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Table 2 Scale Descriptives of the PedsQL™ 2.0 Family Impact Module in Children with Sickle Cell Disease and Urban Controls

From: A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease

  Sickle Cell Disease Controls   
Scale N Median (IQR) %Floor/%Ceiling N Median (IQR) %Floor/%Ceiling Effect Size p-value*
Total Score 95 75.7 (60.8, 86.8) 0.0/4.2 73 75.7 (62.5, 91.3) 0.0/6.8 -0.061 0.549
Parent HRQL 97 75.0 (61.3, 90.0) 0.0/6.2 72 74.4 (59.7, 90.0) 0.0/9.7 0.052 0.793
Family Functioning 94 75.0 (62.5, 93.8) 1.1/19.1 68 81.3 (63.1, 100.0) 0.0/27.9 -0.072 0.414
Physical Functioning 95 66.7 (50.0, 87.5) 1.1/13.7 72 70.8 (54.2, 91.7) 0.0/18.1 -0.139 0.374
Emotional Functioning 97 75.0 (60.0, 100.0) 0.0/26.8 73 75.0 (60.0, 100.0) 0.0/27.4 0.022 0.763
Social Functioning 96 87.5 (62.5, 100.0) 1.0/42.7 72 81.3 (60.9, 100.0) 0.0/37.5 0.133 0.337
Cognitive Functioning 96 75.0 (60.0, 100.0) 1.0/30.2 72 75.0 (53.8, 96.3) 0.0/25.0 0.194 0.234
Communication 94 83.3 (66.7, 100.0) 1.1/39.4 72 91.7 (75.0, 100.0) 1.4/47.2 -0.221 0.108
Worry 94 65.0 (45.0, 90.0) 1.1/18.1 71 80.0 (52.5, 100.0) 0.0/33.8 -0.275 0.040
Daily Activities 93 75.0 (50.0, 100.0) 3.2/28.0 69 75.0 (50.0, 100.0) 0.0/40.6 -0.120 0.431
Family Relationships 94 80.0 (61.3, 100.0) 1.1/34.0 68 87.5 (65.0, 100.0) 1.5/33.8 -0.015 0.869
  1. *p-value from Wilcoxon Rank-Sum Test
  2. IQR: Inter-quartile Range