Table 1 Clinical utility survey

Therapeutic and clinical decision-making

Item 1. The patient’s responses have helped me to better understand the overall impact of the disease from patient’s point of view

Item 2. The patient’s responses have helped me to better understand the specific aspects/symptoms of the disease that are most limiting or that most affect the patient’s life

Item 3. I have considered the patient’s responses to the questionnaire when selecting the most appropriate treatment

Item 4. I have considered the patient’s responses when making changes in the dose and/or treatment regimen

Item 5. I have considered the patient’s responses when establishing the number and/or frequency of follow-up visits

Item 6. The patient’s responses have helped me to detect other possible health problems and I have referred the patient to other specialists (for example psychiatry)

Item 7. The patient’s responses have helped me to better assess the patient’s current condition

Doctor-patient communication

Item 8. The use of this questionnaire improves doctor-patient communication

Item 9. The patient’s responses have allowed me to explore aspects of the disease that I do not usually ask about it during the visit

Item 10. The patient’s responses have helped me to determine whether the patient has received the correct information about his/her disease

Characteristics of the questionnaire

Item 11. The instructions are brief and easy for the patient to understand

Item 12. The wording of the questions is easy for the patient to understand

Item 13. The response options are easy to understand and the questionnaire is easy for the patient to fill out

Item 14. The characteristics of the questionnaire enable its routine use in clinical practice