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Table 7 Bank of 25 items in the final PROHIV-OLD

From: Development and validation of the patient-reported outcome for older people living with HIV/AIDS in China (PROHIV-OLD)

Dimension

Item no. and brief item content

Physical symptoms

1 Feel tired

 

3 Sleep disturbance

 

10 Have a lot of energy

 

11 Discomfort in chest

 

12 Memory is affected

 

55 As healthy as peers

Mental status

13 Feel depressed

 

15 Had thoughts of suicide

 

16 Be desperate

 

26 Easy to lose temper

Illness perception

19 Worry about getting worse

 

20 Worry that HIV/AIDs will cause or aggregate other diseases

 

21 Worry that treatment of other diseases will be affected

 

23 My family will be influenced if my disease is known by others

Family relationship

32 Be estranged from family members

 

34 My family cares me

 

35 My family understands me

Treatment dimension

44 Can go to hospital independently

 

45 Believe my disease can be controlled by current treatment

 

47 Treatment side effects influenced my life

 

49 Give up better treatment due to economic pressure

 

50 Actively seek disease information

 

53 Go to hospital is convenient

 

54 Pay attention to everyday diet and life routine