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Table 3 Results of measurement properties of NIDDK-QA

From: Patient-reported outcome measures used in patients with primary sclerosing cholangitis: a systematic review

PROM (Author, Year) Total sample size PSC sample size Domains Test retest reliability (Pearson Correlation) Internal consistency (Cronbach’s Alpha)
NIDDK-QA (Kim, 2000) 96 17 Liver symptoms men women 0.94 Men = 0.94, women =0.87
    Physical function 0.99 0.88
    Health satisfaction 0.82 NR
    Overall well being 0.83 0.91
     Time interval of 2 weeks  
NIDDK-QA (Gross, 1999) 157 92 Symptoms NR 0.81 & 0.85
    Functioning NR 0.82 & 0.88
    Index of General Affect (IGA) NR 0.91 & 0.93
PSC PROM (Younossi, 2017) 102 Test retest n = 53 Internal consistency n = 155 PSC Symptoms 0.84 0.89
    Physical Function 0.83 0.91
    Activities of Daily Living 0.85 0.86
    Work Productivity 0.7 0.93
    Role Function 0.83 0.91
    Emotional Impact 0.82 0.91
    Social/Leisure Impact 0.8 0.93
    Quality of Life 0.79 0.94
    Total Impact of Symptoms 0.88  
  1. NIDDK-QA National institute of diabetes and digestive and kidney disease liver transplant questionnaire, PSC PRO Primary Sclerosing Cholangitis Patient Reported Outcome