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Table 6 MPN-SD

From: Development of a symptom assessment in patients with myelofibrosis: qualitative study findings

INSTRUCTION TEXT:

The following screens display questions about your myelofibrosis symptoms. Please rate each symptom at its WORST during the PAST 24 h

1

During the PAST 24 HOURS, at its WORST, how was your …

Filling up quickly when you eat (feeling of fullness soon after you begin to eat)

(Absent) 0 1 2 3 4 5 6 7 8 9 10 (Worst Imaginable)

2

During the PAST 24 HOURS, at its WORST, how was your …

Abdominal discomfort (feeling uncomfortable, pressure or bloating)

(Absent) 0 1 2 3 4 5 6 7 8 9 10 (Worst Imaginable)

3

During the PAST 24 HOURS, at its WORST, how was your …

Inactivity (including work, home and social activities)

(Absent) 0 1 2 3 4 5 6 7 8 9 10 (Worst Imaginable)

4

During the PAST 24 HOURS, at its WORST, how was your …

Night sweats (excessive sweating during sleep)

(Absent) 0 1 2 3 4 5 6 7 8 9 10 (Worst Imaginable)

5

During the PAST 24 HOURS, at its WORST, how was your …

Itching

(Absent) 0 1 2 3 4 5 6 7 8 9 10 (Worst Imaginable)

6

During the PAST 24 HOURS, at its WORST, how was your …

Bone pain (widespread pain, not joint pain or arthritis)

(Absent) 0 1 2 3 4 5 6 7 8 9 10 (Worst Imaginable)

7

During the PAST 24 HOURS, at its WORST, how was your …

Pain below the ribs on the left side

(Absent) 0 1 2 3 4 5 6 7 8 9 10 (Worst Imaginable)

8

During the PAST 24 HOURS, at its WORST, how was your …

Fatigue (tiredness)

(Absent) 0 1 2 3 4 5 6 7 8 9 10 (Worst Imaginable)

9

During the PAST 24 HOURS, at its WORST, how was your …

Shortness of breath

(Absent) 0 1 2 3 4 5 6 7 8 9 10 (Worst Imaginable)

10

During the PAST 24 HOURS, how was your …

Appetite

(Normal appetite) 0 1 2 3 4 5 6 7 8 9 10 (Complete loss of appetite)