UK (n = 10) | Brazil (n = 10) | Germany (n = 11) | France (n = 12) | Total (n = 43) | |
---|---|---|---|---|---|
Demographic Characteristics | |||||
Age of patient | |||||
Mean | 46 | 38 | 38 | 36 | 39 |
Min - Max | 20-66 | 24-66 | 18-65 | 20-60 | 18 - 66 |
Gender n (%) | |||||
Male | 2 (20) | 2 (20) | 5 (45) | 6 (50) | 15 (35) |
Female | 8 (80) | 8 (80) | 6 (55) | 6 (50) | 28 (65) |
Highest education levela n (%) | |||||
General Certificate of Secondary Education (GCSE) or less | 6 (60) | 0 | 1 (9) | 0 | 7 (16) |
Advanced (A) Levels | 2 (20) | 6 (60) | 1 (9) | 1 (8) | 10 (23) |
Vocational qualification or Apprenticeship | 0 | 0 | 5 (45) | 1 (8) | 6 (14) |
University or College degree | 2 (20) | 2 (20) | 4 (36) | 4 (33) | 12 (28) |
Post-graduate degree or qualification | 0 | 2 (20) | 0 | 6 (50) | 8 (19) |
Clinical Characteristics | |||||
Type of Hereditary Angioedema n (%) | |||||
Type I | N/Ab | 9 (90) | 9 (82) | 9 (75) | 27 (82) |
Type II | N/A | 1 (10) | 2 (18) | 1 (8) | 4 (12) |
Missing data | N/A | 0 | 0 | 2 (17) | 2 (6) |
Type of Hereditary Angioedema attack(s) experienced in the past six months n (%) | |||||
Cutaneous edema (skin swelling) | 9 (90) | 8 (80) | 10 (91) | 10 (83) | 37 (86) |
Abdominal edema (internal swelling) | 7 (70) | 6 (60) | 9 (82) | 9 (75) | 31 (72) |
Laryngeal edema (throat swelling) | 5 (50) | 2 (20) | 3 (27) | 2 (17) | 12 (28) |
Type of Hereditary Angioedema attack(s) experienced most recently n (%) | |||||
Cutaneous edema (skin swelling) | 5 (50) | 6 (60) | 7 (64) | 8 (67) | 26 (60) |
Abdominal edema (internal swelling) | 7 (70) | 3 (30) | 6 (55) | 7 (58) | 23 (53) |
Laryngeal edema (throat swelling) | 2 (20) | 1 (10) | 0 | 0 | 3 (7) |
Days since last attack | |||||
Mean | 44 | 33 | 17 | 75 | 43 |
Min - Max | 0 - 172 | 4 - 133 | 0 - 84 | 9 - 204 | 0 - 204 |
Hereditary Angioedema diagnosis by n (%) | |||||
General Practitioner (GP) | 3 (30) | 0 | 1 (9) | 0 | 4 (9) |
Hereditary Angioedema Specialist | 3 (30) | 5 (50) | 5 (45) | 3 (25) | 16 (37) |
Diagnosed because other family members had the condition | 2 (20)c | 1 (10) | 4 (36) | 5 (42) | 12 (28) |
Diagnosis due to other tests/problems | 2 (20) | 0 | 1 (9) | 0 | 3 (7) |
Dermatologist | 1 (10) | 0 | 0 | 1 (8) | 2 (5) |
Pediatrician | 0 | 0 | 0 | 1 (8) | 1 (2) |
Allergist | 0 | 2 (20) | 0 | 1 (8) | 3 (7) |
Emergency Physician | 0 | 1 (10) | 0 | 1 (8) | 2 (5) |
Neurologist | 0 | 1 (10) | 0 | 0 | 1 (2) |