Table 1 Sample Characteristics
Variable | Total | Mean (SD)/Median (IQR)/% (N) |
|---|---|---|
Sociodemographic characteristics | ||
 Age: Carer | 313 | 62.44 (12.04) |
 Age: Person with dementia | 312 | 81.47 (9.37) |
Gender: Carer | 313 | Â |
 Female |  | 75.72% (237) |
 Male |  | 24.28% (76) |
Ethnicity: Carer | 313 | Â |
 White/White British |  | 94.57% (296) |
 Multiple or mixed ethnic groups |  | 0.96% (3) |
 Asian/Asian British |  | 1.92% (6) |
 Black/African/Caribbean/Black British |  | 1.60% (5) |
 Other Ethnic group |  | 0.96% (3) |
Region | 303 | Â |
 Greater London |  | 12.78% (40) |
 South East |  | 31.95% (100) |
 South West |  | 11.50% (36) |
 East of England |  | 6.39% (20) |
 East Midlands |  | 4.79% (15) |
 West Midlands |  | 7.03% (22) |
 Yorkshire and Humber |  | 10.22% (32) |
 North West |  | 9.58% (30) |
 North East |  | 2.56% (8) |
I/ADLS: proxy-proxy (number of ADLs with difficulty or unable to complete alone) | 310 | Median: 5 (IQR: 3; 8) |
Caregiving situation | ||
 Lives in the same household | 313 |  |
 Yes |  | 57.83% (181) |
 No |  | 42.17% (132) |
Relationship to a person living with dementia | 313 | Â |
 Husband/wife/partner |  | 41.53% (130) |
 Parent (mother, father) |  | 48.88% (153) |
 Sibling |  | 1.28% (4) |
 Other |  | 8.31% (26) |
Hours of care per week | 310 | Â |
 50 or more |  | 46.96% (147) |
 49 and less |  | 52.08% (163) |
Help with personal care | 311 | Â |
 Yes |  | 73.80% (231) |
 No |  | 25.56% (80) |
Help with giving medicines | 311 | Â |
 Yes |  | 80.51% (252) |
 No |  | 18.85% (59) |
Impact of caring on health | 311 | Â |
 Yes |  | 94.57% (296) |
 No |  | 4.79% (15) |
Home design suitability: proxy-proxy perspective | 313 | Â |
 Meets their needs very well |  | 32.27% (101) |
 Meets most of their needs |  | 46.65% (146) |
 Meets some of their needs |  | 17.89% (56) |
 Totally inappropriate |  | 3.19% (10) |
Satisfaction with social care services: Carer (7-point scale) | 309 | Median: 5 (IQR: 4; 6) |
Well-Being & Health | ||
 EQ-5D-5L: Carer | 313 | Median: 0.77 (IQR: 0.71; 0.88) |
 EQ-5D-5L: Proxy-proxy | 311 | 0.26 (0.28) |
 EQ-5D-5L: Proxy-person | 309 | Median: 0.53 (IQR: 0.09; 0.74) |
 C-DEMQOL: Carer | 304 | 86.22 (18.86) |
 DEMQOL: Proxy-proxy | 291 | Median: 87 (IQR: 76; 99) |
 Overall quality of life: Carer | 312 | Median: 4 (IQR: 3; 4) |
 Overall quality of life: Proxy-proxy | 310 | Median: 3 (IQR: 2; 4) |
 Overall quality of life: Proxy-person | 310 | Median: 3 (IQR: 2; 4) |
 Carer Experience Scale (CES): Carer | 309 | Median: 64.38 (IQR: 49.63; 77.55) |
Mode of administration | 313 | Â |
 Online |  | 20.13% (63) |
 Paper |  | 79.87% (250) |