Table 2 Distribution of responses for the ASCOT Proxy: both perspectives (n=313)
| Â | Outcome states/response options % (N) | Â | |||
|---|---|---|---|---|---|
Social care related-quality of life attribute | Ideal state | No unmet needs | Some unmet needs | High-level of unmet needs | Missing |
Food and drink | |||||
 Proxy-Proxy | 62.62% (196) | 20.77% (65) | 9.27% (29) | 6.39% (20) | 0.96% (3) |
 Proxy-Person | 67.73% (212) | 20.13% (63) | 9.90% (31) | 0.32% (1) | 1.92% (6) |
Accommodation cleanliness and comfort | |||||
 Proxy-Proxy | 61.34% (192) | 27.80% (87) | 9.58% (30) | 1.28% (4) | n/a |
 Proxy-Person | 74.76% (234) | 19.49% (61) | 4.15% (13) | 0.32% (1) | 0.32% (4) |
Personal cleanliness and comfort | |||||
 Proxy-Proxy | 42.17% (132) | 43.45% (136) | 12.78% (40) | 1.60% (5) | n/a |
 Proxy-Person | 70.93% (222) | 23.96% (75) | 4.15% (13) | 0.32% (1) | 0.64% (2) |
Personal safety | |||||
 Proxy-Proxy | 58.47% (183) | 29.07% (91) | 28% (8.95) | 2.88% (9) | 0.64% (2) |
 Proxy-Person | 58.15% (182) | 24.28% (76) | 12.14% (38) | 3.83% (12) | 1.60% (5) |
Social participation and involvement | |||||
 Proxy-Proxy | 14.38% (45) | 22.36% (70) | 42.49% (133) | 20.45% (64) | 0.32% (1) |
 Proxy-Person | 21.09% (66) | 28.43% (89) | 28.12% (88) | 21.41% (67) | 0.96% (3) |
Occupation | |||||
 Proxy-Proxy | 7.67% (24) | 17.25% (54) | 44.41% (139) | 30.35% (95) | 0.32% (1) |
 Proxy-Person | 14.38% (45) | 24.60% (77) | 34.19% (107) | 25.88% (81) | 0.96% (3) |
Control over daily life | |||||
 Proxy-Proxy | 13.10% (41) | 30.67% (96) | 25.56% (80) | 29.71% (93) | 0.96% (3) |
 Proxy-Person | 20.77% (65) | 24.92% (78) | 23.32% (73) | 29.39% (92) | 1.60% (5) |
Dignity | |||||
 Proxy-Proxy | 29.07% (91) | 43.13% (135) | 17.25% (54) | 3.83% (12) | 6.71% (21) |
 Proxy-Person | 21.41% (67) | 36.42% (114) | 27.48% (86) | 7.67% (24) | 7.03% (22) |
ASCOT Proxy: overall scores (range: -0.17 – 1) | Total | Median | IQR | % (N) min value | % (N) max value |
 Proxy-Proxy | 284 | 0.63 | 0.21; 0.76 | 0% (0) | 1.3% (4) |
 Proxy-Person | 278 | 0.68 | 0.48; 0.81 | 0% (0) | 1.3% (4) |