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Table 1 Longitudinal Data for “Mr. Smith” (WQL = 12.63 prospective, = 5.10 retrospective)

From: Quality of life at the end of life

1

2

3

4

5

6

7

Weeks after Baseline

Weeks Before Death

QOL

QOLt

QOLtd

QOLtdi

QOLback

0

-18

10

.93

.93

.93

10.00

1

-17

9

.87

.87

.87

9.00

2

-16

.

  

.92

9.82

3

-15

9

.87

.87

.87

9.00

4

-14

9

.87

.87

.87

9.00

5

-13

.

  

.86

8.77

6

-12

9

.87

.87

.87

9.00

7

-11

8

.78

.78

.78

8.00

8

-10

9

.87

.87

.87

9.00

9

-9

.

  

.74

7.71

10

-8

8

.78

.78

.78

8.00

11

-7

.

  

.67

7.20

12

-6

6

.48

.48

.48

6.00

13

-5

7

.64

.64

.64

7.00

14

-4

.

  

.54

6.36

15

-3

7

.64

.64

.64

7.00

16

-2

.

  

.41

5.63

17

-1

.

  

.33

5.13

18

0

.

  

.23

4.41

19

.

.

.

0

0

d

20

.

.

.

0

0

d

21

.

.

.

0

0

d

.

 

.

.

0

0

d

.

 

.

.

0

0

d

137

.

.

.

0

0

d

138

.

.

.

.

.

.

.

.

.

.

.

.

.

150

.

.

.

.

.

.

  1. 1 Weeks after enrollment (0 is person's baseline)
  2. 2 Weeks before death. (0 is the week the person died)
  3. 3 QOL: Observed QOL data
  4. 4 QOLt: QOL transformed to the probability of having good QOL next week given current QOL
  5. 5 QOLtd: QOLt with the weeks when person was dead set to 0. Weeks 138–150 are missing because Mr. Smith enrolled only 137 weeks before the end of current data collection.
  6. 6 QOLtdi: QOLtd with missing data imputed. Unknown for weeks 117–131 (for Mr. Smith).
  7. 7 QOLtdi transformed back to the original categories. (identical to observed QOL values, imputed values may need to be rounded).