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Table 4 General and cardiac-specific QoL scores assessed by Caregivers: Baseline versus Follow-up

From: Quality of life in children with infrequent congenital heart defects: cohort study with one-year of follow-up

 

Baseline (n = 112)

Follow-up (n = 112)

p value

General-specific module, median (IQR)

 Physical health

75.0 (59.4–84.4)

75.1 (57.2–90.1)

0.975

 Emotional health

65.0 (50.0–80.0)

65.0 (50.0–75.0)

0.668

 Social functioning

80.0 (60.0–95.0)

75.0 (60.0–90.0)

0.143

 School functioning

70.0 (50.0–85.0)

65.0 (41.2–85.0)

0.631

 Total

68.4 (59.6–83.7)

69.9 (58.1–83.7)

0.583

Cardiac-specific module, median (IQR)

 Cardiac symptoms

73.2 (57.1–85.7)

75.0 (57.1–85.7)

0.922

 Adherence to treatment

100.0 (90.0–100)

100.0 (100–100)

0.116

 Anxiety towards treatment

71.4 (60.7–89.3)

71.4 (54.5–85.7)

0.311

 Cognitive status

65.0 (45.0–80.0)

60.0 (40.0–80.0)

0.499

 Communicative skills

75.0 (50.0–100)

83.0 (50.0–100)

0.203

 Total

73.6 (62.6–84.3)

73.1 (59.5–83.8)

0.545

  1. IQR Interquartile range