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Table 2 Disease-related topics mentioned by focus group participants

From: “Getting stuck with LAM”: patients perspectives on living with Lymphangioleiomyomatosis

Topic

Number of the seven focus groups in which the topic was mentioned

Symptoms

 

 Shortness of breath

7

 Low energy

7

 Cough

7

 Sensations in the chest

5

 Difficulty sleeping

6

 Gastrointestinal issues

4

 Mild cognitive difficulties

5

Psychological experiences

 

 Frustration

7

 Worry

7

 Loss of identity

7

 Embarrassment

6

 Defiance

5