Table 3 Quality of Life domains and sub-domains identified as important and their inclusion in existing PBMs
Domain | Sub-domain | EQ-5D-5 L | AQoL-8D a | ICECAP-O | ASCOT | AD-5D | DEMQOL-U |
|---|---|---|---|---|---|---|---|
Activity | Community engagement | ✔ (Usual activities) | ✔ (Relationships & Happiness) | ✔ (Enjoyment) | ✔ (Occupation) | ✔ (Do fun things) |  |
Enjoying things | |||||||
Purposeful activities | |||||||
Autonomy | Control | ? (Self-care) | ✔ (Coping & Independent living) | ✔ (Control) | ✔ (Control over daily life) |  |  |
Independence | |||||||
Cognition | Awareness/ Insight |  |  |  |  | ✔ (Memory) | ✔ (Cognition) |
Concentration | |||||||
Confusion | |||||||
Forgetfulness | |||||||
Communication | Expressing yourself verbally |  | ✔ (Senses) |  |  |  | ? (Relationship) |
Being understood | |||||||
Understanding | |||||||
Coping | Acceptance of situation |  | ✔ (Coping) |  |  |  |  |
Adapting/ adjusting | |||||||
Denial | |||||||
Religion/ spirituality | |||||||
Withdrawal | |||||||
Emotions | Anxiety | ✔ (Anxiety/Depression) | ✔ (Mental Health & Happiness) | ? (Enjoyment) |  | ✔ (Mood) | ✔ (Positive emotion and Negative emotion) |
Frustration/ agitation | |||||||
Happiness | |||||||
End-of-life | Choice | Â | Â | ? (Security) | Â | Â | Â |
Environment | |||||||
Thinking about the future | |||||||
Preparation for death | |||||||
Physical functioning | Physically fit | ✔ (Mobility) | ✔ (Independent living) | ? (Control) | ? (Cleanliness and comfort) | ✔ (Physical health) |  |
Self-care | |||||||
Relationships | Accepted by others |  | ✔ (Relationships & Self-worth) | ✔ (Attachment) | ✔ (Social participation & Dignity) |  | ✔ (Relationships & Loneliness) |
Burden to others | |||||||
Carer | |||||||
Family | |||||||
Friendships | |||||||
Relationship with spouse/partner | |||||||
Treated with respect and dignity |