| |
Parents chronically ill children
|
Sample size
|
|---|
|
Demographic Variables
|
n (%)
| |
|
Gender (Female)
|
452 (83)
|
542
|
|
Educational level1
| |
535
|
|
Lower
|
140 (26)
| |
|
Intermediate
|
220 (41)
| |
|
Higher
|
175 (33)
| |
|
Married/Partner
|
469 (87)
|
541
|
|
Born in the Netherlands
|
445 (82)
|
543
|
|
Respondent chronically ill
|
77 (14)
|
542
|
|
Partner Chronically ill
|
52 (10)
|
542
|
| |
Mean (sd)
| |
|
Age Parent Years (SD)
|
42.0 (6.5)
|
540
|
|
Children per family
|
2.3 (0.9)
|
533
|
|
Age child
|
10.0 (4.4)
|
532
|
|
Disease related variables
| | |
|
Care Dependency *
|
3.2 (2.5)
|
540
|
|
Time since diagnosis
|
7.9 (4.2)
|
496
|
|
Disease Development
|
n (%)
|
511
|
|
Progressive
|
93 (18)
| |
|
Improving
|
134 (26)
| |
|
Varying
|
120 (23)
| |
|
Stable
|
164 (32)
| |
|
Social participation
|
Mean (SD)
| |
|
Hours of work/week
|
15.38 (13.89)
|
497
|
|
Monthly family income (euro)
|
2504 (1171)
|
480
|
|
Leisure time (hours)
|
4.9 (5.7)
|
539
|
|
Holiday (days/year)
|
19.3 (11.6)
|
476
|
|
Emotional support **
|
4.8 (2.0)
|
529
|
-
1 Highest level completed. Lower: Primary education, Lower and Middle General Secondary education; Intermediate: Middle Vocational education, Higher Secondary education, Pre-university education; Higher: Higher Vocational Education, University
- * scale 0–8 (high score representing high dependency)
- ** scale 0–8 (high score representing good support)
