Table 3 Characteristics of included studies (20 studies)
From: Assessing the psychometric performance of EQ-5D-5L in dementia: a systematic review
Study references | Country | Study aim/type | Index or dimensions or both | Preference weights | Setting | Health Condition as reported by author | Self-report | Proxy report, details | Mean age (SD) | % female | N |
|---|---|---|---|---|---|---|---|---|---|---|---|
Easton, 2018 [14] | Australia | Psychometric analysis (trial data) | Both | England (Devlin et al. 2016) | Residential care homes (n = 17) across 4 states | Cognitive impairment, dementia and disability | Yes | Yes | 85.5 (8.5) | 74.5 | 541 |
Engel, 2020 [12] | Australia | Qualitative (content and face validity) | Dimensions | Not applicable | Community dwelling | Mild dementia and carers of people with dementia | Not applicable | Not applicable | 74.9 | 44.0 | 26 |
Griffiths, 2020 [27] | UK | Psychometric analysis (trial data) | Both | England (Devlin et al. 2016) | Residential care homes (n = 50) | Formal diagnosis of dementia (or > 4 on the FAST) | Yes | Yes | 85.6 (7.6) | 73.8 | 726 |
Handels, 2018 [23] | 8 European countries | Cross-sectional cohort study | Index | van Hout crosswalk UK (2012) | Community dwelling | Mild to moderate dementia | Yes | Yes | 78.0 (8.0) | 55.0 | 451 dyads |
Harrison, 2018 [16] | Australia | Cross-sectional cohort study | Index | England (Devlin et al. 2016) | Residential care homes (n = 17) across 4 states | Older adults 64.3% of whom had a dementia diagnosis | Yes | Yes | 85.5 (8.5) | 74.5 | 541 |
Hurley, 2020 [42] | UK | Feasibility study | Neither | Not applicable | Residential care homes (n = 3) | Care home residents (majority with mild dementia) | Yes | No | 89.0 | 82.9 | 35 |
Janssen, 2018 [24] | 8 European countries | Cross-sectional cohort study | Both | England (Devlin et al. 2016) | Community dwelling | Mild to moderate dementia | No | Yes | 77.4 (7.8) | 53.0 | 390 dyads |
Jurkeviciute, 2019 [41] | Italy | Business case development | Both | Spain (no reference provided) | Community dwelling | Elderly with Mild Cognitive Impairment and Mild Dementia | Not reported | Not reported | 79.0 (6.0) | 57.4 | 107 |
Maidment, 2020 [31] | UK | Feasibility study | Index | van Hout crosswalk UK (2012) | Residential care homes (n = 5) | Moderate to severe dementia | No | Yes | 83.6 (9.3) | 62.1 | 29 |
Martin, 2019 [28] | UK | Psychometric analysis (trial data) | Index | England (Devlin et al. 2016) | Residential care homes (n = 50) | Dementia | Yes | Yes | 85.5 | 73.2 | 1004 |
Meads, 2020 [29] | UK | Cost-effectiveness study | Index | England (Devlin et al. 2016) van Hout crosswalk UK (2012) | Residential care homes (n = 50) | Dementia | Yes | Yes | 85.6 (7.6) | 74.0 | 726 |
Perry-Duxbury, 2020 [25] | 8 European countries | Psychometric analysis | Index | England (Devlin et al. 2016) | Community dwelling | Mild to moderate dementia | No | Yes | 77.7 | 54.5 | 451 |
Ratcliffe, 2017 [36] | Australia | Psychometric analysis (trial data) | Index | England (Devlin et al. 2016) | Nursing Care Facilities (n = 3) | Frail older adults, 92.5% of whom had moderate to severe dementia | Yes | Yes | 88.6 (5.6) | 74.2 | 240 |
Rombach, 2020 [26] | 8 European countries | Statistical mapping study | Index | van Hout crosswalk UK (2012) | Memory clinics, general practices, community mental health teams | Dementia | Yes | Yes | 78.0 (8.0) | 55.0 | 451 |
Sopina, 2019 [34] | Australia | Empirical analysis of secondary data | Both | Australia (Viney et al. 2011) | Nursing homes (n = 20) | Advanced dementia (palliative stages of care) | No | Yes | 85.0 (8.0) | 63.0 | 284 |
Sopina, 2017 [35] | Denmark | Cost-effectiveness study | Index | Wittrup-Jensen KU et al. 2009 Danish TTO | Memory clinics | Mild Alzheimer's disease | Yes | Yes | 70.0 (7.4) | 43.0 | 200 |
Toh, 2020 [21] | Singapore | Feasibility/Psychometric analysis | Both | van Hout crosswalk (2012)Singapore | Nursing homes (n = 3) | Nursing home residents (% with dementia not reported) | No | Yes | 73.4 (13.5) | 51.3 | 229 |
Umegaki, 2020 [30] | Japan | Empirical analysis of primary data | Both | Not reported | Memory Clinic (n = 1) | Mild to moderate dementia | Yes | Yes | 80.1 (5.4) | 54.1 | 74 |
Usman, 2019 [40] | UK | Empirical analysis of secondary data | Both | van Hout crosswalk UK (2012) | Residential care homes (n = 24) | Dementia and cognitive impairment | Yes | Yes | 86.8 (7.6) | 68.0 | 117 |
van de Rijt, 2020 [37] | UK | Empirical analysis of primary data | Index | Not reported | Nursing homes (n = 4) | Dementia ( 63.1% were categorised as "severe") | Yes | No | 83.9 (8.0) | 62.2 | 111 |