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Table 1 Characteristics of observed variables of caregivers and their chronically ill children

From: A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system

  Parents chronically ill children Sample size
Demographic Variables n (%)  
Gender (Female) 452 (83) 542
Educational level1   535
   Lower 140 (26)  
   Intermediate 220 (41)  
   Higher 175 (33)  
Married/Partner 469 (87) 541
Born in the Netherlands 445 (82) 543
Respondent chronically ill 77 (14) 542
Partner Chronically ill 52 (10) 542
  Mean (sd)  
Age Parent Years (SD) 42.0 (6.5) 540
Children per family 2.3 (0.9) 533
Age child 10.0 (4.4) 532
Disease related variables   
Care Dependency * 3.2 (2.5) 540
Time since diagnosis 7.9 (4.2) 496
Disease Development n (%) 511
   Progressive 93 (18)  
   Improving 134 (26)  
   Varying 120 (23)  
   Stable 164 (32)  
Social participation Mean (SD)  
Hours of work/week 15.38 (13.89) 497
Monthly family income (euro) 2504 (1171) 480
Leisure time (hours) 4.9 (5.7) 539
Holiday (days/year) 19.3 (11.6) 476
Emotional support ** 4.8 (2.0) 529
  1. 1 Highest level completed. Lower: Primary education, Lower and Middle General Secondary education; Intermediate: Middle Vocational education, Higher Secondary education, Pre-university education; Higher: Higher Vocational Education, University
  2. * scale 0–8 (high score representing high dependency)
  3. ** scale 0–8 (high score representing good support)