Table 4 Sample focus group questions from nine domains
Topic area | Sample questions |
|---|---|
Arousal from sleep | How would you describe babies who 'arouse with difficulty'? What would that look like? |
Calming | What would "may have trouble calming" look like if you were describing a baby with moderate CLD? What would someone observe? How about with severe CLD? |
Agitation | How would you describe a CLD baby who is 'very agitated'? What are all the observations you might make about a baby at the far end of that spectrum (severe disease)? |
Energy level/activity | Describe a CLD baby in "a high energy" state. How, if at all, would an agitated baby look different from a baby in a state of high energy level/activity level? |
Eye appearance | Is it helpful to include a 'glazed/blank' assessment of eye appearance? If so, is 'glazed/blank' on the spectrum from 'engaged' to 'panicked/wide-eyed' or is 'glazed/blank' indicating something different? |
Color change | What color change do you observe in babies with CLD? What words best describe that color change? |
Tone | What is a specific word or a modifier that describes a baby that has such bad lung disease and is so tired and wiped out that they become low-tone? |
Desaturations | Do babies with no lung disease sometimes desat? Would 'normal' include an occasional desat? |
Respiratory rate | How would you describe respiratory rate with feeding in a baby with no CLD? |