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Table 2 Clinical Characteristics (n = 173)

From: Psychometric analysis of the adult sickle cell quality of life measurement information system (ACSQ-Me) in a UK population

Variable

SCD Diagnosis, n (%)

 HbSS

125 (72.3)

 HbSC

36 (20.8)

 HbSβThal

7 (4.0)

 Missing

5 (2.9)

Medical History, n (%)

 Avascular necrosis (AVN) of hip

39 (22.5)

 Stroke or recurrent TIA

19 (11.0)

 Priapisma

19 (26.0)

 Severe, renal impairment: Requiring renal replacement treatment

11 (6.4)

 History of Retinopathy with visual impairment

37 (21.4)

 Elevated tricuspid regurgitation (TR) jet velocity

10 (5.8)

 Catheter diagnosis of pulmonary hypertension

5 (2.9)

 Recurrent ankle ulceration during past 2 years

14 (8.1)

 Chronic Pain: Persistent pain on most days lasting more than 6 months

52 (30.1)

Acute Chest Syndrome – Transfusion required during the past 2 years, mean (SD)

0.7 (2.3)

Pain Crises, n (%)

 Had 3 or more hospital admissions with pain crises in the previous 12 months

13 (7.5)

  1. aPercentage frequency calculated with male sample only