Table 3 Mean and median scores for other instruments by QOL-ACC dimensions and their levels

I am able to get around as much as I want to

 All of the time (74)

0.73 (0.10)

0.77 (0.70–0.81)

0.94 (0.09)

0.98 (0.92–1.0)

0.75 (0.23)

0.83 (0.66–0.92)

74.6 (17.5)

75 (65–85)

 Most of the time (64)

0.69 (0.11)

0.71 (0.63–0.76)

0.90 (0.09)

0.92 (0.85–0.97)

0.62 (0.26)

0.64 (0.49–0.82)

71.2 (18.4)

75 (57–84)

 Some of the time (28)

0.67 (0.14)

0.71 (0.60–0.79)

0.90 (0.09)

0.91 ( 0.85–0.98)

0.47 (0.34)

0.55 (0.25–0.71)

62.7 (21.9)

70 (50–80)

 A little/none of the time (34)

0.63 (0.18)

0.68 (0.53–0.76)

0.86 (0.12)

0.89 (0.84–0.94)

0.05 (0.32)

0.05 (-0.26–0.32)

52.2 (23.9)

50 (25–75)

 p. *

0.002

 < .001

 < .001

 < .001

When I experience pain, it is well managed

 All of the time (110)

0.72 (0.12)

0.77 (0.70–0.81)

0.94 (0.08)

0.97 (0.90–1.0)

0.67 (0.32)

0.78 (0.56–0.91)

72.8 (20.8)

80 (60–90)

 Most of the time (66)

0.66 (0.11)

0.69 (0.57–0.74)

0.88 (0.09)

0.89 (0.83–0.95)

0.44 (0.36)

0.50 (0.23–0.69)

63.3 (18.9)

70 (50–80)

 Some of the time (13)

0.68 (0.08)

0.69 (0.62–0.75)

0.89 (0.10)

0.92 (0.80–1.0)

0.50 (0.29)

0.58 (0.48–0.68)

66.3 (23.1)

70 (50–83)

 A little/none of the time (11)

0.57 (0.23)

0.59 (0.55–0.74)

0.84 (0.17)

0.87 (0.78–0.98)

0.10 (0.39)

0.13 (-0.28–0.39)

50.9 (21.4)

50 (25–65)

 p. *

 < .001

 < .001

 < .001

 < 0.001

I am generally happy

 All of the time (59)

0.76 (0.07)

0.78 (9.74–0.81)

0.97 (0.05)

1 (0.96–1.0)

071 (0.28)

0.75 (0.63–0.92)

75.8 (20.5)

80 (65–90)

 Most of the time (99)

0.69 (0.10)

71 (0.65–0.79)

0.91 (0.08)

0.92 (0.86–0.97)

0.50 (0.37)

0.59 (0.23–0.82)

67.9 (19.4)

75 (50–80)

 Some of the time (31)

0.64 (0.14)

0.67 (0.53–0.79)

0.86 (0.10)

0.86 (0.80–0.96)

0.47 (0.36)

0.56 (0.20–0.78)

59.0 (20.9)

60 (50–70)

 A little/none of the time (11)

0.46 (0.20)

0.46 (0.36–0.58)

0.75 (0.15)

0.75 (0.69–0.83)

0.35 (0.52)

0.52 (-0.01–0.77)

52.7 (23.5)

50 (25–80)

 p. *

 < .001

 < .001

 < .001

 < .001

I have as much independence as I want

 All of the time (69)

0.74 (0.10)

0.77 (0.73–0.81)

0.97 (0.05)

0.99 (0.96–1.0)

0.70 (0.26)

0.75 (0.64–0.86)

75.2 (18.1)

80 (70–90)

 Most of the time (93)

0.69 (0.11)

0.73 (9.65–0.78)

0.90 (0.08)

0.92 (0.85–0.97)

0.55 (0.33)

0.60 (0.37–0.83)

66.3 (20.3)

70 (50–80)

 Some of the time (18)

0.65 (0.10)

0.69 (0.57–0.72)

0.84 (0.1)

0.85 (0.75–0.90)

0.48 (0.36)

0.58 (0.20–0.77)

71.2 (20.2)

75 (60–85)

 A little/none of the time (20)

0.55 (0.17)

0.59 (0.43–0.69)

0.81 (0.14)

0.82 (0.77–0.88)

0.10 (0.47)

-0.34 (-0.28–0.62)

48.5 (22.9)

50 (25–67)

 p. *

 < .001

 < .001

 < .001

 < .001

I have good social relationships with family and friends

 All of the time (109)

0.74 (0.09)

0.77 (0.70–0.81)

0.94 (0.06)

0.96 (0.91–1.0)

0.58 (0.34)

0.68 (0.37–0.86)

71.4 (19.7)

75 (60–85)

 Most of the time (62)

0.68 (0.10)

0.70 (0.61–0.77)

0.90 (0.08)

0.90 (0.85–0.98)

0.57 (0.32)

0.64 (0.48–0.79)

66.6 (21.5)

70 (50–80)

 Some of the time (21)

0.57 (0.19)

0.62 (0.51–0.68)

0.81 (0.16)

0.84 0.75–0.94)

0.29 (0.47)

0.39 (-0.03–0.62)

56.1 (24.8)

55 (30–79)

 A little/none of the time (8)

0.50 (0.14)

0.45 (0.39–0.63)

0.79 (0.12)

0.75 (0.70–0.88)

0.57 (0.38)

0.76 (0.26–0.86)

63.7 (15.3)

60 (50–77)

 p. *

 < 0.001

 < 0.001

0.03

0.04

I have leisure activities/hobbies I enjoy

 All of the time (69)

0.73 (0.11)

0.76 (0.70–0.81)

0.95 (0.07)

0.98(0.91–1.0)

0.64 (0.28)

0.69 (0.48–0.86)

72.0 (21.0)

75 (60–90)

 Most of the time (69)

0.72 (0.10)

0.75 (0.67–0.79)

0.92 (0.07)

0.93 (0.87–0.98)

0.61 (0.31)

0.65 (0.49–0.85)

71.0 (18.7)

75 (60–85)

 Some of the time (44)

0.65 (0.13)

0.69 (0.58–0.75)

0.88 (0.10)

0.91 (0.79–0.96)

0.43 (0.40)

0.54 (0.14–0.74)

63.4 (20.4)

70 (50–80)

 A little/none of the time (18)

0.54 (0.18)

0.56 (0.41–0.69)

0.81 (0.15)

0.82 (0.73–0.90)

0.25 (0.54)

0.25 (-0.28–0.77)

53.0 (24.9)

50 (25–80)

 p. *

 < 0.001

 < 0.001

0.006

0.008