|
PROM (Author, Year)
|
Total sample size
|
PSC sample size
|
Domains
|
Test retest reliability (Pearson Correlation)
|
Internal consistency (Cronbach’s Alpha)
|
|---|
|
NIDDK-QA (Kim, 2000)
|
96
|
17
|
Liver symptoms men women
|
0.94
|
Men = 0.94, women =0.87
|
| | | |
Physical function
|
0.99
|
0.88
|
| | | |
Health satisfaction
|
0.82
|
NR
|
| | | |
Overall well being
|
0.83
|
0.91
|
| | | | |
Time interval of 2 weeks
| |
|
NIDDK-QA (Gross, 1999)
|
157
|
92
|
Symptoms
|
NR
|
0.81 & 0.85
|
| | | |
Functioning
|
NR
|
0.82 & 0.88
|
| | | |
Index of General Affect (IGA)
|
NR
|
0.91 & 0.93
|
|
PSC PROM (Younossi, 2017)
|
102
|
Test retest n = 53 Internal consistency n = 155
|
PSC Symptoms
|
0.84
|
0.89
|
| | | |
Physical Function
|
0.83
|
0.91
|
| | | |
Activities of Daily Living
|
0.85
|
0.86
|
| | | |
Work Productivity
|
0.7
|
0.93
|
| | | |
Role Function
|
0.83
|
0.91
|
| | | |
Emotional Impact
|
0.82
|
0.91
|
| | | |
Social/Leisure Impact
|
0.8
|
0.93
|
| | | |
Quality of Life
|
0.79
|
0.94
|
| | | |
Total Impact of Symptoms
|
0.88
| |
- NIDDK-QA National institute of diabetes and digestive and kidney disease liver transplant questionnaire, PSC PRO Primary Sclerosing Cholangitis Patient Reported Outcome
