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Table 2 Scale Descriptives of the PedsQL™ 2.0 Family Impact Module in Children with Sickle Cell Disease and Urban Controls

From: A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease

 

Sickle Cell Disease

Controls

  

Scale

N

Median (IQR)

%Floor/%Ceiling

N

Median (IQR)

%Floor/%Ceiling

Effect Size

p-value*

Total Score

95

75.7 (60.8, 86.8)

0.0/4.2

73

75.7 (62.5, 91.3)

0.0/6.8

-0.061

0.549

Parent HRQL

97

75.0 (61.3, 90.0)

0.0/6.2

72

74.4 (59.7, 90.0)

0.0/9.7

0.052

0.793

Family Functioning

94

75.0 (62.5, 93.8)

1.1/19.1

68

81.3 (63.1, 100.0)

0.0/27.9

-0.072

0.414

Physical Functioning

95

66.7 (50.0, 87.5)

1.1/13.7

72

70.8 (54.2, 91.7)

0.0/18.1

-0.139

0.374

Emotional Functioning

97

75.0 (60.0, 100.0)

0.0/26.8

73

75.0 (60.0, 100.0)

0.0/27.4

0.022

0.763

Social Functioning

96

87.5 (62.5, 100.0)

1.0/42.7

72

81.3 (60.9, 100.0)

0.0/37.5

0.133

0.337

Cognitive Functioning

96

75.0 (60.0, 100.0)

1.0/30.2

72

75.0 (53.8, 96.3)

0.0/25.0

0.194

0.234

Communication

94

83.3 (66.7, 100.0)

1.1/39.4

72

91.7 (75.0, 100.0)

1.4/47.2

-0.221

0.108

Worry

94

65.0 (45.0, 90.0)

1.1/18.1

71

80.0 (52.5, 100.0)

0.0/33.8

-0.275

0.040

Daily Activities

93

75.0 (50.0, 100.0)

3.2/28.0

69

75.0 (50.0, 100.0)

0.0/40.6

-0.120

0.431

Family Relationships

94

80.0 (61.3, 100.0)

1.1/34.0

68

87.5 (65.0, 100.0)

1.5/33.8

-0.015

0.869

  1. *p-value from Wilcoxon Rank-Sum Test
  2. IQR: Inter-quartile Range