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Table 3 Domains and outcome measures that were selected by the Delphi expert panel

From: Defining the content of a minimal dataset for acquired brain injury using a Delphi procedure

ICF chapter

Selected instrument or variable

 Selected domain

 

Disease characteristics

 Injury characteristics

Date of brain injury, type of brain injury, previous brain injury, duration of hospital stay, discharge destination.

 Comorbidity

CIRS

Body functions & structure

 Cognitive functioning

MoCA

 Emotional functioning

HADS

 Energy

FSS

Activities and participation

 Mobility and Self-care

BI

 Communication

“Since acquiring brain injury, does the patient have trouble communicating (expressing and/or understanding)?”

 Participation

USER-P

 Social support

“Do you experience sufficient support from the people in your surroundings?”

Personal factors

 Demographic characteristics

Age, sex, living situation, marital status, children.

Other

 Quality of life

No consensus

  1. CIRS Cumulative Illness Rating Scale [39], MoCA Montreal Cognitive Assessment [40], HADS Hospital Anxiety and Despression Scale [41], FSS Fatigue Severity Scale [42], BI Barthel Index [36], USER-P Utrecht Scale for Evaluation of Rehabilitation – Participation [37]