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Table 4 Sequence of items of unmet supportive needs(n = 34)

From: Unmet supportive care needs and its relation to quality of life among adult acute leukaemia patients in China: a cross-sectional study

Ordera

Item

Domain

Mean (SD)

%b

1

Being informed about things you can do to help yourself to get well

I

3.81 (1.26)

81.70

2

Being given information (written, diagrams, drawings) about aspects of managing your illness and side-effects at home

I

3.22 (1.20)

77.50

5

Being adequately informed about the benefifits and side-effects of treatments before you choose to have them

I

3.38 (1.33)

70.30

6

Having access to professional counselling (e.g., psychologist, social worker, counselor, nurse specialist) if you, family or friends need it

I

3.13 (1.39)

69.60

9

Being informed about your test results as soon as feasible

I

3.40 (1.34)

68.30

10

Having one member of hospital staff with whom you can talk to about all aspects of your condition, treatment and follow-up

I

3.07 (1.34)

67.00

12

Being given written information about the important aspects of your care

I

2.96 (1.26)

65.00

13

Being informed about cancer which is under control or diminishing (that is, remission)

I

3.36 (1.37)

63.70

14

Being given explanations of those tests for which you would like explanations

I

3.22 (1.31)

63.10

20

Being treated in a hospital or clinic that is as physically pleasant as possible

I

2.94 (1.45)

52.90

27

Being treated like a person not just another case

I

2.61 (1.35)

43.50

3

Concerns about the worries of those close to you

P

3.39 (1.22)

76.80

4

Uncertainty about the future

P

2.87 (1.42)

72.20

8

Feelings about death and dying

P

2.54 (1.39)

68.60

11

Worry that the results of treatment are beyond your control

P

3.00 (1.34)

66.30

17

Feeling down or depressed

P

2.55 (1.23)

56.20

18

Learning of feel in control of your situation

P

2.71 (1.28)

54.90

19

Fears about the cancer spreading

P

2.62 (1.41)

53.90

21

Anxiety

P

2.45 (1.27)

52.00

22

Feelings of sadness

P

2.42 (1.22)

50.30

23

Keeping a positive outlook

P

2.61 (1.31)

49.70

7

Lack of energy/tiredness

H

3.00 (1.17)

68.60

15

Feeling unwell a lot of the time

H

2.76 (1.26)

61.80

16

Not being able to do the things you used to do

H

2.77 (1.39)

58.80

26

Pain

H

2.55 (1.42)

46.10

30

Work around the home

H

2.25 (1.34)

42.20

24

More choice about which cancer specialists you see

S

2.71 (1.44)

48.70

25

Hospital staff acknowledging, and showing sensitively to, your feelings and emotional needs

S

2.56 (1.75)

47.70

28

More choice about which hospital you attend

S

2.55 (1.39)

43.50

29

Hospital staff attending promptly to your physical needs

S

2.61 (1.24)

42.50

31

Reassurance by medical staff that the way you feel is normal

S

2.20 (1.08)

29.10

32

Being given information about sexual relationships

X

1.60 (1.03)

19.60

33

Changes in sexual feelings

X

1.59 (0.94)

18.60

34

Changes in your sexual relationships

X

1.57 (0.99)

17.60

  1. I Health systems and information needs, P Psychological, H Physical/daily living, S Patient care and support, X Sexuality. SD Standard deviation
  2. aThis order refers to the order of each item in the original scale (SCNS-SF34).
  3. bThe unmet demand rate of each item = Number of patients with unmet support needs for this item/ Total number of patients who answered the item ×100%.
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Health and Quality of Life Outcomes

ISSN: 1477-7525

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