Table 6 Key Concepts Identified in Literature, and Expert and Patient Interviews
From: Development and content validation of a patient-reported endometriosis pain daily diary
Concept | Literature Review | Expert Interviews | Patient Interviews |
|---|---|---|---|
Pain during menstruation | âś“ | âś“ | âś“ |
Pain during/after sexual intercourse | âś“ | âś“ | âś“ |
Pain unrelated to sex and/or menstruation (pelvic, back, general, headache) | âś“ | âś“ | âś“ |
Pain during defecation | âś“ | âś“ | âś“ |
Pain during urination | âś“ | ||
Other non-pain symptoms (bloating, dizziness, nausea, vomiting) | âś“ | ||
Infertility | âś“ | ||
Bleeding (during menstruation, sex, or irregular) | âś“ | âś“ | |
Gastrointestinal disturbance (diarrhea, constipation, flatulence) | âś“ | ||
Work/school limitations | âś“ | âś“ | âś“ |
Sexual activity limitations | âś“ | âś“ | âś“ |
Difficulty doing daily activities | âś“ | âś“ | âś“ |
Difficulty doing leisure activities | âś“ | âś“ | |
Physical activity limitations | âś“ | âś“ | |
Social/lifestyle limitations | âś“ | âś“ | |
Relationships affected | âś“ | âś“ | âś“ |
Emotional health | âś“ | âś“ | âś“ |
Sleep difficulties | âś“ | ||
Low energy difficulties | âś“ | ||
Coping behaviors | âś“ |