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Table 1 Demographics and baseline clinical characteristics

From: Development of the Systemic Lupus Erythematosus Steroid Questionnaire (SSQ): a novel patient-reported outcome tool to assess the impact of oral steroid treatment

 

CE interviewsa (N = 33)

Gender, % (n)

 Male

3 (1)

 Female

97 (32)

Mean age (SD), years

47.0 (11.13)

Age range, years

24–71

Ethnicity, % (n/N)

 Caucasian

50 (16/32)

 African American

31 (10/32)

 Asian

3 (1/32)

 Latino/Hispanic

13 (4/32)

 Other

3 (1/32)

SLE severity during 6 months prior to baseline, % (n)

 Mild

45 (15)

 Moderate

52 (17)

 Severe

3 (1)

Mean SELENA-SLEDAI (SD) (n = 30)

6.8 (3.36)

Mean SLICC (SD) (n = 18)

5.8 (1.54)

Current SLE treatment, %b (n)

 Hydroxychloroquine

67 (22)

 Belimumab

18 (6)

 NSAIDs

15 (5)

 Methotrexate

12 (4)

Currently receiving steroids, % (n)

58 (19)

Average steroid dose of current users (n = 18), mg/day

8.7 ± 5.35 (range: 4–20)

Mean (min, max) duration of steroid use (n = 23), months

41.7 (0.2, 144)

Reasons for initiating steroid use, % (n/N)

 To treat an SLE flare

26 (5/19)

 To control swelling (hands or other body parts)

16 (3/19)

 To treat joint pain and stiffness

16 (3/19)

 To treat autoimmune thrombocytopenia/low platelet count

16 (3/19)

  1. CE concept elicitation, N number of patients with data available, NSAIDs non-steroidal anti-inflammatory drugs, SD standard deviation, SELENA-SLEDAI Safety of Estrogens in Lupus Erythematosus National Assessment-Systemic Lupus Erythematosus Disease Activity Index, SLE systemic lupus erythematosus, SLICC systemic lupus international collaborating clinics
  2. aPatients who answered questions regarding their steroid experience; where n does not equal 33, data were missing
  3. b13 patients were receiving more than one treatment