Table 2 Number and proportion of registries collecting PROMs at various follow up time points stratified by region and condition. Follow up point t0 is the reported baseline time point or time of intervention as specified in the article or report. Follow up point t1 is from 0 to 1 year, follow up point t2 is from 1 to < 2 years, follow up point t3 is from 2 to < 5 years, follow up point t4 is from 5 to < 10 years and follow up point t5 is from 10 + years
Registry type | Follow up points | |||||
|---|---|---|---|---|---|---|
t0 | t1 | t2 | t3 | t4 | t5 | |
All registries (n = 121) | 92 (76%) | 57(47%) | 69 (57%) | 33 (27%) | 12 (10%) | 2 (2%) |
By region | Â | Â | Â | Â | Â | Â |
North & South America (33) | 27 (82%) | 14 (42%) | 17 (54%) | 7 (21%) | 2 (6%) | NA |
Scandinavia (31) | 24 (77%) | 13 (42%) | 21 (68%) | 8 (26%) | 6 (19%) | 1 (3%) |
Europe (excluding Scandinavia) (20) | 18 (90%) | 13 (65%) | 9 (45%) | 6 (30%) | 2 (10%) | 1 (5%) |
Oceania (27) | 14 (61%) | 13(57%) | 17 (74%) | 9 (39%) | 2 (7%) | NA |
Global (8) | 7 (88%) | 3 (38%) | 4 (50%) | 2 (25%) | NA | NA |
Asia (2) | 2 (100%) | 1 (50%) | 1 (50%) | 1 (50%) | NA | NA |
By condition | Â | Â | Â | Â | Â | Â |
Arthroplasty/Reconstruction/Joint related registries (33) | 29 (88%) | 18 (55%) | 21 (64%) | 13 (40%) | 7 (21%) | 1 (3%) |
Cancer registries (25) | 18 (72%) | 8 (32%) | 17 (68%) | 6 (24%) | 3 (12%) | NA |
Chronic disease registries (19) | 14 (74%) | 8 (42%) | 8 (42%) | NA | 1 (6%) | 1 (6%) |
Trauma/Burns/Pain registries (10) | 6 (60%) | 9 (90%) | 6 (60%) | 4 (40%) | NA | NA |
Spine registries (8) | 7 (88%) | 5 (50%) | 7 (88%) | 3 (38%) | NA | NA |
Miscellaneous registries (7) | 7 (100%) | 1 (14%) | 1 (14%) | 4 (50%) | NA | NA |
Cardiac registries (6) | 3 (50%) | 3 (50%) | 3 (50%) | NA | NA | NA |
General surgery and device registries (5) | 3 (60%) | 3 (60%) | 4 (80%) | 3 (60%) | 1 (20%) | NA |
Rare disease registries (4) | 2 (50%) | 1 (25%) | NA | NA | NA | NA |
Gynaecological registries (4) | 3 (75%) | 1 (25%) | 2 (50%) | NA | NA | NA |