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Table 3 HAQL Adolescents - Known-groups validity for the proposed score (significant results are given in boldface)

From: Validation of the French versions of the Hirschsprung’s disease and Anorectal malformations Quality of Life (HAQL) questionnaires for adolescents and adults

Dimensions

Disease statusa

HD N = 16

ARM N = 34

Clinical status

Autonomy status a

Usual A. N = 37

Lower A. N = 9

Soiling b

Grade 0 N = 22

Grade 1 N = 18

Grade 2 N = 3

Grade 3 N = 3

Constipation b

Grade 0 N = 28

Grade 1 N = 3

Grade 2 N = 5

Grade 3 N = 5

Voluntary bowel movements b

Grade 0 N = 25

Grade 1 N = 4

Grade 2 N = 2

Grade 3 N = 3

Overall scale

608 ± 96

p = 0.95

Usual A.: 628 ± 65

Lower A.: 484 ± 130

p= 0.0261

Grade 0: 650 ± 39

Grade 1 or 2 or 3: 564 ± 109

p= 0.0224

Grade 0 or 1 or 2: 616 ± 85

Grade 3: 479 ± 137

p= 0.0134

608 ± 96

p= 0.0127

1- Laxative Diet

89 ± 18

p = 0.73

Usual A.: 92 ± 16

Lower A.: 71 ± 21

p= 0.0288

89 ± 18

p = 0.29

Grade 0: 94 ± 11

Grade 1 or 2 or 3: 72 ± 23

p= 0.0008

89 ± 18

p = 0.21

2- Presence of Diarrhea

83 ± 25

p = 0.63

84 ± 25

p = 0.18

84 ± 25

p = 0.31

84 ± 25

p = 0.94

84 ± 25

p = 0.44

3- Fecal Continence

86 ± 19

p = 0.59

Usual A.: 90 ± 16

Lower A.: 62 ± 16

P= 0.0008

Grade 0: 97 ± 6

Grade 1: 83 ± 16

Grade 2: 67 ± 11

Grade 3: 43 ± 17

p< 0.0001

Grade 0 or 1: 85 ± 19

Grade 2 or 3: 69 ± 19

p= 0.0067

Grade 0: 89 ± 18

Grade 1 or 2 or 3: 67 ± 13

p= 0.0141

4- Urinary Continence

98 ± 7

p = 0.52

98 ± 7

p = 0.17

98 ± 7

p = 0.47

98 ± 7

p = 0.08

98 ± 7

p = 0.06

5- Social Functioning

93 ± 20

p = 0.55

93 ± 20

p = 0.14

93 ± 20

p = 0.53

Grade 0 or 1 or 2: 97 ± 12

Grade 3: 61 ± 45

p= 0.0207

93 ± 20

P= 0.0009

6- Emotional Functioning

and Body Image

84 ± 21

p = 0.84

Usual A.: 89 ± 14

Lower A.: 54 ± 24

p= 0.0042

Grade 0: 96 ± 6

Grade 1 or 2 or 3: 72 ± 23

p= 0.0004

Grade 0 or 1 or 2: 87 ± 18

Grade 3: 53 ± 28

p= 0.0020

84 ± 21

p= 0.0078

7- Physical symptoms

72 ± 19

p = 0.58

72 ± 19

p = 0.10

Grade 0 or 1 or 2: 85 ± 21

Grade 3: 68 ± 16

p= 0.0092

Grade 0 or 1 or 2: 73 ± 16

Grade 3: 48 ± 21

p= 0.0129

72 ± 19

p = 0.06

  1. aStudent’s t-test, bANOVA with post hoc pairwise Student’s t-tests