Table 2 Characteristics of instrument reliability and validity
QoL Instruments | Number of studies | Number of items | Outcome Domains | Application mode | Scale construction | Language | Reability | Validity |
|---|---|---|---|---|---|---|---|---|
PedsQL TM Inventory 3.0 Neuromuscular Module [27, 29, 30, 33, 35, 36] | 6 | 17 (2 to 4 years) 25 (8 to 18 years) | Disease Communication Family resources | Patient and responsible interview | 3 points—Likert scale (2 to 4 years questionnaire) 5 points- Likert scale (8 to 18 years questionnaire) | Italian [29] Thai [30] Chinese [35] Czech [36] | Internal consistency reliability(α = 0.7) [30] Stability reliability/ test–retest (ICC 0.69–0.82) [30] Internal consistency reliability(α = 0.7) (ICC 0.82–0.87) [33] Stability reliability/ test–retest (α = 0.7) (ICC 0.67–0.87) [33] | Construction validity [30] Construction validity [33] |
PedsQL ™ Inventory 4.0 Neuromuscular Module [28, 29, 32, 34, 37, 41] | 6 | 23 | Physical Emotional Social School | Patient and responsible interview | 3 points—Likert scale (5 to 7 years questionnaire) 5 points- Likert scale ( 2 to 4 and 8 to 18 years questionnaire) | Italian [29] Turkish [32] Chinese [41] | Internal reliability (α ≥ 0.7) [34] Stability reliability (ICC 0.74–0.88) [34] | - |
PedsQL™ Módulo DMD 3.0 [31] | 1 | 18 | Activities of daily living Treatment barriers Preoccupation Communication | Patient and responsible interview | 5 points/ Likert scale | Thai | Stability reliability/ test–retest (ICC 0.74–0.88) | Content validity |
SOLE [38] | 1 | 33 | Self-perception of race Health status Level and quality of physical activity Overall performance Social and family participation Feelings | Interview patient and parents/ caregivers | 3 points/ Likert scale | Italian | - | - |
KIDSCREEN [39] | 1 | 27 | Physical activity and health General mood and feelings FamÃly and free time Friends School and learning | Completion of the questionnaire (self-administered) by the patient and guardian | 5 points/ Likert scale | Persian | - | - |
LSI-A [40] | 1 | 45 | General welfare Interpersonal relationship Development Personal satisfaction Leisure and recreation | Patient Interview | 5 points/ Likert scale | Portuguese (Brazil) | Reproductibility (ICC = 0.69–0.80) Reliability internal consistency (α = , 0.87 e 0.89) | - |