Skip to main content

Table 1 Baseline characteristics

From: Factors associated with the health-related quality of life among people with Duchenne muscular dystrophy: a study using the Health Utilities Index (HUI)

  DMD sample (n = 61)
Age, years  
 Mean (SD) 8.0 (2.4)
 Median (IQR) 8 (6, 9)
 Min, max 5, 16
 By group, n (%)*  
  5–7 years 29 (48)
  8–11 years 29 (48)
  12–16 years 3 (5)
NSAA total score  
 Mean (SD) 21.0 (8.1)
 Median (IQR) 23 (15, 27)
 Min, max 4, 33
6MWD (m)  
 Mean (SD) 348 (92)
 Median (IQR) 354 (311, 400)
 Min, max 108, 566
Timed 10MWR test (s)†  
 Mean (SD) 7.5 (3.6)
 Median (IQR) 6.1 (5.2, 8.5)
 Min, max 3.4, 20.0
Timed RFF (s)†  
 Mean (SD) 13.4 (15.9)
 Median (IQR) 6.8 (4.2, 12.0)
 Min, max 0.5, 63.0
RFF  
 Unable to RFF independently, n (%) 19 (31)
 Unable to RFF, even with use of a chair, n (%) 6 (10)
  1. 6MWD = six-minute walk distance; NSAA = North Star Ambulatory Assessment; RFF = rising from floor; SD = standard deviation
  2. *While age categories 8-11y and 12-16y were initially investigated, the three patients in the 12-16y category were considered along with the 8-11y old boys, due to small sample size
  3. †n = 55