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Table 1 Community sample characteristics

From: Development of the Thalassaemia Adult Life Index (ThALI)

VariableValue in % or n
Gender
 Female47%
 Male53%
Age
 Mean (SD)33.74 (9.63)
 Range19–68
Ethnicity
 Greek Cypriot36%
 Indian25%
 Greek10%
 Middle Eastern10%
 Chinese8%
 White British5%
 Turkish Cypriot3%
 Pakistani3%
Educational status
 No qualifications7%
 G.C.S.E. or equivalent i.e. school leaver qualification(s)34%
 University entry or equivalent qualification(s)13%
 Graduate degree or equivalent qualification(s)38%
 Higher degree or equivalent qualification(s) i.e. postgraduate or PhD8%
Employment status
 Employed69%
 Self-employed3%
 Unemployed10%
 Other (student/housewife)18%
Marital status
 Single58%
 Married35%
 Living together as married7%
Dependents
 Mean (SD)0.47 (0.99)
 (Range)(0–5)
Treatment type
  ‘Pump’32%
 Oral chelator drug34%
 Combination34%
Illness complication(s)
 Osteoporosis/Osteoarthritisa28%
 Diabetes22%
 Cardiac problems10%
 Hypothyroidismb8%
 Impaired glucose tolerance6%
 Asthma4%
 Other (not stated)4%
 Hepatitis Cc4%
 Insensitivity to pain4%
 Eczema4%
 Coeliac diseased2%
 Hormonal Imbalance2%
  1. aLoss of bone tissue causing the bone to become brittle and fracture easily/a common joint disease characterized by degeneration of the cartilage that lines joints or by formation of an outgrowth of bone at the boundary of a joint (osteophyte), leading to pain, stiffness and occasionally loss of function [22]. bThe underproduction of thyroid hormones by an underactive thyroid gland [22]. cInfection often transmitted through sharing needles and/or blood transfusions; can progress to cirrhosis (long term damage to liver cells) and/or hepatoma (a type of liver cancer) [22]dThe lining of the small intestine gets damaged due to hypersentivity to gluten (protein found in wheat, rye and other cereals) [22]