Table 2 Coding scheme including major themes and their definitions
Theme | Definition |
|---|---|
Family Composition | Naming the people considered members of one’s family, without limitations as to living situation. |
Facets of Domain | |
Sense of Family | The consistency of the child’s experiences of being an integral part of the family based on feelings of closeness and connection with parents and family members. |
Trust, Dependability, and Support | The consistency of the child’s experiences that parents and family members will ‘be there’ to provide help and guidance when they are needed; that family members can be trusted and can be depended on. |
Love and Caring | The consistency of the child’s sense of being cared about and loved by parents and other family members; having and sharing feelings of affection, warmth, and fondness. |
Value and Acceptance | The consistency of the child’s feelings of being important in the family, that he/she matters to other family members; child’s experience that parents and other family members understand him/her and approve of him/her. |
Enjoyment | The consistency of receiving pleasure and having fun in interactions with parents and family members. |
Communication | The consistency with which parents and family members are available and willing to listen and talk, and child feels understood in interactions with them. |
Disease Impact | Responses that reference the experience of having a chronic disease and its impact on one’s life and family relationships. |