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Table 2 Coding scheme including major themes and their definitions

From: Content validity of the PROMIS® pediatric family relationships measure for children with chronic illness

Theme Definition
Family Composition Naming the people considered members of one’s family, without limitations as to living situation.
Facets of Domain
Sense of Family The consistency of the child’s experiences of being an integral part of the family based on feelings of closeness and connection with parents and family members.
Trust, Dependability, and Support The consistency of the child’s experiences that parents and family members will ‘be there’ to provide help and guidance when they are needed; that family members can be trusted and can be depended on.
Love and Caring The consistency of the child’s sense of being cared about and loved by parents and other family members; having and sharing feelings of affection, warmth, and fondness.
Value and Acceptance The consistency of the child’s feelings of being important in the family, that he/she matters to other family members; child’s experience that parents and other family members understand him/her and approve of him/her.
Enjoyment The consistency of receiving pleasure and having fun in interactions with parents and family members.
Communication The consistency with which parents and family members are available and willing to listen and talk, and child feels understood in interactions with them.
Disease Impact Responses that reference the experience of having a chronic disease and its impact on one’s life and family relationships.