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Table 3 Quality of Life domains and sub-domains identified as important and their inclusion in existing PBMs

From: A qualitative exploration of the content and face validity of preference-based measures within the context of dementia

Domain Sub-domain EQ-5D-5 L AQoL-8D a ICECAP-O ASCOT AD-5D DEMQOL-U
Activity Community engagement
(Usual activities)

(Relationships & Happiness)

(Enjoyment)

(Occupation)

(Do fun things)
 
Enjoying things
Purposeful activities
Autonomy Control ?
(Self-care)

(Coping & Independent living)

(Control)

(Control over daily life)
  
Independence
Cognition Awareness/ Insight     
(Memory)

(Cognition)
Concentration
Confusion
Forgetfulness
Communication Expressing yourself verbally  
(Senses)
    ?
(Relationship)
Being understood
Understanding
Coping Acceptance of situation  
(Coping)
    
Adapting/ adjusting
Denial
Religion/ spirituality
Withdrawal
Emotions Anxiety
(Anxiety/Depression)

(Mental Health & Happiness)
?
(Enjoyment)
 
(Mood)

(Positive emotion and Negative emotion)
Frustration/ agitation
Happiness
End-of-life Choice    ?
(Security)
   
Environment
Thinking about the future
Preparation for death
Physical functioning Physically fit
(Mobility)

(Independent living)
?
(Control)
?
(Cleanliness and comfort)

(Physical health)
 
Self-care
Relationships Accepted by others  
(Relationships & Self-worth)

(Attachment)

(Social participation & Dignity)
 
(Relationships & Loneliness)
Burden to others
Carer
Family
Friendships
Relationship with spouse/partner
Treated with respect and dignity
  1. a Inclusion of important quality of life domains by the respective domains of the AQoL-8D