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Table 4 General and cardiac-specific QoL scores assessed by Caregivers: Baseline versus Follow-up

From: Quality of life in children with infrequent congenital heart defects: cohort study with one-year of follow-up

 Baseline (n = 112)Follow-up (n = 112)p value
General-specific module, median (IQR)
 Physical health75.0 (59.4–84.4)75.1 (57.2–90.1)0.975
 Emotional health65.0 (50.0–80.0)65.0 (50.0–75.0)0.668
 Social functioning80.0 (60.0–95.0)75.0 (60.0–90.0)0.143
 School functioning70.0 (50.0–85.0)65.0 (41.2–85.0)0.631
 Total68.4 (59.6–83.7)69.9 (58.1–83.7)0.583
Cardiac-specific module, median (IQR)
 Cardiac symptoms73.2 (57.1–85.7)75.0 (57.1–85.7)0.922
 Adherence to treatment100.0 (90.0–100)100.0 (100–100)0.116
 Anxiety towards treatment71.4 (60.7–89.3)71.4 (54.5–85.7)0.311
 Cognitive status65.0 (45.0–80.0)60.0 (40.0–80.0)0.499
 Communicative skills75.0 (50.0–100)83.0 (50.0–100)0.203
 Total73.6 (62.6–84.3)73.1 (59.5–83.8)0.545
  1. IQR Interquartile range