Table 1 ADDQoL-Teen item wording and abbreviations
No: | Abbreviation | Overview item |
|---|---|---|
A | present QoL | In general, I feel my quality of life is..... |
B | diabetes-dependent QoL | Does diabetes usually make your quality of life worse or better? |
Full item as in the 'a'/frequency stem | ||
1 | others fuss | Do you ever feel people fuss or worry about you because of your diabetes? |
2 | sweets | Do you ever feel you want to eat sweets but don't because of your diabetes? |
3 | drink | Do you ever want to drink something but you don't drink it because of your diabetes? |
4 | eat | Do you ever want to eat something but you don't eat it because of your diabetes? |
5 | insulin | Do you take insulin? |
6 | bleed | Do you ever bleed or have any bruises or lumpy bits where you take your insulin? |
7 | *extra things | Do you ever have extra things, like snacks, money, treats or days out because of your diabetes? |
8 | interrupt do | Do you ever find diabetes interrupts what you are doing, like watching TV, working at home or school, playing computer games or any other activities? |
9 | finger tests | Do you have finger prick blood tests? |
10 | control | Do you ever feel you want to take more control of diabetes on your own, with less help from other people? |
11 | moody | Do changes in your blood sugars ever make you feel moody? |
12 | unwell | Do you ever feel unwell because of your diabetes, like having a headache or pain, or feeling tired, sick or dizzy? |
13 | *out of fix | Do you ever find that having diabetes gets you out of a fix, or gets you out of doing something you don't want to do? |
14 | sleep away | Do you ever get asked to sleep away from home or at a friend's house, but you don't because of your diabetes? |
15 | wake nights | Do you ever wake up in the night feeling hypo with low blood sugar? |
16 | lie in bed | Do you ever want to have a lie in bed, but you don't because of your diabetes? |
17 | miss events | Do you ever miss a party, a school trip, going out or any other event because of your diabetes? |
18 | low BG | Do you ever feel your blood sugar is too low? |
19 | high BG | Do you ever feel your blood sugar is too high? |
20 | worry future | Do you ever worry about the future, like getting married, having children or your future health because of your diabetes? |
21 | career | Do you ever feel that having diabetes will make a difference to your future job or career? |
22 | different | Do you ever feel 'different' because of your diabetes? |
23 | not allowed | Are you ever told that things are 'not allowed' because of your diabetes? |
24 | family life | Do you ever feel that diabetes makes a difference to life with your family or the people you live with? |
25 | responsibility | Do you ever find you are expected to take more responsibility than you would like because of your diabetes? |
26 | play sport | Do you ever find that having diabetes makes any difference to playing sport? |
27 | go toilet | Do you ever find that you need to go to the toilet too often because of your diabetes? |
28 | social life | Do you ever find you need to fit diabetes into your social life, like carrying equipment, planning when to eat, or where to take insulin when away from home? |
29 | clinic visits | Do you go to a diabetes clinic? |
30 | *holidays | Have you ever been to B.D.A holidays or weekends away, or made new friends because of your diabetes? |