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Table 2 Original and additional MCC-specific FACT-M scores

From: Psychometric properties of the FACT-M questionnaire in patients with Merkel cell carcinoma

FACT-M Subscales and Summary scores

# of items

Items/Scales

Score rangea

FACT-G subscales

 Physical well-being (PWB)

7

GP1 – GP7

0–28

 Social/Family well-being (SWB)

7

GS1 – GS7

0–28

 Emotional well-being (EWB)

6

GE1 – GE6

0–24

 Functional well-being (FWB)

7

GF1 – GF7

0–28

Melanoma-specific subscales

 Melanoma Subscale (MS)

16

M1-M3, B1, ITU4, An10, Hep3, C1, C6, M5, M6, ITU3, MS8, M8, M9, HI7

0–64

 Melanoma surgery Scale (MSS)

8

M10-M17

0–32

Summary score

 FACT-M TOI

30

PWB + FWB + MS

0–120

 FACT-G total score

27

PWB + SWB + EWB + FWB

0–108

 FACT-M total score

43

PWB + SWB + EWB + FWB + MS

0–172

MCC-specific scores

 Physical Function score (PF)

 

GP1, GP3, GF1, GF3, GF7, ITU4

0–24

 Psychological Impact score (PI)

 

GE1, GE3 - GE6, MS8

0–24

 MCC summary score

 

PF + PI

0–48

  1. MCC Merkel cell carcinoma, TOI Trial Outcome Index
  2. GP GP1- lack of energy; GP2- nausea; GP3- troubles meeting family needs; GP4- pain; GP5- side effects; GP6- feeling ill; GP7- lying in bed
  3. GS GS1- close friendship; GS2- emotional support from family; GS3- support from friends; GS4- family accept illness; GS5- communication with family; GS6- close to partner; GS7- sex life
  4. GE GE1- sadness; GE2- coping with illness; GE3- losing hope; GE4- nervousness; GE5- worry about death; GE6- worry about aggravation of disease
  5. GF GF1- able to work; GF2- fulfilling work; GF3- enjoy life; GF4- illness acceptance; GF5- sleeping well; GF6- fun; GF7- quality of life
  6. M M1- pain; M2- skin deterioration; M3- scars appearance; M5- pain in bones; M6- bloody stools; M8- remoteness; M9- cognitive functioning; M10- swelling (melanoma); M11- swelling (surgery); M12- swelling botherness; M13- painful movement; M14- swelling prevent activities; M15- swelling prevent nice clothing; M16- numbness; M17- range of movement
  7. B B1- short breath
  8. ITU ITU3- limited social activity; ITU4- limited physical activity
  9. AN AN10- headaches
  10. Hep Hep3- fevers
  11. C C1- stomach swelling or cramp; C6- appetite
  12. MS MS8- overwhelming condition
  13. HI HI7- fatigue
  14. aHigher score = better health-related quality of life