Skip to main content

Table 1 Demographic and clinical characteristics of the sample (N = 196)

From: An assessment of the psychometric properties of the Coping Strategies Questionnaire – Sickle Cell Disease (CSQ-SCD) among adults in the United States

Characteristics

N (%)

SCD type

Hemoglobin SS (SCA)

135 (68.88)

Other*

61 (31.12)

Age, mean (SD)

36 (9.88)

Sex

Male

27 (13.78)

Female

150 (76.50)

Missing

19 (9.70)

Race/ethnicity

African American/Black

164 (83.67)

Other++

13 (6.63)

Missing

19 (9.69)

Living status

Living alone

35 (17.86)

Living with someone

141 (71.94)

Missing

20 (10.20)

Education level

High school or less

30 (15.31)

More than high school

147 (75.00)

Missing

19 (9.69)

Employment status

Employed (full time/part-time)

80 (40.82)

Unemployed

97 (49.49)

Missing

19 (9.69)

Region

Northeast

46 (23.47)

Midwest

39 (19.89)

South

69 (35.20)

West

23 (11.73)

Missing

19 (9.69)

Insurance

Yes

171 (87.24)

No

5 (2.55)

Missing

20 (10.20)

Insurance type

Public

106 (54.08)

Private

46 (23.47)

Both

19 (9.69)

Missing

24 (12.24)

Access to opioids

Most of the times

30 (15.31)

Sometimes

84 (42.86)

Never

58 (26.60)

Missing

24 (12.24)

Medical health conditions^

At least 2

82 (41.84)

More than 2

114 (58.16)

Duration of most recent pain attack (crisis)

1–23 h

35 (17.86)

1–3 days

64 (32.65)

4–6 days

36 (18.37)

1–2 weeks

31 (15.82)

More than 2 weeks

13 (6.63)

Missing

17 (8.67)

Number of sickle cell pain attacks (crises) in the past year, mean (SD)

3.12 (1.22)

Sickle cell severity score%, mean (SD)

51.95 (8.10)

Sickle cell frequency score%, mean (SD)

51.41 (9.51)

  1. SCA, Sickle Cell Anemia; SD, Standard Deviation; QOL, Quality of Life
  2. *Hemoglobin SC, Hemoglobin S beta-thalassemia (zero), Hemoglobin S beta-thalassemia (plus), Hemoglobin SD
  3. ++Other includes White/Caucasian, American Indian/Alaskan Native, Asian, Native Hawaiian/Other Pacific Islander, Hispanic, Middle Eastern, Mixed race
  4. ^Measured using the ASCQ-Me Medical History Checklist
  5. %Measured using the ASCQ-Me Pain Episode Measure