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Table 1 Characteristics of included patient-reported outcome measures (PROMs).

From: Patient-reported outcome measures for primary hyperparathyroidism: a systematic review of measurement properties

PROM

Construct

Target Population

Mode of Administration

Recall Period

Total Number of Items

Subscales (Number of Items)

Response Options

Range of Scores/Scoring

SF-36

Quality of life

PHPT

Self-administered

Past 4 weeks

36

Physical functioning (10), role limitations-physical (4), role limitations-emotional (3), energy (4), emotional well-being (5), social functioning (2), pain (2), general health (5)

Variable adjectival scales

0-100 (higher scores indicate better quality of life)

PAS

Symptom presence and severity

PHPT

Self-administered

Today

13

Bone pain (1), feeling tired easily (1), mood swings (1), feeling ‘‘blue’’ or depressed (1), pain in the abdomen (1), feeling weak (1), feeling irritable (1), pain in the joints (1), being forgetful (1), difficulty getting out of a chair or car (1), headaches (1), itchy skin (1), being thirsty (1)

0-100 visual analogue scales (0 is none, 100 is extreme)

0-1300 (lower scores indicate lower symptom burden)

PHPQoL

Quality of life

PHPT

Self-administered

Past 4 weeks

16

Physical functioning (9), emotional functioning (7)

5-point Likert adjectival scales (always, many times, from time to time, hardly ever,

and never) except 1 item that includes an additional “not applicable” response option

0-100 (higher scores indicate better quality of life)

  1. SF-36: 36-item Short Form Survey; PAS: Parathyroidectomy Assessment of Symptoms; PHPQoL: Primary Hyperparathyroidism Quality of Life
  2. PHPT: primary hyperparathyroidism