Assessing the validity and intra-observer agreement of the MIDAM-LTC; an instrument measuring factors that influence personal dignity in long-term care facilities

Table 4 Characteristics of the study population

Characteristics	N = 95¹
Sex, female (%)	65
Age, mean (SD) [range]	79.8 (11.2) [44 – 100]
Cultural background (%)
Dutch	88
Surinam	8
Other	4
Diseases (%)²
Heart diseases	36
Rheumatoid arthritis	29
Stroke	28
Diabetes	25
Cancer	14
Asthma/COPD	11
Depression	8
Parkinson’s disease	5
Multiple Sclerosis	3
Length of stay in nursing home, mean days (SD) [range]	744 (764) [29 – 3830]
Cognitive Performance Scale (%)
Intact	73
Borderline intact	21
Mild impairment	3
Moderate impairment	2
Moderate severe impairment	1
Having a belief/religion that is appreciated as important (%)	45
Barthel Index, mean (SD) [range]³	7.4 (4.9) [0 – 19]
WHO-Five Well Being Index, mean (SD) [range]⁴	54.8 (23.5) [0 – 100]
EQ-5D, mean (SD) [range]⁵	0.33 (0.26) [-0.2 – 1]
Quality of life, mean (SD) [range]	6.6 (2.0) [1 – 10]
Single item score for personal dignity, mean (SD) [range]	7.3 (1.6) [1 – 10]

¹Missing observations for 2–10 respondents: WHO-Five Well Being Scale (2), EQ-5D (2), Quality of life (3), Single item for personal dignity (3), Cognitive Performance Scale (3), Barthel Index (4), Diseases (8), Length of stay (10).
²Many respondents had several diseases. The most prevalent diseases are listed in the table, but many others were mentioned (e.g. Chron’s disease, cataract, pneumonia, polyneuropathy, ALS, aneurysma hydrocephalus, epilepsy).
³The Barthel Index assesses ability to perform activities of daily living: 0 = total dependence – 20 = maximum independence.
⁴A higher score on the WHO-Five Well Being Index (from 0 to 100) indicates more well-being.
⁵The EQ-5D assesses health-related quality of life on 5 dimensions 'mobility, self-care, usual activities, pain/discomfort and anxiety/depression’: -0.33 = severely disabled on all domains – 1 = perfect health.

ISSN: 1477-7525