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Table 1 Clinical utility survey

From: Physician-perceived utility of the EORTC QLQ-GINET21 questionnaire in the treatment of patients with gastrointestinal neuroendocrine tumours: a multicentre, cross-sectional survey (QUALINETS)

Therapeutic and clinical decision-making
Item 1. The patient’s responses have helped me to better understand the overall impact of the disease from patient’s point of view
Item 2. The patient’s responses have helped me to better understand the specific aspects/symptoms of the disease that are most limiting or that most affect the patient’s life
Item 3. I have considered the patient’s responses to the questionnaire when selecting the most appropriate treatment
Item 4. I have considered the patient’s responses when making changes in the dose and/or treatment regimen
Item 5. I have considered the patient’s responses when establishing the number and/or frequency of follow-up visits
Item 6. The patient’s responses have helped me to detect other possible health problems and I have referred the patient to other specialists (for example psychiatry)
Item 7. The patient’s responses have helped me to better assess the patient’s current condition
Doctor-patient communication
Item 8. The use of this questionnaire improves doctor-patient communication
Item 9. The patient’s responses have allowed me to explore aspects of the disease that I do not usually ask about it during the visit
Item 10. The patient’s responses have helped me to determine whether the patient has received the correct information about his/her disease
Characteristics of the questionnaire
Item 11. The instructions are brief and easy for the patient to understand
Item 12. The wording of the questions is easy for the patient to understand
Item 13. The response options are easy to understand and the questionnaire is easy for the patient to fill out
Item 14. The characteristics of the questionnaire enable its routine use in clinical practice