Skip to main content

Table 2 Profile of EQ-5D and PROMIS-29

From: Measurement properties of the EQ-5D-5L and PROPr in patients with spinal muscular atrophy

Variable

Ceiling effect (%)

Floor effect (%)

Mean

Standard deviation

Median

Range

EQ-5D-5L dimensions

      

Mobility

11.7

65.7

–

–

–

–

Self-care

49.6

22.6

–

–

–

–

Usual activities

29.2

8

–

–

–

–

Pain/discomfort

30.7

47.4

–

–

–

–

Anxiety/Depression

35.8

28.5

–

–

–

–

Best health (11,111)

0.0

–

–

–

–

–

Worst health (55,555)

–

0.0

–

–

–

–

EQ-5D utility score

0.7

0.7

0.27

0.25

0.3

-0.35–0.75

EQ-VAS

1.5

2.2

57.6

23.5

57.5

7 ~ 100

PROMIS-29 subscales

      

Anxiety/Fear

0.7

16.8

57.7

10.3

57.5

40.3–81.4

Cognition

0.7

0.7

49.9

9.9

49.3

25.2–75.9

Depression/Sadness

3.6

18.2

58.2

10.6

58.9

41–79.3

Fatigue

2.2

3.6

54.4

8.9

53.2

33.7–75.8

Pain intensity VAS

0.7

27

2.4

2.3

2

0–10

Pain interference

2.2

32.1

53.5

9.6

55.7

41.6–75.6

Physical function

2.2

45.3

29.1

8.2

26.5

22.6–57

Sleep disturbance

0.7

2.9

49.3

6.5

50.1

32–63.9

Social roles and activities

2.9

15.3

41.3

9.1

40.3

27.5–64.2

PROPr

0.7

0.7

0.25

0.16

0.22

0.04–0.93