From: Predictors of quality of life among adolescents and young adults with a bleeding disorder
Characteristic | Number | Percent |
---|---|---|
Age, years | ||
 13–17 | 54 | 50 |
 18–25 | 54 | 50 |
Gender | ||
 Male | 90 | 83 |
 Female | 18 | 17 |
Race | ||
 White | 86 | 80 |
 Non-whitea | 22 | 20 |
Ethnicity | ||
 Hispanic | 12 | 11 |
 Non-Hispanic | 96 | 89 |
Health insuranceb | ||
 Medicaid or VA onlyc | 34 | 32 |
 Commercial only | 46 | 43 |
 Both | 8 | 7 |
 Insured – type unknown | 12 | 11 |
 Uninsured | 6 | 6 |
Mother’s education level | ||
 Bachelor’s degree or higher | 38 | 35 |
 Less than Bachelor’s degree | 70 | 65 |
Father’s education level | ||
 Bachelor’s degree or higher | 31 | 29 |
 Less than Bachelor’s degree | 71 | 71 |
Bleeding disorder | ||
 Hemophilia A | 85 | 79 |
 Hemophilia B | 5 | 7 |
 von Willebrand disease | 15 | 14 |
Severity | ||
 Mild | 22 | 20 |
 Moderate | 9 | 8 |
 Severe | 77 | 71 |
Inhibitor development | ||
 Ever | 38 | 35 |
 Never | 70 | 65 |
Treatment regimen | ||
 On-demand | 35 | 32 |
 Prophylaxis | 73 | 68 |
Chronic paind | ||
 None to mild | 74 | 69 |
 Moderate to severe | 34 | 31 |
Clotting factor adherencee | ||
 Adherent | 77 | 71 |
 Non-adherent | 31 | 29 |