Skip to main content

Table 1 Baseline characteristics

From: Factors associated with the health-related quality of life among people with Duchenne muscular dystrophy: a study using the Health Utilities Index (HUI)

 

DMD sample (n = 61)

Age, years

 

 Mean (SD)

8.0 (2.4)

 Median (IQR)

8 (6, 9)

 Min, max

5, 16

 By group, n (%)*

 

  5–7 years

29 (48)

  8–11 years

29 (48)

  12–16 years

3 (5)

NSAA total score

 

 Mean (SD)

21.0 (8.1)

 Median (IQR)

23 (15, 27)

 Min, max

4, 33

6MWD (m)

 

 Mean (SD)

348 (92)

 Median (IQR)

354 (311, 400)

 Min, max

108, 566

Timed 10MWR test (s)†

 

 Mean (SD)

7.5 (3.6)

 Median (IQR)

6.1 (5.2, 8.5)

 Min, max

3.4, 20.0

Timed RFF (s)†

 

 Mean (SD)

13.4 (15.9)

 Median (IQR)

6.8 (4.2, 12.0)

 Min, max

0.5, 63.0

RFF

 

 Unable to RFF independently, n (%)

19 (31)

 Unable to RFF, even with use of a chair, n (%)

6 (10)

  1. 6MWD = six-minute walk distance; NSAA = North Star Ambulatory Assessment; RFF = rising from floor; SD = standard deviation
  2. *While age categories 8-11y and 12-16y were initially investigated, the three patients in the 12-16y category were considered along with the 8-11y old boys, due to small sample size
  3. †n = 55