Table 1 Patient interview sample characteristics

Age, years

 Mean (SD), median

39.7 (3.7), 39

50.8 (11.1), 47

46.0 (10.2), 41.5

 Range

35–46

40–68

35–68

Gender, n (%)

 Male

1 (16.7)

2 (25.0)

3 (21.4)

 Female

5 (83.3)

6 (75.0)

11 (78.6)

Race, n (%)

 White/Caucasian

5 (83.3)

6 (75.0)

11 (78.6)

 Black or African American

1(16.7)

1 (12.5)

2 (14.3)

 Other

0 (0)

1 (12.5)^a

1 (7.1)

Ethnicity, n (%)

 Not Hispanic or Latino

6 (100)

7 (87.5)

13 (92.9)

 Hispanic or Latino

0 (0)

1 (12.5)

1 (7.1)

Relationship status, n (%)

 Married/living as married/civil partnership

2 (33.3)

4 (50.0)

6 (42.9)

 Divorced/separated

0 (0)

1 (12.5)

1 (7.1)

 Single

4 (66.7)

3 (37.5)

7 (50.0)

Employment status, n (%)^b

 Working full time

2 (33.3)

2 (25.0)

4 (28.6)

 Working part time

1 (16.7)

3 (37.5)

4 (28.6)

 Long-term sick leave or disability

3 (50.0)

1 (12.5)

4 (28.6)

 Retired/semi-retired

0 (0)

3 (37.5)

3 (21.4)

Highest level of education, n (%)^c

 High school diploma or equivalent (e.g., GED)

1 (16.7)

0 (0)

1 (7.1)

 Some college or associate’s degree

3 (50.0)

4 (50.0)

7 (50.0)

 College graduate/bachelor’s degree

1 (16.7)

1 (12.5)

2 (14.3)

 Advanced or professional degree

1 (16.7)

3 (37.5)

4 (28.6)

Health insurance, n (%)^d

 Commercial insurance

3 (50.0)

3 (37.5)

6 (42.9)

 Medicare, Medicaid, or public assistance program

3 (50.0)

6 (75.0)

9 (64.3)

General health, n (%)

 Excellent

0 (0)

0 (0)

0 (0)

 Very good

0 (0)

2 (25.0)

2 (14.3)

 Good

3 (50.0)

3 (37.5)

6 (42.9)

 Fair

2 (33.3)

3 (37.5)

5 (35.7)

 Poor

1 (16.7)

0 (0)

1 (7.1)

Affected by PAH, n (%)^e

 A lot

3 (50.0)

4 (50.0)

7 (50.0)

 Quite a lot

2 (33.3)

3 (37.5)

5 (35.7)

 A little

1 (16.7)

1 (12.5)

2 (14.3)

 Not at all

0 (0)

0 (0)

0 (0)

Other health conditions, n (%)

 Yes

2 (33.3)

5 (62.5)

7 (50.0)

 No

4 (66.7)

3 (37.5)

7 (50.0)