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Table 6 Overall rating and quality of evidence of measurement properties for included instruments against COSMIN criteria

From: Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN

  Content validity Structural validity Internal consistency Hypotheses testing for construct validity Cross-cultural validity/measurement invariance Responsiveness
COSMIN rating Quality of evidence COSMIN rating Quality of evidence COSMIN rating Quality of evidence COSMIN rating Quality of evidence COSMIN rating Quality of evidence COSMIN rating Quality of evidence
BDIa ± Very low ? None ? None ? None ? None ? None
Carer QoL ± Very low ? None ? None ? None ? None ? None
CSI ± Very low ? None ? None Very low ? None ? None
CSI+ ± Very low ? None ? None ? None ? None ? None
CWBS ± Very low ? None + Moderate ? None ? None ? None
DUKE ± Very low ? None + High ± High ? None ? None
EQ-5D-3La ± Very low ? None ? None Low ? None ? None
EQ-5D-5L ± Low ? None ? None ? None ? None ? None
ESS ± Very low ? None ? None Low ? None ? None
ESSI ± Very low ? None ? None ? None ? None ? None
FAPGAR ± Very low ? None + High + High ? None ? None
FPQb ± Very low ? None ? High ? None ? None ? None
FSFI ± Very low ? None ? None ? None ? None ? None
HADSa ± Very low No total score
HADS (Anxiety) See HADS for rating of overall measure ? None + Moderate + High ? None ? None
HADS (Depression) ? None + Moderate + High ? None ? None
K6 ± Very low ? None ? None ? None ? None ? None
PAS ± Very low ? None + High Very low ? None + Moderate
PedsQL FIM ± Very low ? None ? None Very low ? None ? None
PPC ± Very low ? None + High ? None ? None Moderate
PSQI ± Very low ? None ? None ± Moderate ? None ? None
PSS ± Very low ? None + Moderate + Low ? None ? None
QRS ± Very low ? None + Low + Moderate ? None ? None
SCL-90-R ± Very low ? None ? None + Very low ? None ? None
SF-12 ± Very low No total score
SF-12 (MCS) See SF−12 for rating of overall measure ? None ? None Low ? None ? None
SF-36a ± Very low No total score
SF-36 (BP/Pain) See SF−36 for rating of overall measure ? None + Moderate ± High ? None ? None
SF-36 (E|F/VT) ? None + Moderate ± High ? None ? None
SF-36 (EW/MH) ? None + Moderate + High ? None ? None
SF-36 (GH) ? None + Moderate + High ? None ? None
SF-36 (MCS) ? None ? None Low ? None ? None
SF-36 (PCS) ? None ? None + Low ? None ? None
SF-36 (PF) ? None + Moderate + High ? None ? None
SF-36 (RE) ? None + Moderate + High ? None ? None
SF-36 (RP) ? None + Moderate + High ? None ? None
SF-36 (SF) ? None + Moderate ± High ? None ? None
SNQ ± Very low No total score
SNQ (Subscale A) See SNQ for rating of overall measure ? None High Very low ? None ? None
STAI-X (state) ± Very low ? None ? None Very low ? None ? None
STAI-X (trait) ± Very low ? None ? None Very low ? None ? None
SWLSa ± Very low ? None ? None + Very low ? None ? None
WHOQOL-BREFa ± Very low ? None ? None ± Moderate ? None ? None
WAC-DBMD ± Very low ? None + High ? None ? None + Moderate
ZBI (4 item) ± Very low ? None ? None ? None ? None ? None
ZBI (12 item) ± Very low ? None + High ? None ? None Moderate
ZBI (22 item) ± Very low High + High ± Low + Very low ? None
  1. +, satisfactory results; −, unsatisfactory results; ±, inconsistent results; ?, indeterminate results. No evidence recorded across all instruments for reliability, measurement error, criterion validity, so omitted from this table. BP/Pain, bodily pain/pain subscale; E|F/VT, energy|fatigue/vitality subscale; EW/MH, emotional wellbeing/mental health subscale; GH, general health subscale; MCS, mental component summary score; PCS, physical component summary score; PF, physical functioning subscale; RE, role emotional subscale; RP, Role physical subscale; SF, social functioning subscale
  2. aEvidence and rating on the development study extracted from a prior review [20], as per COSMIN guidance [12]
  3. bFPQ has no total score, but internal consistency rating was the same for all subscales, as Cronbach’s alpha was presented as a range in the paper