Skip to main content

Table 1 Respondent characteristics (n = 108)

From: Predictors of quality of life among adolescents and young adults with a bleeding disorder

Characteristic

Number

Percent

Age, years

 13–17

54

50

 18–25

54

50

Gender

 Male

90

83

 Female

18

17

Race

 White

86

80

 Non-whitea

22

20

Ethnicity

 Hispanic

12

11

 Non-Hispanic

96

89

Health insuranceb

 Medicaid or VA onlyc

34

32

 Commercial only

46

43

 Both

8

7

 Insured – type unknown

12

11

 Uninsured

6

6

Mother’s education level

 Bachelor’s degree or higher

38

35

 Less than Bachelor’s degree

70

65

Father’s education level

 Bachelor’s degree or higher

31

29

 Less than Bachelor’s degree

71

71

Bleeding disorder

 Hemophilia A

85

79

 Hemophilia B

5

7

 von Willebrand disease

15

14

Severity

 Mild

22

20

 Moderate

9

8

 Severe

77

71

Inhibitor development

 Ever

38

35

 Never

70

65

Treatment regimen

 On-demand

35

32

 Prophylaxis

73

68

Chronic paind

 None to mild

74

69

 Moderate to severe

34

31

Clotting factor adherencee

 Adherent

77

71

 Non-adherent

31

29

  1. aMost (73%) of non-white respondents were black or African American, 14% were mixed race, 9% were Asian, and 5% were American Indian or Alaskan Native
  2. bn = 78, two respondents answered ‘Don’t know’ as to whether or not they had health insurance, and were not included
  3. cOnly two respondents had VA only insurance, the others had Medicaid only
  4. dChronic pain was measured using the revised Faces Pain Scale (FPS-R) and was dichotomized as FPS-R < 4 (i.e., ‘mild’ or ‘no pain) and FPS-R ≥4 (ie, ‘moderate’ to ‘worst pain possible’)
  5. eAdherence was assessed using the Validated Hemophilia Regimen Treatment Adherence Scale (VERITAS)-Pro and VERITAS-PRN for prophylactic and on-demand participants, respectively. The cutoff for non-adherent prophylactic participants was a total VERITAS-Pro score ≥57 as established in previously by Duncan and colleagues [25]. This value was chosen because the VERITAS-Pro cutoff was approximately the 75th percentile of all responses