Table 2 Domains of the included instruments
Instrument | IBD-related symptoms (No. of items) | Physical functioning or general wellbeing (No. of items) | Emotional functioning (No. of items) | Social functioning (No. of items) |
|---|---|---|---|---|
For paediatrics | ||||
 IMPACT | Bowel impairment (6), systemic impairment (2) | Body image (3) | Emotional impairment (11) | Functional/social impairment (11), treatments (3) |
 IMPACT-II | IBD symptoms (7), systemic symptoms (3) | Body image (3) | Emotional functioning (7) | Social functioning (12), treatment (3) |
 IMPACT-III | IBD symptoms (5) | Body image (4), energy (4) | Embarrassment (6), worries/concerns about IBD (13) | – |
For adults | ||||
 IBDQ-32 | Bowel symptoms (10), systemic symptoms (5) | – | Emotional functioning (12) | Social functioning (5) |
 SIBDQ | Bowel symptoms (3), systemic symptoms (2) | – | Emotional functioning (3) | Social functioning (2) |
 IBDQ-36 | Bowel symptoms (8), systemic symptoms (7) | Functional impairment (7) | Emotional functioning (8) | Social impairment (6) |
 RFIPC | Impact of disease (13), complications of disease (4) | Body stigma (2), sexual intimacy (3) | – | – |
 CCQIBD | Medical/symptoms (9) | Affect/life in general (11), functional/economic (12) | – | Social/recreational (15) |
 PIBDQL | Intestinal symptoms (8), systemic symptoms (7) | – | Emotional functioning (9) | Social functioning (5) |
 CGQL | – | Quality of life (1), quality of health (1), energy level (1) | – | – |
 SHS | Symptom burden (1) | General wellbeing (1) | Disease-related worry (1) | Social functioning (1) |
 EIBDQ | Bowel-specific symptoms (6), disease-specific symptoms (5) | – | – | Information (2)* |
 CLIQ | – | QOL (27), activity limitations (9) | – | – |