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Table 2 Frequency of Reports of Primary Conceptual Categories and Sub-Categories from ITP Focus Groups

From: Impact of chronic Immune Thrombocytopenic Purpura (ITP) on health-related quality of life: a conceptual model starting with the patient perspective

 

OK

NY

CA

 

N = 15 (%)*

a. Signs and Symptoms

   

14 (93%)

 

Fatigue

+

-

+

 

14 (93)

Bleeding

+

+

+

 

8 (53)

Bruising

+

+

+

 

8 (53)

Other

+

+

+

 

8 (53)

b. Treatment Effects

   

13 (87)

 

Steroids

+

+

+

 

13 (87)

Other treatments

+

+

+

 

8 (53)

c. Emotional Health

   

14 (93)

 

Fear, stress & anxiety

+

+

+

 

11 (73)

Relationships

+

+

+

 

7 (47)

Depression, isolation, & loss of control

+

+

+

 

7 (47)

Mood & self-consciousness

+

+

+

 

7 (47)

d. Functional Health

   

13 (87)

 

Daily activities

+

+

+

 

11 (73)

Sleep

+

+

+

 

9 (60)

Changes in lifestyle

+

+

+

 

7 (47)

e. Work

   

13 (87)

 

Absences

+

+

+

 

10 (67)

Changes in attitudes

-

+

+

 

5 (33)

Career advancement

+

+

+

 

3 (33)

Productivity

+

+

+

 

4 (27)

f. Social and Leisure

   

10 (67)

 

Sports/exercise/physical activity

+

+

+

 

5 (33)

Leisure activities

+

+

+

 

5 (33)

Social Stigma

+

-

+

 

4 (27)

Travel

+

+

+

 

3 (20)

g. Reproductive Health

   

10 (67)

 

Sex

+

+

+

 

9 (60)

Women's reproductive issues

+

+

+

 

8 (53)

  1. + = theme present in focus group
  2. - = theme not present in focus group
  3. * based on data from OK and CA focus groups only