ioana-Alexandra Soare, Wajeeha Ansari, Jennifer L. Nguyen, Diana Mendes, Waqas Ahmed, Joanna Atkinson, Amie Scott, Jessica E. Atwell, Louise Longworth and Frauke Becker
    Citation: Health and Quality of Life Outcomes 2024 22:12
  35. Patient-Reported Outcomes Measurement Information System (PROMIS®) Dyspnea Activity Motivation & Requirement item pool and sleep related impairments (SRI) item bank are designed in assessing the impact of dysp...

    Authors: Monira I. Aldhahi, Hadeel R. Bakhsh, Bodor H. Bin Sheeha and Rehab Alhasani
    Citation: Health and Quality of Life Outcomes 2024 22:11

    The Correction to this article has been published in Health and Quality of Life Outcomes 2024 22:25

  36. Evaluation of psychosocial consequences of lung cancer screening with LDCT in high-risk populations has generally been performed using generic psychometric instruments. Such generic instruments have low covera...

    Authors: Asha Bonney, John Brodersen, Volkert Siersma, Katharine See, Henry M. Marshall, Daniel Steinfort, Louis Irving, Linda Lin, Jiashi Li, Siyuan Pang, Paul Fogarty, Fraser Brims, Annette McWilliams, Emily Stone, Stephen Lam, Kwun M. Fong…
    Citation: Health and Quality of Life Outcomes 2024 22:10
  37. Nutrition care can positively affect multiple aspects of patient’s health; outcomes are commonly evaluated on the basis of their impact on a patient’s (i) illness-specific conditions and (ii) health-related qu...

    Authors: Raquel Clapés Pemau, Patricia González-Palacios and Kirk W. Kerr
    Citation: Health and Quality of Life Outcomes 2024 22:9
  38. Patient-reported outcomes (PROs) are frequently used in a variety of settings, including clinical trials and clinical practice. The definition of PRO and quality of life (QOL) and their relationship have been ...

    Authors: Takako Kaneyasu, Shinya Saito, Kikuko Miyazaki, Yoshimi Suzukamo, Mariko Naito, Takashi Kawaguchi, Takako Eguchi Nakajima, Takuhiro Yamaguchi and Kojiro Shimozuma
    Citation: Health and Quality of Life Outcomes 2024 22:8
  39. The Short Warwick and Edinburgh Mental Wellbeing Scale (SWEMWBS) is a widely used non-preference-based measure of mental health in the UK. The primary aim of this paper is to construct an algorithm to translat...

    Authors: Anju Devianee Keetharuth, Laura A. Gray, Ellen McGrane, Hannah Worboys and Giovany Orozco-Leal
    Citation: Health and Quality of Life Outcomes 2024 22:7
  40. Following the Russian-Ukrainian conflict, the well-being of millions of Ukrainians has been jeopardised. This study aims to translate and test the psychometric features of the Ukrainian version of the General ...

    Authors: Roberto Benoni, Anna Sartorello, Mariangela Mazzi, Loretta Berti, Marina Sorina, Elena Paiola, Giovanna Varischi, Stefano Tardivo, Michela Rimondini and Francesca Moretti
    Citation: Health and Quality of Life Outcomes 2024 22:6
  41. Older adults present a variety of oral diseases and conditions, in addition to co-morbidities and limited access to dental care, which significantly impact their oral health-related quality of life (OHRQoL). T...

    Authors: Naira Figueiredo Deana, Yolanda Pardo, Montse Ferrer, Gerardo Espinoza-Espinoza, Olatz Garin, Patricia Muñoz-Millán, Claudia Atala-Acevedo, Àngels Pont, Margarita Cancino and Carlos Zaror
    Citation: Health and Quality of Life Outcomes 2024 22:5
  42. Quality-of-life is an essential outcome for quality assessment and economic evaluation in health and social care. The-Quality-of-Life – Aged Care Consumers (QOL-ACC) is a new preference-based quality-of-life m...

    Authors: Kiri Lay, Matthew Crocker, Lidia Engel, Julie Ratcliffe, Rachel Milte and Claire Hutchinson
    Citation: Health and Quality of Life Outcomes 2024 22:4
  43. The EQ-VAS is an important component of the EQ-5D questionnaire. However, there is limited evidence comparing its performance to the EQ-5D utility score, which restricts its use in the population. This study ...

    Authors: Richard Huan Xu, Ruiqi Sun, Lidan Tian, Annie Wai-ling Cheung and Eliza Laiyi Wong
    Citation: Health and Quality of Life Outcomes 2024 22:2
  44. Peripheral intravenous catheters (PIVCs) are essential for successful administration of intravenous treatments. However, insertion failure and PIVC complications are common and negatively impact patients’ heal...

    Authors: Emily N. Larsen, Nicole Marsh, Claire M. Rickard, Gabor Mihala, Rachel M. Walker and Joshua Byrnes
    Citation: Health and Quality of Life Outcomes 2024 22:1
  45. The Paediatric Eosinophilic Oesophagitis Module (PedsQL-EoE) was developed in English as a valid and reliable questionnaire to assess health-related quality of life (HRQoL) in children with EoE. The aim of thi...

    Authors: Ruth Garcia – Martinez de Bartolomé, Josefa Barrio-Torres, MLuz Cilleruelo- Pascual, Juan José Rodríguez-Soler, Ángel Gil-de Miguel and Tomás Sebastián-Viana
    Citation: Health and Quality of Life Outcomes 2023 21:133
  46. Genomic testing transforms the diagnosis and management of rare conditions. However, uncertainty exists on how to best measure genomic outcomes for informing healthcare priorities. Using the HTA-preferred meth...

    Authors: Tianxin Pan, You Wu, James Buchanan and Ilias Goranitis
    Citation: Health and Quality of Life Outcomes 2023 21:132

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