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Table 1 Patient interview sample characteristics

From: Development of the Pulmonary Hypertension Functional Classification Self-Report: a patient version adapted from the World Health Organization Functional Classification measure

Characteristic Round 1 (n = 6) Round 2 (n = 8) Total
(n = 14)
Age, years    
 Mean (SD), median 39.7 (3.7), 39 50.8 (11.1), 47 46.0 (10.2), 41.5
 Range 35–46 40–68 35–68
Gender, n (%)    
 Male 1 (16.7) 2 (25.0) 3 (21.4)
 Female 5 (83.3) 6 (75.0) 11 (78.6)
Race, n (%)    
 White/Caucasian 5 (83.3) 6 (75.0) 11 (78.6)
 Black or African American 1(16.7) 1 (12.5) 2 (14.3)
 Other 0 (0) 1 (12.5)a 1 (7.1)
Ethnicity, n (%)    
 Not Hispanic or Latino 6 (100) 7 (87.5) 13 (92.9)
 Hispanic or Latino 0 (0) 1 (12.5) 1 (7.1)
Relationship status, n (%)    
 Married/living as married/civil partnership 2 (33.3) 4 (50.0) 6 (42.9)
 Divorced/separated 0 (0) 1 (12.5) 1 (7.1)
 Single 4 (66.7) 3 (37.5) 7 (50.0)
Employment status, n (%)b    
 Working full time 2 (33.3) 2 (25.0) 4 (28.6)
 Working part time 1 (16.7) 3 (37.5) 4 (28.6)
 Long-term sick leave or disability 3 (50.0) 1 (12.5) 4 (28.6)
 Retired/semi-retired 0 (0) 3 (37.5) 3 (21.4)
Highest level of education, n (%)c    
 High school diploma or equivalent (e.g., GED) 1 (16.7) 0 (0) 1 (7.1)
 Some college or associate’s degree 3 (50.0) 4 (50.0) 7 (50.0)
 College graduate/bachelor’s degree 1 (16.7) 1 (12.5) 2 (14.3)
 Advanced or professional degree 1 (16.7) 3 (37.5) 4 (28.6)
Health insurance, n (%)d    
 Commercial insurance 3 (50.0) 3 (37.5) 6 (42.9)
 Medicare, Medicaid, or public assistance program 3 (50.0) 6 (75.0) 9 (64.3)
General health, n (%)    
 Excellent 0 (0) 0 (0) 0 (0)
 Very good 0 (0) 2 (25.0) 2 (14.3)
 Good 3 (50.0) 3 (37.5) 6 (42.9)
 Fair 2 (33.3) 3 (37.5) 5 (35.7)
 Poor 1 (16.7) 0 (0) 1 (7.1)
Affected by PAH, n (%)e    
 A lot 3 (50.0) 4 (50.0) 7 (50.0)
 Quite a lot 2 (33.3) 3 (37.5) 5 (35.7)
 A little 1 (16.7) 1 (12.5) 2 (14.3)
 Not at all 0 (0) 0 (0) 0 (0)
Other health conditions, n (%)    
 Yes 2 (33.3) 5 (62.5) 7 (50.0)
 No 4 (66.7) 3 (37.5) 7 (50.0)
  1. GED = General Educational Development; PAH = pulmonary arterial hypertension; SD = standard deviation
  2. aPatient reported race as white or Caucasian during screening
  3. bRespondents could choose more than one category for employment status, which is reflected in the percentage
  4. cAll but 1 participant had some college education at the time of the interview; however, during screening, 2 patients reported “High school diploma or equivalent” as their highest level of educational achievement
  5. dRespondents could choose more than one category for health insurance, which is reflected in the percentage
  6. eThe response scale for the impact of PAH was read out to the respondent as an ordered list