Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN

Carlton, Jill; Powell, Philip A.

doi:10.1186/s12955-022-01964-4

Table 6 Overall rating and quality of evidence of measurement properties for included instruments against COSMIN criteria

From: Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN

	Content validity		Structural validity		Internal consistency		Hypotheses testing for construct validity		Cross-cultural validity/measurement invariance		Responsiveness
	COSMIN rating	Quality of evidence	COSMIN rating	Quality of evidence	COSMIN rating	Quality of evidence	COSMIN rating	Quality of evidence	COSMIN rating	Quality of evidence	COSMIN rating	Quality of evidence
BDI^a	±	Very low	?	None	?	None	?	None	?	None	?	None
Carer QoL	±	Very low	?	None	?	None	?	None	?	None	?	None
CSI	±	Very low	?	None	?	None	−	Very low	?	None	?	None
CSI+	±	Very low	?	None	?	None	?	None	?	None	?	None
CWBS	±	Very low	?	None	+	Moderate	?	None	?	None	?	None
DUKE	±	Very low	?	None	+	High	±	High	?	None	?	None
EQ-5D-3L^a	±	Very low	?	None	?	None	−	Low	?	None	?	None
EQ-5D-5L	±	Low	?	None	?	None	?	None	?	None	?	None
ESS	±	Very low	?	None	?	None	−	Low	?	None	?	None
ESSI	±	Very low	?	None	?	None	?	None	?	None	?	None
FAPGAR	±	Very low	?	None	+	High	+	High	?	None	?	None
FPQ^b	±	Very low	?	None	?	High	?	None	?	None	?	None
FSFI	±	Very low	?	None	?	None	?	None	?	None	?	None
HADS^a	±	Very low	No total score
HADS (Anxiety)	See HADS for rating of overall measure		?	None	+	Moderate	+	High	?	None	?	None
HADS (Depression)	See HADS for rating of overall measure		?	None	+	Moderate	+	High	?	None	?	None
K6	±	Very low	?	None	?	None	?	None	?	None	?	None
PAS	±	Very low	?	None	+	High	−	Very low	?	None	+	Moderate
PedsQL FIM	±	Very low	?	None	?	None	−	Very low	?	None	?	None
PPC	±	Very low	?	None	+	High	?	None	?	None	−	Moderate
PSQI	±	Very low	?	None	?	None	±	Moderate	?	None	?	None
PSS	±	Very low	?	None	+	Moderate	+	Low	?	None	?	None
QRS	±	Very low	?	None	+	Low	+	Moderate	?	None	?	None
SCL-90-R	±	Very low	?	None	?	None	+	Very low	?	None	?	None
SF-12	±	Very low	No total score
SF-12 (MCS)	See SF−12 for rating of overall measure		?	None	?	None	−	Low	?	None	?	None
SF-36^a	±	Very low	No total score
SF-36 (BP/Pain)	See SF−36 for rating of overall measure		?	None	+	Moderate	±	High	?	None	?	None
SF-36 (E\|F/VT)			?	None	+	Moderate	±	High	?	None	?	None
SF-36 (EW/MH)			?	None	+	Moderate	+	High	?	None	?	None
SF-36 (GH)			?	None	+	Moderate	+	High	?	None	?	None
SF-36 (MCS)			?	None	?	None	−	Low	?	None	?	None
SF-36 (PCS)			?	None	?	None	+	Low	?	None	?	None
SF-36 (PF)			?	None	+	Moderate	+	High	?	None	?	None
SF-36 (RE)			?	None	+	Moderate	+	High	?	None	?	None
SF-36 (RP)			?	None	+	Moderate	+	High	?	None	?	None
SF-36 (SF)			?	None	+	Moderate	±	High	?	None	?	None
SNQ	±	Very low	No total score
SNQ (Subscale A)	See SNQ for rating of overall measure		?	None	−	High	−	Very low	?	None	?	None
STAI-X (state)	±	Very low	?	None	?	None	−	Very low	?	None	?	None
STAI-X (trait)	±	Very low	?	None	?	None	−	Very low	?	None	?	None
SWLS^a	±	Very low	?	None	?	None	+	Very low	?	None	?	None
WHOQOL-BREF^a	±	Very low	?	None	?	None	±	Moderate	?	None	?	None
WAC-DBMD	±	Very low	?	None	+	High	?	None	?	None	+	Moderate
ZBI (4 item)	±	Very low	?	None	?	None	?	None	?	None	?	None
ZBI (12 item)	±	Very low	?	None	+	High	?	None	?	None	−	Moderate
ZBI (22 item)	±	Very low	−	High	+	High	±	Low	+	Very low	?	None

+, satisfactory results; −, unsatisfactory results; ±, inconsistent results; ?, indeterminate results. No evidence recorded across all instruments for reliability, measurement error, criterion validity, so omitted from this table. BP/Pain, bodily pain/pain subscale; E|F/VT, energy|fatigue/vitality subscale; EW/MH, emotional wellbeing/mental health subscale; GH, general health subscale; MCS, mental component summary score; PCS, physical component summary score; PF, physical functioning subscale; RE, role emotional subscale; RP, Role physical subscale; SF, social functioning subscale
^aEvidence and rating on the development study extracted from a prior review [20], as per COSMIN guidance [12]
^bFPQ has no total score, but internal consistency rating was the same for all subscales, as Cronbach’s alpha was presented as a range in the paper

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