Table 5 Proportions of missing answers in EPIC items at 0, 6 and 12 months post-diagnosis
EPIC domain | Item | 0 months, n = 625 | 6 months, n = 598 | 12 months, n = 588 | Mean |
|---|---|---|---|---|---|
Urinary incontinence | 1. Over the past 4 weeks, how often have you leaked urine? | 1.3% | 1.2% | 0.3% | 0.9% |
2. Which of the following best describes your urinary control during the last 4 weeks? | 1.3% | 1.2% | 0.3% | 0.9% | |
3. How many pads of adult diapers per day did you usually use to control leakage during the last 4 weeks? | 2.2% | 1.2% | 0.2% | 1.2% | |
4. a. How big a problem, if any, has dripping or leaking urine been for you buring the last 4 weeks? | 4.0% | 3.5% | 2.4% | 3.3% | |
Urinary irritative | 4. b. How big a problem, if any, has pain or burning of urination been for you buring the last 4 weeks? | 3.8% | 3.7% | 3.6% | 3.7% |
4. c. How big a problem, if any, has bleeding with urination been for you during the last 4 weeks? | 4.3% | 5.3% | 3.9% | 4.5% | |
4. d. How big a problem, if any, has weak urine stream or incomplete emptying been for you during the last 4 weeks? | 3.4% | 2.2% | 2.4% | 2.7% | |
4. e. How big a problem, if any, has need to urinate frequently during the day been for you during the last 4 weeks? | 3.0% | 2.5% | 2.2% | 2.6% | |
Not in domain | 5. Overall, how big a problem has your urinary function been for you during the last 4 weeks? | 1.4% | 1.0% | 0.7% | 1.0% |
Bowel | 6. a. How big a problem, if any, has urgency to have a bowel movement been for you? | 2.1% | 2.5% | 1.4% | 2.0% |
6. b. How big a problem, if any, has increased frequency of bowel movements been for you? | 3.2% | 2.8% | 1.5% | 2.5% | |
6. c. How big a problem, if any, has losing control of your stools been for you? | 3.5% | 2.7% | 1.9% | 2.7% | |
6. d. How big a problem, if any, has bloody stools been for you? | 3.5% | 3.0% | 2.6% | 3.0% | |
6. e. How big a problem, if any, has abdominal/pelvic/rectal pain been for you? | 2.9% | 2.5% | 1.9% | 2.4% | |
7. Overall, how big a problem have your bowel habits been for you during the last 4 weeks? | 0.8% | 0.3% | 0.7% | 0.6% | |
Sexual | 8. a. How would you rate your ability to have an erection during the last 4 weeks? | 4.3% | 3.2% | 3.9% | 3.8% |
8. b. How would you rate your ability to reach orgasm (climax) during the last 4 weeks? | 6.4% | 4.3% | 6.0% | 5.6% | |
9. How would you describe the usual QUALITY of your erections during the last 4 weeks? | 3.5% | 2.3% | 3.2% | 3.0% | |
10. How would you describe the usual FREQUENCY of your erections during the last 4 weeks? | 8.3% | 5.7% | 6.0% | 6.7% | |
11. Overall, how would you rate your ability to function sexually during the last 4 weeks? | 4.6% | 3.7% | 4.1% | 4.1% | |
12. Overall, how big a problem has your sexual function or lack of sexual function been for you during the last 4 weeks? | 4.3% | 2.5% | 3.4% | 3.4% | |
Hormonal | 13. a. How big a problem during the last 4 weeks, if any, has hot flashes been for you? | 5.9% | 6.2% | 5.6% | 5.9% |
13. b. How big a problem during the last 4 weeks, if any, has breast tenderness/ enlargement been for you? | 8.6% | 8.8% | 8.0% | 8.5% | |
13. c. How big a problem during the last 4 weeks, if any, has feeling depressed been for you? | 4.2% | 5.3% | 4.6% | 4.7% | |
13. d. How big a problem during the last 4 weeks, if any, has lack of energy been for you? | 4.3% | 4.8% | 4.4% | 4.5% | |
13. e. How big a problem during the last 4 weeks, if any, has change in body weight been for you? | 5.3% | 4.5% | 4.4% | 4.7% |